Clinical features and survival of patients with indolent systemic mastocytosis defined by the updated WHO classification.

WHO classification cutaneous mastocytosis indolent systemic mastocytosis prognostication survival

Journal

Allergy
ISSN: 1398-9995
Titre abrégé: Allergy
Pays: Denmark
ID NLM: 7804028

Informations de publication

Date de publication:
08 2020
Historique:
received: 14 10 2019
revised: 03 12 2019
accepted: 16 12 2019
pubmed: 29 2 2020
medline: 15 5 2021
entrez: 29 2 2020
Statut: ppublish

Résumé

In indolent systemic mastocytosis (ISM), several risk factors of disease progression have been identified. Previous studies, performed with limited patient numbers, have also shown that the clinical course in ISM is stable and comparable to that of cutaneous mastocytosis (CM). The aim of this project was to compare the prognosis of patients with ISM with that of patients with CM. We employed a dataset of 1993 patients from the registry of the European Competence Network on Mastocytosis (ECNM) to compare outcomes of ISM and CM. We found that overall survival (OS) is worse in ISM compared to CM. Moreover, in patients with typical ISM, bone marrow mastocytosis (BMM), and smoldering SM (SSM), 4.1% of disease progressions have been observed (4.9% of progressions in typical ISM group, 1.7% in BMM, and 9.4% in SSM). Progressions to advanced SM were observed in 2.9% of these patients. In contrast, six patients with CM (1.7%) converted to ISM and no definitive progression to advanced SM was found. No significant differences in OS and event-free survival (EFS) were found when comparing ISM, BMM, and SSM. Higher risk of both progression and death was significantly associated with male gender, worse performance status, and organomegaly. Our data confirm the clinical impact of the WHO classification that separates ISM from CM and from other SM variants.

Sections du résumé

BACKGROUND
In indolent systemic mastocytosis (ISM), several risk factors of disease progression have been identified. Previous studies, performed with limited patient numbers, have also shown that the clinical course in ISM is stable and comparable to that of cutaneous mastocytosis (CM). The aim of this project was to compare the prognosis of patients with ISM with that of patients with CM.
METHODS
We employed a dataset of 1993 patients from the registry of the European Competence Network on Mastocytosis (ECNM) to compare outcomes of ISM and CM.
RESULTS
We found that overall survival (OS) is worse in ISM compared to CM. Moreover, in patients with typical ISM, bone marrow mastocytosis (BMM), and smoldering SM (SSM), 4.1% of disease progressions have been observed (4.9% of progressions in typical ISM group, 1.7% in BMM, and 9.4% in SSM). Progressions to advanced SM were observed in 2.9% of these patients. In contrast, six patients with CM (1.7%) converted to ISM and no definitive progression to advanced SM was found. No significant differences in OS and event-free survival (EFS) were found when comparing ISM, BMM, and SSM. Higher risk of both progression and death was significantly associated with male gender, worse performance status, and organomegaly.
CONCLUSION
Our data confirm the clinical impact of the WHO classification that separates ISM from CM and from other SM variants.

Identifiants

pubmed: 32108361
doi: 10.1111/all.14248
pmc: PMC7115854
mid: EMS87367
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1927-1938

Informations de copyright

© 2020 EAACI and John Wiley and Sons A/S. Published by John Wiley and Sons Ltd.

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Auteurs

Jakub Trizuljak (J)

Department of Hematology and Oncology, University Hospital, CEITEC Masaryk University, Brno, Czech Republic.

Wolfgang R Sperr (WR)

Department of Internal Medicine I, Division of Hematology and Hemostaseology, Ludwig Boltzmann Institute for Hematology and Oncology, Medical University of Vienna, Vienna, Austria.

Lucie Nekvindová (L)

Institute of Biostatistics and Analyses, Ltd., Spinoff Company of Masaryk University, Brno, Czech Republic.

Hanneke O Elberink (HO)

Department of Allergology, University Medical Center Groningen, University of Groningen, Groningen, the Netherlands.

Karoline V Gleixner (KV)

Department of Internal Medicine I, Division of Hematology and Hemostaseology, Ludwig Boltzmann Institute for Hematology and Oncology, Medical University of Vienna, Vienna, Austria.

Aleksandra Gorska (A)

Department of Allergology, Medical University of Gdańsk, Gdańsk, Poland.

Magdalena Lange (M)

Department of Dermatology, Venereology and Allergology, Medical University of Gdańsk, Gdańsk, Poland.

Karin Hartmann (K)

Division of Allergy, Department of Dermatology, University of Basel, Basel, Switzerland.
Department of Dermatology, University of Cologne, Cologne, Germany.

Anja Illerhaus (A)

Department of Dermatology, University of Cologne, Cologne, Germany.

Massimiliano Bonifacio (M)

Department of Medicine, Section of Hematology, University of Verona, Verona, Italy.

