The Quality of Life is Not Strained: Disability, Human Nature, Well-Being, and Relationships.


Journal

Kennedy Institute of Ethics journal
ISSN: 1086-3249
Titre abrégé: Kennedy Inst Ethics J
Pays: United States
ID NLM: 9109135

Informations de publication

Date de publication:
2019
Historique:
entrez: 28 1 2020
pubmed: 28 1 2020
medline: 15 7 2020
Statut: ppublish

Résumé

This paper explores the relationship between disability and quality of life and some of its implications for bioethics and healthcare. It focuses on the neglected perfectionist approach that ties well-being to the flourishing of human nature, which provides the strongest support for the common view of disability as a harm. After critiquing the traditional Aristotelian version of perfectionism, which excludes the disabled from flourishing by prioritizing rationalistic goods, I defend a new version that prioritizes the social capacities of human nature and the goods of personal relationship. This relationship-centered perfectionism is able to accommodate and explain disabled thriving. I also show how these issues have important implications for specific bioethical debates and clinical practices, using a cluster of issues related to Down syndrome as timely illustrations. My goal is to sketch a perfectionist theory that gives a more plausible account of the relationship between disability and well-being and that provides better practical guidance in cases involving judgments about the quality of disabled lives.

Identifiants

pubmed: 31983697
pii: S1086324919400035
doi: 10.1353/ken.2019.0029
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

333-366

Auteurs

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Classifications MeSH