MS Energize: Field trial of an app for self-management of fatigue for people with multiple sclerosis.
Cognitive behavioral therapy
Fatigue
Multiple sclerosis
Self-management
Smartphone
mHealth
Journal
Internet interventions
ISSN: 2214-7829
Titre abrégé: Internet Interv
Pays: Netherlands
ID NLM: 101631612
Informations de publication
Date de publication:
Dec 2019
Dec 2019
Historique:
received:
17
04
2019
revised:
20
10
2019
accepted:
06
11
2019
entrez:
1
1
2020
pubmed:
1
1
2020
medline:
1
1
2020
Statut:
epublish
Résumé
Multiple sclerosis (MS) is a lifelong neurological condition affecting around 2.2 million people worldwide. There are a wide range of symptoms, with fatigue reported as one of the most troublesome. MS Energize-or MS Energise in UK English regions-is an iPhone app focused on self-management of fatigue for people with MS. Based on cognitive-behavioral therapy principles, the app covers MS fatigue, how to use energy effectively, how behavior, thoughts and emotions interact and impact on MS fatigue, as well as the potential effects of bodily and environmental factors. MS Energize provides education, interactive tasks, and supports application of the principles into a user's day-to-day life. We field tested the usability and perceived usefulness of MS Energize with 11 people with longstanding multiple sclerosis in New Zealand and the United Kingdom. Participants used the app over a period of five to six weeks after which they rated the usability of the app and participated in an in-depth qualitative interview. We developed four main themes through our thematic analysis. 1. Validation of participants' own experiences of living with MS fatigue. 2. The personal cost in engaging with such an intervention. 3. Reframing experiences and adding to knowledge. 4. That the app was generally a good idea. Field testers' feedback also identified usability issues that could be addressed. In particular, the amount of text-based content in the app contributed to the app itself being fatiguing. This field-testing process has highlighted the value of the app while also guiding our roadmap for further developments to enhance usability and usefulness. The next step is further refinement of components of MS Energize in preparation for a trial of its clinical and cost effectiveness.
Identifiants
pubmed: 31890637
doi: 10.1016/j.invent.2019.100291
pii: S2214-7829(19)30031-4
pii: 100291
pmc: PMC6926294
doi:
Types de publication
Journal Article
Langues
eng
Pagination
100291Informations de copyright
© 2019 The Authors.
Déclaration de conflit d'intérêts
The software package that is the focus of this paper has been released through the iOS app store. Kersten, van Kessel and Babbage are the inventors of the product, and along with Auckland University of Technology and Bournemouth University receive royalty payments associated with sales of the software.
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