Palliative Care Implementation in Long-Term Care Facilities: European Association for Palliative Care White Paper.
Palliative care
implementation
interventions
long-term care facilities
nursing homes
quality improvement
Journal
Journal of the American Medical Directors Association
ISSN: 1538-9375
Titre abrégé: J Am Med Dir Assoc
Pays: United States
ID NLM: 100893243
Informations de publication
Date de publication:
08 2020
08 2020
Historique:
received:
02
08
2019
revised:
17
12
2019
accepted:
08
01
2020
pubmed:
3
3
2020
medline:
24
6
2021
entrez:
3
3
2020
Statut:
ppublish
Résumé
The number of older people dying in long-term care facilities (LTCFs) is increasing globally, but care quality may be variable. A framework was developed drawing on empirical research findings from the Palliative Care for Older People (PACE) study and a scoping review of literature on the implementation of palliative care interventions in LTCFs. The PACE study mapped palliative care in LTCFs in Europe, evaluated quality of end-of-life care and quality of dying in a cross-sectional study of deceased residents of LTCFs in 6 countries, and undertook a cluster-randomized control trial that evaluated the impact of the PACE Steps to Success intervention in 7 countries. Working with the European Association for Palliative Care, a white paper was written that outlined recommendations for the implementation of interventions to improve palliative and end-of-life care for all older adults with serious illness, regardless of diagnosis, living in LTCFs. The goal of the article is to present these key domains and recommendations. Transparent expert consultation. International experts in LTCFs. Eighteen (of 20 invited) international experts from 15 countries participated in a 1-day face-to-face Transparent Expert Consultation (TEC) workshop in Bern, Switzerland, and 21 (of 28 invited) completed a follow-up online survey. The TEC study used (1) a face-to-face workshop to discuss a scoping review and initial recommendations and (2) an online survey. Thirty recommendations about implementing palliative care for older people in LTCFs were refined during the TEC workshop and, of these, 20 were selected following the survey. These 20 recommendations cover domains at micro (within organizations), meso (across organizations), and macro (at national or regional) levels addressed in 3 phases: establishing conditions for action, embedding in everyday practice, and sustaining ongoing change. We developed a framework of 20 recommendations to guide implementation of improvements in palliative care in LTCFs.
Identifiants
pubmed: 32115370
pii: S1525-8610(20)30034-7
doi: 10.1016/j.jamda.2020.01.009
pii:
doi:
Types de publication
Journal Article
Multicenter Study
Randomized Controlled Trial
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
1051-1057Investigateurs
Lieve Van den Block
(L)
Borja Arrue
(B)
Ilona Baranska
(I)
Danni Collingridge Moore
(DC)
Luc Deliens
(L)
Yvonne Engels
(Y)
Harriet Finne-Soveri
(H)
Katherine Froggatt
(K)
Giovanni Gambassi
(G)
Elisabeth Honincx
(E)
Viola Kijowska
(V)
Maud Ten Koppel
(MT)
Marika Kylanen
(M)
Federica Mammarella
(F)
Rose Miranda
(R)
Tinne Smets
(T)
Bregje Onwuteaka-Philipsen
(B)
Mariska Oosterveld-Vlug
(M)
Roeline Pasman
(R)
Sheila Payne
(S)
Ruth Piers
(R)
Lara Pivodic
(L)
Jenny van der Steen
(J)
Katarzyna Szczerbińska
(K)
Nele Van Den Noortgate
(N)
Hein van Hout
(H)
Anne Wichmann
(A)
Myrra Vernooij-Dassen
(M)
Informations de copyright
Copyright © 2020 AMDA – The Society for Post-Acute and Long-Term Care Medicine. Published by Elsevier Inc. All rights reserved.