Cecelia Perkins (C)

Division of Hematology, Department of Medicine, Stanford University, School of Medicine/Stanford Cancer Institute, Stanford, CA, USA.

Chiara Elena (C)

Division of Hematology, Fondazione IRCCS Policlinico San Matteo & University of Pavia, Pavia, Italy.

Luca Malcovati (L)

Division of Hematology, Fondazione IRCCS Policlinico San Matteo & University of Pavia, Pavia, Italy.

Anna B Fortina (AB)

Pediatric Dermatology Unit, Department of Medicine, University of Padova, Padova, Italy.

Khalid Shoumariyeh (K)

Department of Hematology, Oncology and Stem Cell Transplantation, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg, Germany.

Mohamad Jawhar (M)

Hämatologie und Onkologie, III. Medizinische Klinik, Universitätsmedizin Mannheim, Universität Heidelberg, Mannheim, Germany.

Roberta Zanotti (R)

Department of Medicine, Section of Hematology, University of Verona, Verona, Italy.

Patrizia Bonadonna (P)

Allergy Unit, Verona University Hospital, Verona, Italy.

Francesca Caroppo (F)

Pediatric Dermatology Unit, Department of Medicine, University of Padova, Padova, Italy.

Alexander Zink (A)

Department of Dermatology and Allergy Biederstein, School of Medicine, Technical University of Munich, Munich, Germany.

Massimo Triggiani (M)

Division of Allergy and Clinical Immunology, University of Salerno, Salerno, Italy.

Roberta Parente (R)

Division of Allergy and Clinical Immunology, University of Salerno, Salerno, Italy.

Nikolas von Bubnoff (N)

Department of Hematology, Oncology and Stem Cell Transplantation, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg, Germany.

Akif S Yavuz (AS)

Division of Hematology, Istanbul Medical School, University of Istanbul, Istanbul, Turkey.

Hans Hägglund (H)

Department of Medical Sciences, Uppsala University, Section of Hematology, Uppsala University Hospital, Uppsala, Sweden.

Mattias Mattsson (M)

Department of Medical Sciences, Uppsala University, Section of Hematology, Uppsala University Hospital, Uppsala, Sweden.

Jens Panse (J)

Department of Oncology, Haematology, Haemostaseology and Stem Cell Transplantation, University Hospital RWTH Aachen, Aachen, Germany.

Nadja Jäkel (N)

Department of Internal Medicine IV, University Hospital Halle, Halle, Germany.

Alex Kilbertus (A)

Department of Dermatology and Venereology, Kepler University Hospital, Johannes Kepler University, Linz, Austria.

Olivier Hermine (O)

Departement of Hematology, Centre National de Référence des Mastocytoses, Imagine Institute, INSERM U1123, Université Paris Descartes, Sorbonne, Paris Cité, Hôpital Necker, Assistance Publique des Hôpitaux de Paris (APHP), Paris, France.

Michel Arock (M)

Laboratory of Hematology, Pitié-Salpêtrière Hospital, Paris, France.

David Fuchs (D)

Department of Internal Medicine 3, Hematology and Oncology, Kepler University Hospital, Johannes Kepler University, Linz, Austria.

Vito Sabato (V)

Faculty of Medicine and Health Sciences, Department of Immunology-Allergology-Rheumatology, University of Antwerp and Antwerp University Hospital, Antwerp, Belgium.

Knut Brockow (K)

Department of Dermatology and Allergy Biederstein, School of Medicine, Technical University of Munich, Munich, Germany.

Agnes Bretterklieber (A)

Department of Dermatology and Venereology, Medical University of Graz, Graz, Austria.

Marek Niedoszytko (M)

Department of Allergology, Medical University of Gdańsk, Gdańsk, Poland.

Björn van Anrooij (B)

Department of Allergology, University Medical Center Groningen, University of Groningen, Groningen, the Netherlands.

Andreas Reiter (A)

Hämatologie und Onkologie, III. Medizinische Klinik, Universitätsmedizin Mannheim, Universität Heidelberg, Mannheim, Germany.

Jason Gotlib (J)

Division of Hematology, Department of Medicine, Stanford University, School of Medicine/Stanford Cancer Institute, Stanford, CA, USA.

Hanneke C Kluin-Nelemans (HC)

Department of Hematology, University Medical Center Groningen, University of Groningen, Groningen, the Netherlands.

Jiri Mayer (J)

Department of Hematology and Oncology, University Hospital, CEITEC Masaryk University, Brno, Czech Republic.

Michael Doubek (M)

Department of Hematology and Oncology, University Hospital, CEITEC Masaryk University, Brno, Czech Republic.

Peter Valent (P)

Department of Internal Medicine I, Division of Hematology and Hemostaseology, Ludwig Boltzmann Institute for Hematology and Oncology, Medical University of Vienna, Vienna, Austria.

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