The ENABLE study protocol: Understanding and characterising the value and role of self-management support for people living with cancer that is treatable but not curable.
Delphi
consensus
incurable cancer
longitudinal
qualitative
self-management
self-management support
Journal
European journal of cancer care
ISSN: 1365-2354
Titre abrégé: Eur J Cancer Care (Engl)
Pays: England
ID NLM: 9301979
Informations de publication
Date de publication:
Mar 2020
Mar 2020
Historique:
received:
29
11
2018
revised:
07
11
2019
accepted:
10
12
2019
pubmed:
21
1
2020
medline:
5
1
2021
entrez:
21
1
2020
Statut:
ppublish
Résumé
Attention is turning to the needs of people living with treatable but incurable cancer, a group with complex needs, living with uncertainty over time. More research is needed to understand how this group self-manage the impact of cancer to strengthen the evidence base for interventions. This study aims to understand the value and outcomes of self-management support for people living with treatable but incurable cancer. Qualitative longitudinal methods will examine how support needs change over time in relation to self-management and unpredictable disease trajectories. Thirty patients and 30 carers will be recruited from two hospitals, each participating in three interviews over 1 year. Patients will be purposively sampled according to age, gender, cancer type and anticipated survival. Carers will be recruited via nomination by patients but interviewed separately. One-off interviews will be conducted with 20 healthcare professionals, providing data from multiple perspectives. Based on interview findings, a modified Delphi process will map areas of consensus and disparity regarding conceptualisations and outcomes of self-management support. The key output will be practice recommendations in relation to self-management support, producing evidence to inform service innovation for those living with treatable but incurable cancer.
Types de publication
Journal Article
Langues
eng
Pagination
e13217Subventions
Organisme : Macmillan Cancer Support
ID : 6488019
Informations de copyright
© 2020 John Wiley & Sons Ltd.
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