Sleep problems and solution seeking for children with cerebral palsy and their parents.


Journal

Journal of paediatrics and child health
ISSN: 1440-1754
Titre abrégé: J Paediatr Child Health
Pays: Australia
ID NLM: 9005421

Informations de publication

Date de publication:
Jul 2020
Historique:
received: 26 08 2019
revised: 30 12 2019
accepted: 05 02 2020
pubmed: 27 2 2020
medline: 15 5 2021
entrez: 27 2 2020
Statut: ppublish

Résumé

Sleep problems are common in school-aged children with cerebral palsy (CP). Despite the significant impact of sleep disturbance and deprivation, there is a paucity of research in the area. The aims of this study were to (i) investigate the frequency of sleep problems in children with CP and their parents and (ii) understand what happens when parents ask for help with sleep problems from their health-care professionals. This was a prospective cohort study using an online survey sent to parents/primary care givers of children with CP aged 6-12 years recruited through the Victorian Cerebral Palsy Register. The following sleep assessment tools: The Children's Sleep Habits Questionnaire, the Pittsburgh Sleep Quality Index and the Gross Motor Function Classification System Parent Rating Tool were administered along with custom-designed questions that were informed by a preceding qualitative scoping study. Complete data sets were received from 126 parents/care givers. Almost half (46%) of the parents reported their child had sleep problems. Of the 64 parents who reported seeking help for a child's sleep problem, only 21 indicated that their attempt was successful. If a child had poor sleep, the parent was more likely to have a sleep problem than parents who did not report poor child sleeping. Sleep problems are common in children with CP and their parents. Parents do not always seek help, and those who do may not find an effective solution. Future research should explore how sleep problems can be effectively prioritised for children with CP and their parents/care givers.

Identifiants

pubmed: 32100418
doi: 10.1111/jpc.14830
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

1108-1113

Subventions

Organisme : Australian Government Research Training Program Scholarship
Organisme : Royal Children's Hospital League of Former Trainees.
Organisme : The Royal Children's Hospital Auxiliary
Organisme : The Royal Children's Hospital Foundation
Organisme : The Windermere Foundation
ID : Mary Patten Doctoral Scholarship
Organisme : Vera Scantlebury Brown Child Welfare Scholarship

Informations de copyright

© 2020 Paediatrics and Child Health Division (The Royal Australasian College of Physicians).

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Auteurs

Sacha Petersen (S)

Medicine, Dentistry and Health Sciences, University of Melbourne, Melbourne, Victoria, Australia.
Neurodevelopment and Disability, Royal Children's Hospital, Melbourne, Victoria, Australia.
Neurodisability and Rehabilitation, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.
School of Health and Biomedical Sciences, RMIT University, Melbourne, Victoria, Australia.

Kate L Francis (KL)

Clinical Epidemiology and Biostatistics Unit, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.

Dinah S Reddihough (DS)

Medicine, Dentistry and Health Sciences, University of Melbourne, Melbourne, Victoria, Australia.
Neurodevelopment and Disability, Royal Children's Hospital, Melbourne, Victoria, Australia.
Neurodisability and Rehabilitation, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.

Sally Lima (S)

Medicine, Dentistry and Health Sciences, University of Melbourne, Melbourne, Victoria, Australia.
Nursing Research, Royal Children's Hospital, Melbourne, Victoria, Australia.
Clinical Learning and Development, Bendigo Health, Bendigo, Victoria, Australia.

Adrienne Harvey (A)

Medicine, Dentistry and Health Sciences, University of Melbourne, Melbourne, Victoria, Australia.
Neurodevelopment and Disability, Royal Children's Hospital, Melbourne, Victoria, Australia.
Neurodisability and Rehabilitation, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.
Medicine, Nursing and Health Sciences, Monash University, Melbourne, Victoria, Australia.

Fiona Newall (F)

Medicine, Dentistry and Health Sciences, University of Melbourne, Melbourne, Victoria, Australia.
Nursing Research, Royal Children's Hospital, Melbourne, Victoria, Australia.

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