Self-care status in children with congenital heart disease: A mixed-method study.


Journal

Journal of child and adolescent psychiatric nursing : official publication of the Association of Child and Adolescent Psychiatric Nurses, Inc
ISSN: 1744-6171
Titre abrégé: J Child Adolesc Psychiatr Nurs
Pays: England
ID NLM: 9431738

Informations de publication

Date de publication:
05 2020
Historique:
received: 09 08 2019
revised: 25 12 2019
accepted: 02 02 2020
pubmed: 13 2 2020
medline: 16 6 2021
entrez: 13 2 2020
Statut: ppublish

Résumé

Suffering congenital heart disease leads to physical and mental disabilities in children. Children's self-care can result in appropriate care behaviors for limiting disease-induced problems. Given the ability of children to care for themselves, we investigated self-care statues in children who are suffering from congenital heart disease. This study was conducted using a mixed-method approach and a sequential explanatory design. A cross-sectional study was conducted to assess self-care status in 124 CHD children who were living in Kerman, Iran. In the qualitative phase, the researchers interviewed 13 of these children and three parents using semi-structured in-depth and face-to-face approaches. The mean of self-care scores in these school-age children was optimal (10/7 ± 2/6). In the qualitative phase, three main themes were extracted: captive to health issues physical and mental sufferings and wishing for peace of mind. The results showed that self-care status in these children was optimal. As the main pillar of patient education, nurses can help enhance self-care behaviors and reduce the complications and problems induced by the disease by implementing educational and support interventions for children with CHD and their families.

Sections du résumé

BACKGROUND
Suffering congenital heart disease leads to physical and mental disabilities in children. Children's self-care can result in appropriate care behaviors for limiting disease-induced problems. Given the ability of children to care for themselves, we investigated self-care statues in children who are suffering from congenital heart disease.
METHOD
This study was conducted using a mixed-method approach and a sequential explanatory design. A cross-sectional study was conducted to assess self-care status in 124 CHD children who were living in Kerman, Iran. In the qualitative phase, the researchers interviewed 13 of these children and three parents using semi-structured in-depth and face-to-face approaches.
RESULTS
The mean of self-care scores in these school-age children was optimal (10/7 ± 2/6). In the qualitative phase, three main themes were extracted: captive to health issues physical and mental sufferings and wishing for peace of mind.
CONCLUSION
The results showed that self-care status in these children was optimal. As the main pillar of patient education, nurses can help enhance self-care behaviors and reduce the complications and problems induced by the disease by implementing educational and support interventions for children with CHD and their families.

Identifiants

pubmed: 32048405
doi: 10.1111/jcap.12265
doi:

Types de publication

Journal Article

Langues

eng

Pagination

77-84

Informations de copyright

© 2020 Wiley Periodicals, Inc.

Références

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Auteurs

Monirsadat Nematollahi (M)

Department of Medical surgical nursing, Nursing Research Center, Kerman University of Medical Sciences, Kerman, Iran.

Behnaz Bagherian (B)

Department of Medical surgical nursing, Nursing Research Center, Kerman University of Medical Sciences, Kerman, Iran.

Zahra Sharifi (Z)

Department of Medical surgical nursing, Nursing Research Center, Kerman University of Medical Sciences, Kerman, Iran.

Fateme Keshavarz (F)

Department of Medical surgical nursing, Nursing Research Center, Kerman University of Medical Sciences, Kerman, Iran.

Roghayeh Mehdipour-Rabori (R)

Department of Medical surgical nursing, Nursing Research Center, Kerman University of Medical Sciences, Kerman, Iran.

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