High-dose biotin in progressive multiple sclerosis: A prospective study of 178 patients in routine clinical practice.


Journal

Multiple sclerosis (Houndmills, Basingstoke, England)
ISSN: 1477-0970
Titre abrégé: Mult Scler
Pays: England
ID NLM: 9509185

Informations de publication

Date de publication:
12 2020
Historique:
pubmed: 18 12 2019
medline: 25 9 2021
entrez: 18 12 2019
Statut: ppublish

Résumé

A recent controlled trial suggested that high-dose biotin supplementation reverses disability progression in patients with progressive multiple sclerosis. To analyze the impact of high-dose biotin in routine clinical practice on disability progression at 12 months. Progressive multiple sclerosis patients who started high-dose biotin at Nantes or Rennes Hospital between 3 June 2015 and 15 September 2017 were included in this prospective study. Disability outcome measures, patient-reported outcome measures, relapses, magnetic resonance imaging (MRI) data, and adverse events were collected at baseline, 6, and 12 months. A total of 178 patients were included. At baseline, patients were 52.0 ± 9.4 years old, mean Expanded Disability Status Scale (EDSS) score was 6.1 ± 1.3, mean disease duration was 16.9 ± 9.5 years. At 12 months, 3.8% of the patients had an improved EDSS score. Regarding the other disability scales, scores either remained stable or increased significantly. In total, 47.4% of the patients described stability, 27.6% felt an improvement, and 25% described a worsening. Four patients (2.2%) had a relapse. Of the 74 patients (41.6%) who underwent an MRI, 20 (27.0%) had new T2 lesions, 8 (10.8%) had gadolinium-enhancing lesions. Twenty-five (14%) reported adverse event. In this study, high-dose biotin did not seem to be associated with a clear improvement in disability.

Sections du résumé

BACKGROUND
A recent controlled trial suggested that high-dose biotin supplementation reverses disability progression in patients with progressive multiple sclerosis.
OBJECTIVE
To analyze the impact of high-dose biotin in routine clinical practice on disability progression at 12 months.
METHODS
Progressive multiple sclerosis patients who started high-dose biotin at Nantes or Rennes Hospital between 3 June 2015 and 15 September 2017 were included in this prospective study. Disability outcome measures, patient-reported outcome measures, relapses, magnetic resonance imaging (MRI) data, and adverse events were collected at baseline, 6, and 12 months.
RESULTS
A total of 178 patients were included. At baseline, patients were 52.0 ± 9.4 years old, mean Expanded Disability Status Scale (EDSS) score was 6.1 ± 1.3, mean disease duration was 16.9 ± 9.5 years. At 12 months, 3.8% of the patients had an improved EDSS score. Regarding the other disability scales, scores either remained stable or increased significantly. In total, 47.4% of the patients described stability, 27.6% felt an improvement, and 25% described a worsening. Four patients (2.2%) had a relapse. Of the 74 patients (41.6%) who underwent an MRI, 20 (27.0%) had new T2 lesions, 8 (10.8%) had gadolinium-enhancing lesions. Twenty-five (14%) reported adverse event.
CONCLUSION
In this study, high-dose biotin did not seem to be associated with a clear improvement in disability.

Identifiants

pubmed: 31845825
doi: 10.1177/1352458519894713
doi:

Substances chimiques

Biotin 6SO6U10H04

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1898-1906

Auteurs

Laura Couloume (L)

Service de Neurologie, CHU Nantes, Nantes, France.

Laetitia Barbin (L)

CIC0004 Inserm, Nantes, France.

Emmanuelle Leray (E)

Univ Rennes, EHESP, REPERES (Pharmacoepidemiology and health services research)-EA 7449, Rennes, France.

Sandrine Wiertlewski (S)

Service de Neurologie, CHU Nantes, Nantes, France/CIC0004 Inserm, Nantes, France.

Emmanuelle Le Page (E)

Univ Rennes, CHU Rennes, Neurology, Centre d'Investigation Clinique de Rennes (CIC Inserm 1414), Rennes, France.

Anne Kerbrat (A)

Univ Rennes, CHU Rennes, Neurology, Centre d'Investigation Clinique de Rennes (CIC Inserm 1414), Rennes, France.

Solenn Ory (S)

Univ Rennes, CHU Rennes, Neurology, Centre d'Investigation Clinique de Rennes (CIC Inserm 1414), Rennes, France.

Damien Le Port (D)

Univ Rennes, CHU Rennes, Neurology, Centre d'Investigation Clinique de Rennes (CIC Inserm 1414), Rennes, France.

Gilles Edan (G)

Univ Rennes, CHU Rennes, Neurology, Centre d'Investigation Clinique de Rennes (CIC Inserm 1414), Rennes, France.

David-Axel Laplaud (DA)

Service de Neurologie, CHU Nantes, Nantes, France/CIC0004 Inserm, Nantes, France/Centre de Recherche en Transplantation et Immunologie (CRTI), Inserm U1064, Nantes, France/Université de Nantes, Nantes, France.

Laure Michel (L)

Service de Neurologie, CHU Pontchaillou, Rennes, France; Univ Rennes, CHU Rennes, Neurology, Centre d'Investigation Clinique de Rennes (CIC Inserm 1414), Rennes, France; Unité Mixte de Recherche (UMR) S1236, INSERM, University of Rennes, Etablissement Français du Sang, Rennes, France/Suivi Immunologique des Thérapeutiques Innovantes, Centre Hospitalier Universitaire de Rennes, Etablissement Français du Sang, Rennes, France.

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