Preferences for a self-management e-health tool for patients with chronic kidney disease: results of a patient-oriented consensus workshop.


Journal

CMAJ open
ISSN: 2291-0026
Titre abrégé: CMAJ Open
Pays: Canada
ID NLM: 101620603

Informations de publication

Date de publication:
Historique:
entrez: 12 12 2019
pubmed: 12 12 2019
medline: 12 12 2019
Statut: epublish

Résumé

Electronic health (e-health) tools may support patients' self-management of chronic kidney disease. We aimed to identify preferences of patients with chronic kidney disease, caregivers and health care providers regarding content and features for an e-health tool to support chronic kidney disease self-management. A patient-oriented research approach was taken, with 6 patient partners (5 patients and 1 caregiver) involved in study design, data collection and review of results. Patients, caregivers and clinicians from across Canada participated in a 1-day consensus workshop in June 2018. Using personas (fictional characters) and a cumulative voting technique, they identified preferences for content for 8 predetermined topics (understanding chronic kidney disease, diet, finances, medication, symptoms, travel, mental and physical health, work/school) and features for an e-health tool. There were 24 participants, including 11 patients and 6 caregivers, from across Canada. The following content suggestions were ranked the highest: basic information about kidneys, chronic kidney disease and disease progression; reliable information on diet requirements for chronic kidney disease and comorbidities, renal-friendly foods; affordability of medication, equipment, food, financial resources and planning; common medications, adverse effects, indications, cost and coverage; symptom types and management; travel limitations, insurance, access to health care, travel checklists; screening and supports to address mental health, cultural sensitivity, adjusting to new normal; and support to help integrate at work/school, restrictions. Preferred features included visuals, the ability to enter and track health information and interact with health care providers, "on-the-go" access, links to resources and access to personal health information. A consensus workshop developed around personas was successful for identifying detailed subject matter for 8 predetermined topic areas, as well as preferred features to consider in the codevelopment of a chronic kidney disease self-management e-health tool. The use of personas could be applied to other applications in patient-oriented research exploring patient preferences and needs in order to improve care and relevant outcomes.

Sections du résumé

BACKGROUND BACKGROUND
Electronic health (e-health) tools may support patients' self-management of chronic kidney disease. We aimed to identify preferences of patients with chronic kidney disease, caregivers and health care providers regarding content and features for an e-health tool to support chronic kidney disease self-management.
METHODS METHODS
A patient-oriented research approach was taken, with 6 patient partners (5 patients and 1 caregiver) involved in study design, data collection and review of results. Patients, caregivers and clinicians from across Canada participated in a 1-day consensus workshop in June 2018. Using personas (fictional characters) and a cumulative voting technique, they identified preferences for content for 8 predetermined topics (understanding chronic kidney disease, diet, finances, medication, symptoms, travel, mental and physical health, work/school) and features for an e-health tool.
RESULTS RESULTS
There were 24 participants, including 11 patients and 6 caregivers, from across Canada. The following content suggestions were ranked the highest: basic information about kidneys, chronic kidney disease and disease progression; reliable information on diet requirements for chronic kidney disease and comorbidities, renal-friendly foods; affordability of medication, equipment, food, financial resources and planning; common medications, adverse effects, indications, cost and coverage; symptom types and management; travel limitations, insurance, access to health care, travel checklists; screening and supports to address mental health, cultural sensitivity, adjusting to new normal; and support to help integrate at work/school, restrictions. Preferred features included visuals, the ability to enter and track health information and interact with health care providers, "on-the-go" access, links to resources and access to personal health information.
INTERPRETATION CONCLUSIONS
A consensus workshop developed around personas was successful for identifying detailed subject matter for 8 predetermined topic areas, as well as preferred features to consider in the codevelopment of a chronic kidney disease self-management e-health tool. The use of personas could be applied to other applications in patient-oriented research exploring patient preferences and needs in order to improve care and relevant outcomes.

Identifiants

pubmed: 31822502
pii: 7/4/E713
doi: 10.9778/cmajo.20190081
pmc: PMC6905858
doi:

Types de publication

Journal Article

Langues

eng

Pagination

E713-E720

Informations de copyright

Copyright 2019, Joule Inc. or its licensors.

Déclaration de conflit d'intérêts

Competing interests: Matthew James reports grants from Amgen Canada, outside the submitted work. No other competing interests were declared.

Références

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Auteurs

Maoliosa Donald (M)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Heather Beanlands (H)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Sharon Straus (S)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Paul Ronksley (P)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Helen Tam-Tham (H)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Juli Finlay (J)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Michelle Smekal (M)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Meghan J Elliott (MJ)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Janine Farragher (J)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Gwen Herrington (G)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Lori Harwood (L)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Chantel A Large (CA)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Claire L Large (CL)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Blair Waldvogel (B)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Maria L Delgado (ML)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Dwight Sparkes (D)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Allison Tong (A)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Allan Grill (A)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Marta Novak (M)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Matthew T James (MT)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

K Scott Brimble (KS)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Susan Samuel (S)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Karen Tu (K)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

Brenda R Hemmelgarn (BR)

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta. Brenda.Hemmelgarn@ahs.ca.

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