Values clarification and parental decision making about newborn genomic sequencing.
Journal
Health psychology : official journal of the Division of Health Psychology, American Psychological Association
ISSN: 1930-7810
Titre abrégé: Health Psychol
Pays: United States
ID NLM: 8211523
Informations de publication
Date de publication:
Apr 2020
Apr 2020
Historique:
pubmed:
31
12
2019
medline:
17
6
2020
entrez:
31
12
2019
Statut:
ppublish
Résumé
Using an online decision aid developed to support parental decision making about newborn genomic sequencing, we tested whether adding a values clarification exercise to educational content would improve decision making outcomes and influence intention to pursue genomic sequencing. We also examined whether the effect of values clarification varied depending on one's health literacy level. In an online experiment, women and men aged 18 to 44 who were either pregnant or had a pregnant partner, were currently trying to get pregnant, or were preparing for a pregnancy within the next 2 years were randomly assigned to complete either a decision aid with educational information about newborn genomic sequencing or a decision aid with the same educational information and a values clarification exercise. Of the 1,000 participants who completed the decision aid, those who completed the values clarification exercise reported less decision regret, Adding a values clarification exercise to decision aids for parents making decisions about genomic sequencing may improve the decision-making experience and provide some benefit to individuals with lower health literacy. (PsycINFO Database Record (c) 2020 APA, all rights reserved).
Identifiants
pubmed: 31886693
pii: 2019-79139-001
doi: 10.1037/hea0000829
pmc: PMC7078054
mid: NIHMS1064505
doi:
Types de publication
Journal Article
Randomized Controlled Trial
Langues
eng
Sous-ensembles de citation
IM
Pagination
335-344Subventions
Organisme : National Institutes of Health; National Human Genome Research Institute
Organisme : Asuragen
Organisme : NICHD NIH HHS
ID : U19 HD077632
Pays : United States
Organisme : Eunice Kennedy Shriver National Institute of Child Health and Human Development
Organisme : John Merck Fund
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