The 'Expiry Problem' of broad consent for biobank research - And why a meta consent model solves it.
genetic information
informed consent
research ethics
Journal
Journal of medical ethics
ISSN: 1473-4257
Titre abrégé: J Med Ethics
Pays: England
ID NLM: 7513619
Informations de publication
Date de publication:
09 2020
09 2020
Historique:
received:
31
01
2020
accepted:
10
02
2020
pubmed:
27
2
2020
medline:
18
9
2021
entrez:
27
2
2020
Statut:
ppublish
Résumé
In this response to Neil Manson's latest intervention in our debate about the best consent model for biobank research we show, contra Manson that the 'expiry problem' that affects broad consent models because of changes over time in methods, purposes, types of data used and governance structures is a real and significant problem. We further show that our preferred implementation of meta consent as a national consent platform solves this problem and is not subject to the cost and burden objections that Manson raises.
Identifiants
pubmed: 32098907
pii: medethics-2020-106117
doi: 10.1136/medethics-2020-106117
doi:
Types de publication
Journal Article
Comment
Langues
eng
Sous-ensembles de citation
IM
Pagination
629-631Commentaires et corrections
Type : CommentOn
Informations de copyright
© Author(s) (or their employer(s)) 2020. No commercial re-use. See rights and permissions. Published by BMJ.
Déclaration de conflit d'intérêts
Competing interests: None declared.