Exploring the lived experiences of pregnancy and early motherhood in Italian women with congenital heart disease: an interpretative phenomenological analysis.


Journal

BMJ open
ISSN: 2044-6055
Titre abrégé: BMJ Open
Pays: England
ID NLM: 101552874

Informations de publication

Date de publication:
23 01 2020
Historique:
entrez: 26 1 2020
pubmed: 26 1 2020
medline: 10 2 2021
Statut: epublish

Résumé

This study explored the lived experiences of women with congenital heart disease (CHD) during pregnancy and early motherhood. Qualitative study using semistructured interviews. Data were analysed according to interpretative phenomenological analysis. San Donato Milanese, Italy. 12 adult women during pregnancy or early motherhood. Three main themes emerged from the analysis that were labelled as follows: 'Being a woman with CHD'; 'Being a mother with CHD'; and 'Don't be alone'. Mothers described both positive and negative feelings about their pregnancies and transitions from childless women to mothers with CHD. They needed supportive care to improve the management of their health during pregnancy and early motherhood. This study explored the lived experiences of women with CHD during pregnancy and early motherhood. The emerged themes represent an initial framework for implementing theory-grounded educational and supportive strategies that improve self-care, engagement and quality of life for women with CHD. Furthermore, the study's results provide guidance for operationalising the described experiences into items and domains for future cross-national surveys.

Identifiants

pubmed: 31980511
pii: bmjopen-2019-034588
doi: 10.1136/bmjopen-2019-034588
pmc: PMC7044861
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

e034588

Informations de copyright

© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

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Auteurs

Serena Francesca Flocco (SF)

Health Professions Research and Development Unit, IRCCS Policlinico San Danato, San Donato Milanese, Lombardia, Italy.

Rosario Caruso (R)

Health Professions Research and Development Unit, IRCCS Policlinico San Danato, San Donato Milanese, Lombardia, Italy rosario.caruso@unimi.it.

Serena Barello (S)

Department of Psychology, EngageMinds HUB - Consumer & Health Research Center, Università Cattolica del Sacro Cuore, Milan, Italy.

Tiziana Nania (T)

Health Professions Research and Development Unit, IRCCS Policlinico San Danato, San Donato Milanese, Lombardia, Italy.

Silvio Simeone (S)

Department of Biomedicine and Prevention, University of Rome Tor Vergata, Roma, Lazio, Italy.

Federica Dellafiore (F)

Health Professions Research and Development Unit, IRCCS Policlinico San Danato, San Donato Milanese, Lombardia, Italy.

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Classifications MeSH