Does Consumer Engagement in Health Technology Assessment Enhance or Undermine Equity?

Consumer engagement Equity Health technology assessment Medicines funding Patient rights

Journal

Journal of bioethical inquiry
ISSN: 1872-4353
Titre abrégé: J Bioeth Inq
Pays: Netherlands
ID NLM: 101250741

Informations de publication

Date de publication:
Mar 2020
Historique:
received: 19 05 2019
accepted: 30 01 2020
pubmed: 16 2 2020
medline: 15 4 2021
entrez: 16 2 2020
Statut: ppublish

Résumé

Consumer engagement in decisions about the funding of medicines is often framed as a good in and of itself and as an activity that should be universally encouraged. A common justification for calls for consumer engagement is that it enhances equity. In this paper we systematically critique this assumption. We show that consumer engagement may undermine equity as well as enhance it and show that a simple relationship cannot be assumed but must be justified and demonstrated. In concluding, we present a number of challenges that need to be overcome in order for consumer engagement to contribute to health technology assessment in a morally and politically sound manner.

Identifiants

pubmed: 32060818
doi: 10.1007/s11673-020-09962-1
pii: 10.1007/s11673-020-09962-1
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

87-94

Subventions

Organisme : National Health and Medical Research Council
ID : APP1080673

Auteurs

Narcyz Ghinea (N)

The University of Sydney, School of Public Health, Sydney Health Ethics, Level 1, Building 1, Medical Foundation Building, NSW, 2006, Australia. narcyz.ghinea@sydney.edu.au.
The University of Sydney Law School, Law School Building (F10) Eastern Avenue, Camperdown Campus, NSW, 2006, Australia. narcyz.ghinea@sydney.edu.au.

Wendy Lipworth (W)

The University of Sydney, School of Public Health, Sydney Health Ethics, Level 1, Building 1, Medical Foundation Building, NSW, 2006, Australia.

Ian Kerridge (I)

The University of Sydney, School of Public Health, Sydney Health Ethics, Level 1, Building 1, Medical Foundation Building, NSW, 2006, Australia.
Haematology Department, Royal North Shore Hospital, Reserve Road, St Leonards, NSW, 2065, Australia.

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Classifications MeSH