Conceptualizing caregiving activities for persons with dementia (PwD) through a patient work lens.
Dementia caregiving
Human factors engineering
Patient work
Journal
Applied ergonomics
ISSN: 1872-9126
Titre abrégé: Appl Ergon
Pays: England
ID NLM: 0261412
Informations de publication
Date de publication:
May 2020
May 2020
Historique:
received:
16
05
2019
revised:
03
01
2020
accepted:
29
01
2020
entrez:
17
3
2020
pubmed:
17
3
2020
medline:
22
12
2020
Statut:
ppublish
Résumé
Informal caregivers are an integral part of care delivery for persons with dementia (PwD). Informal caregivers take part in a wide range of care activities both individually and collaboratively with other caregivers. Caregiving often involves high demands in the face of limited resources, which can lead to stress, burden, and burnout. To support caregivers, we need to conceptualize caregiving activities they perform, and the networks and roles through which they perform work. We performed a directed content analysis on interview data from twenty caregivers and applied a human factors approach to characterize informal caregiving work. Our results revealed 1) nuances in caregiving roles, 2) differences in caregiving networks, and 3) 13 categories of caregiving activities characterized by time commitments; physical, cognitive and socio-behavioral demands; and varying network dependencies. These findings can be applied in future studies to evaluate the needs of caregiving networks and how to better support them.
Identifiants
pubmed: 32174358
pii: S0003-6870(20)30023-5
doi: 10.1016/j.apergo.2020.103070
pmc: PMC7098392
mid: NIHMS1568921
pii:
doi:
Types de publication
Evaluation Study
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
103070Subventions
Organisme : NIA NIH HHS
ID : L30 AG064737
Pays : United States
Organisme : NIMHD NIH HHS
ID : R01 MD010243
Pays : United States
Organisme : NIA NIH HHS
ID : RF1 AG057784
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR002373
Pays : United States
Organisme : NIA NIH HHS
ID : P30 AG062715
Pays : United States
Organisme : NCATS NIH HHS
ID : KL2 TR002374
Pays : United States
Organisme : NIA NIH HHS
ID : P50 AG033514
Pays : United States
Informations de copyright
Copyright © 2020 Elsevier Ltd. All rights reserved.
Déclaration de conflit d'intérêts
Declaration of competing interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.
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