Summary report of the 2019 Diversity and Inclusion Task Force of the National Society of Genetic Counselors.

cultural competence discrimination disparities diversity equity genetic counseling inclusion lived experience representation underrepresented populations workforce

Journal

Journal of genetic counseling
ISSN: 1573-3599
Titre abrégé: J Genet Couns
Pays: United States
ID NLM: 9206865

Informations de publication

Date de publication:
04 2020
Historique:
received: 07 01 2019
revised: 24 02 2020
accepted: 25 02 2020
pubmed: 1 4 2020
medline: 15 12 2020
entrez: 1 4 2020
Statut: ppublish

Résumé

The size and reach of the genetic counseling profession have expanded on a global scale since the 1970s. Despite this growth, the profession of genetic counseling has remained demographically homogenous. Promoting a culture of inclusivity that supports visible and invisible diversity and leveraging that culture not only expands perspectives represented in the field, but also helps foster equity in genetic services. This report summarizes the formation, implementation, and outcomes of the 2019 Diversity and Inclusion Task Force (TF) of the National Society of Genetic Counselors (NSGC), including the group's responses to their allotted charges from the NSGC Board of Directors. The recommendations generated by the TF aim to aid in the (1) establishment of infrastructure for ongoing diversity, inclusion, and equity (DEI) work by collaborating with a DEI organizational expert and forming a DEI advisory group within the NSGC, (2) development of specific short-term DEI initiatives, and (3) identification of seven areas of focus areas that must be addressed in order to create meaningful and measurable DEI improvements. The efficacy of these recommendations will depend on the consistency and creativity of implementation, shared responsibility, sufficient resources allocated to DEI initiatives, and measurable outcomes.

Identifiants

pubmed: 32227531
doi: 10.1002/jgc4.1270
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

192-201

Informations de copyright

© 2020 National Society of Genetic Counselors.

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Auteurs

Nadine Channaoui (N)

Cardiovascular Genetics Center, Brigham and Women's Hospital, Boston, Massachusetts.

Ambreen Khan (A)

Division of Cancer Population Sciences, Huntsman Cancer Institute, Salt Lake City, Utah.

Chana Wiesman (C)

Myriad Women's Health, South San Francisco, California.

Kara Bui (K)

Cancer Institute, Prima Health, Greenville, South Carolina.
Caris Life Sciences, Dallas, Texas.

Mitch Cunningham (M)

Division of Genetic, Genomic, & Metabolic Disorders, Children's Hospital of Michigan, Detroit, Michigan.

Kaitlyn Brown (K)

Division of Pediatric Genetic Medicine, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, New York.

Kami Wolfe Schneider (K)

Section of Hematology, Oncology, and Bone Marrow Transplantation, Department of Pediatrics, Children's Hospital Colorado, University of Colorado Anschutz Medical Campus, Aurora, Colorado.

Kristal Platt (K)

Boys Town National Research Hospital, Omaha, Nebraska.

Priscila Delgado Hodges (PD)

Integrated Genetics, LabCorp Specialty Testing Group, Houston, Texas.

Nicole Thompson (N)

Howard University Hospital/Howard University Cancer Center, Washington, District of Columbia.

Bruce Haas (B)

Le Bonheur Children's Hospital, Memphis, Tennessee.

Katie Strang (K)

The National Society of Genetic Counselors, Chicago, Illinois.

Meghan Carey (M)

The National Society of Genetic Counselors, Chicago, Illinois.

Erica Ramos (E)

Geisinger, Danville, Pennsylvania.

Aishwarya Arjunan (A)

Myriad Women's Health, South San Francisco, California.

Julia Platt (J)

Stanford Center for Inherited Cardiovascular Disease, Stanford Healthcare, Palo Alto, California.

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