Prevalence and severity of sleep difficulty in patients with a CNS cancer receiving palliative care in Australia.

CNS cancers longitudinal study palliative care sleep difficulties supportive care

Journal

Neuro-oncology practice
ISSN: 2054-2577
Titre abrégé: Neurooncol Pract
Pays: England
ID NLM: 101640528

Informations de publication

Date de publication:
Dec 2019
Historique:
entrez: 14 12 2019
pubmed: 14 12 2019
medline: 14 12 2019
Statut: ppublish

Résumé

The literature describing the incidence of sleep difficulty in CNS cancers is very limited, with exploration of a sleep difficulty symptom trajectory particularly sparse in people with advanced disease. We aimed to establish the prevalence and longitudinal trajectory of sleep difficulty in populations with CNS cancers receiving palliative care nationally, and to identify clinically modifiable predictors of sleep difficulty. A consecutive cohort of 2406 patients with CNS cancers receiving palliative care from sites participating in the Australian national Palliative Care Outcomes Collaboration were evaluated longitudinally on patient-reported sleep difficulty from point-of-care data collection, comorbid symptoms, and clinician-rated problems. Multilevel models were used to analyze patient-reported sleep difficulty. Reporting of mild to severe sleep difficulties ranged from 10% to 43%. Sleep scores fluctuated greatly over the course of palliative care. While improvement in patients' clinical status was associated with less sleep difficulty, the relationship was not clear when patients deteriorated. Worsening of sleep difficulty was associated with higher psychological distress ( Sleep difficulty is prevalent but fluctuates widely in patients with CNS cancers receiving palliative care. A better-tailored sleep symptom assessment may be needed for this patient population. Early interventions targeting psychological distress, breathing symptoms, and pain for more functional patients should be explored to see whether it reduces sleep difficulties late in life.

Sections du résumé

BACKGROUND BACKGROUND
The literature describing the incidence of sleep difficulty in CNS cancers is very limited, with exploration of a sleep difficulty symptom trajectory particularly sparse in people with advanced disease. We aimed to establish the prevalence and longitudinal trajectory of sleep difficulty in populations with CNS cancers receiving palliative care nationally, and to identify clinically modifiable predictors of sleep difficulty.
METHODS METHODS
A consecutive cohort of 2406 patients with CNS cancers receiving palliative care from sites participating in the Australian national Palliative Care Outcomes Collaboration were evaluated longitudinally on patient-reported sleep difficulty from point-of-care data collection, comorbid symptoms, and clinician-rated problems. Multilevel models were used to analyze patient-reported sleep difficulty.
RESULTS RESULTS
Reporting of mild to severe sleep difficulties ranged from 10% to 43%. Sleep scores fluctuated greatly over the course of palliative care. While improvement in patients' clinical status was associated with less sleep difficulty, the relationship was not clear when patients deteriorated. Worsening of sleep difficulty was associated with higher psychological distress (
CONCLUSIONS CONCLUSIONS
Sleep difficulty is prevalent but fluctuates widely in patients with CNS cancers receiving palliative care. A better-tailored sleep symptom assessment may be needed for this patient population. Early interventions targeting psychological distress, breathing symptoms, and pain for more functional patients should be explored to see whether it reduces sleep difficulties late in life.

Identifiants

pubmed: 31832221
doi: 10.1093/nop/npz005
pii: npz005
pmc: PMC6899052
doi:

Types de publication

Journal Article

Langues

eng

Pagination

499-507

Informations de copyright

© The Author(s) 2019. Published by Oxford University Press on behalf of the Society for Neuro-Oncology and the European Association of Neuro-Oncology. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

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Auteurs

Megan S Jeon (MS)

South Western Sydney Clinical School, University of New South Wales, Australia.

Haryana M Dhillon (HM)

Centre for Medical Psychology & Evidence-based Decision-making, University of Sydney, Australia.

Joseph Descallar (J)

South Western Sydney Clinical School, University of New South Wales, Australia.
Ingham Institute for Applied Medical Research, Sydney, Australia.

Lawrence Lam (L)

IMPACCT (Improving Palliative, Aged and Chronic Care through Clinical Research and Translation), Faculty of Health, University of Technology Sydney, Australia.

Samuel Allingham (S)

Palliative Care Outcomes Collaboration, University of Wollongong, Australia.

Eng-Siew Koh (ES)

South Western Sydney Clinical School, University of New South Wales, Australia.
Ingham Institute for Applied Medical Research, Sydney, Australia.

David C Currow (DC)

IMPACCT (Improving Palliative, Aged and Chronic Care through Clinical Research and Translation), Faculty of Health, University of Technology Sydney, Australia.

Meera R Agar (MR)

South Western Sydney Clinical School, University of New South Wales, Australia.
IMPACCT (Improving Palliative, Aged and Chronic Care through Clinical Research and Translation), Faculty of Health, University of Technology Sydney, Australia.
Ingham Institute for Applied Medical Research, Sydney, Australia.

Classifications MeSH