Summary report of the 2019 Diversity and Inclusion Task Force of the National Society of Genetic Counselors.
cultural competence
discrimination
disparities
diversity
equity
genetic counseling
inclusion
lived experience
representation
underrepresented populations
workforce
Journal
Journal of genetic counseling
ISSN: 1573-3599
Titre abrégé: J Genet Couns
Pays: United States
ID NLM: 9206865
Informations de publication
Date de publication:
04 2020
04 2020
Historique:
received:
07
01
2019
revised:
24
02
2020
accepted:
25
02
2020
pubmed:
1
4
2020
medline:
15
12
2020
entrez:
1
4
2020
Statut:
ppublish
Résumé
The size and reach of the genetic counseling profession have expanded on a global scale since the 1970s. Despite this growth, the profession of genetic counseling has remained demographically homogenous. Promoting a culture of inclusivity that supports visible and invisible diversity and leveraging that culture not only expands perspectives represented in the field, but also helps foster equity in genetic services. This report summarizes the formation, implementation, and outcomes of the 2019 Diversity and Inclusion Task Force (TF) of the National Society of Genetic Counselors (NSGC), including the group's responses to their allotted charges from the NSGC Board of Directors. The recommendations generated by the TF aim to aid in the (1) establishment of infrastructure for ongoing diversity, inclusion, and equity (DEI) work by collaborating with a DEI organizational expert and forming a DEI advisory group within the NSGC, (2) development of specific short-term DEI initiatives, and (3) identification of seven areas of focus areas that must be addressed in order to create meaningful and measurable DEI improvements. The efficacy of these recommendations will depend on the consistency and creativity of implementation, shared responsibility, sufficient resources allocated to DEI initiatives, and measurable outcomes.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
192-201Informations de copyright
© 2020 National Society of Genetic Counselors.
Références
Abacan, M., Alsubaie, L., Barlow-Stewart, K., Caanen, B., Cordier, C., Courtney, E., … Wicklund, C. (2019). The global state of the genetic counseling profession. European Journal of Human Genetics, 27(2), 183-197. https://doi.org/10.1038/s41431-018-0252-x
American Board of Genetic Counseling (2020). Mission and history. Retrieved from https://www.abgc.net/about-abgc/mission-history/
Armstrong, K., Micco, E., Carney, A., Stopfer, J., & Putt, M. (2005). Racial differences in the use of BRCA1/2 testing among women with a family history of breast or ovarian cancer. Journal of the American Medical Association, 293(14), 1729-1736. https://doi.org/10.1001/jama.293.14.1729
Buckingham, M. (2015). StandOut 2.0: Assess your strengths, find your edge, win at work. Boston, MA: Harvard Business Review Press.
Carey, M. (2018). National Society of Genetic Counselors strategic plan 2019-2021 [PDF file]. Retrieved from https://www.nsgc.org/d/do/8993
Channaoui, N., Bui, K., & Mittman, I. (2020). Efforts of diversity and inclusion, cultural competency, and equity in the genetic counseling profession: A snapshot and reflection. Journal of Genetic Counseling, in press.
Cohen, J., Gabriel, B., & Terrell, C. (2002). The case for diversity in the health care workforce. Health Affairs, 21(5), 90-102. https://doi.org/10.1377/hlthaff.21.5.90
Dalton, E., Lyner-Cleophas, M., Ferguson, B., & McKenzie, J. (2019). Inclusion, universal design and universal design for learning in higher education: South Africa and the United States. African Journal of Disability, 8, 519. https://doi.org/10.4102/ajod.v8i0.519
Ferreira, C. R., Regier, D. S., Hadley, D. W., Hart, P. S., & Muenke, M. (2017). Medical genetics and genomic medicine in the United States of America. Part 1: History, demographics, legislation, and burden of disease. Molecular Genetics & Genomic Medicine, 5(4), 307-316. https://doi.org/10.1002/mgg3.318
Gernsbacher, M. (2017). Editorial perspective: The use of person-first language in scholarly writing may accentuate stigma. Journal of Child Psychology and Psychiatry, 58(7), 859-861. https://doi.org/10.1111/jcpp.12706
Hunt, V., Layton, D., & Prince, S. (2015). Diversity matters. McKinsey & Company. Retrieved from http://www.insurance.ca.gov/diversity/41-ISDGBD/GBDExternal/upload/McKinseyDivmatters-201501.pdf
Lightfoote, J., Deville, C., Ma, L., Winkfield, K., & Macura, K. (2016). Diversity, inclusion, and representation: It is time to act. Journal of the American College of Radiology, 13(12), 1421-1425. https://doi.org/10.1016/j.jacr.2016.08.008
Meghani, S., Brooks, J., Gipson-Jones, T., Waite, R., Whitfied-Harris, L., & Deatrick, J. (2009). Patient-provider race-concordance: Does it matter in improving minority patients' health outcomes? Ethnicity & Health, 14(1), 107-130. https://doi.org/10.1080/13557850802227031
Merrill, D., & Reid, R. (1981). Personal styles and effective performance. Boca Raton, FL: CRC Press.
Mittman, I., & Downs, K. (2008). Diversity in genetic counseling: Past, present and future. Journal of Genetic Counseling, 17, 301-313. https://doi.org/10.1007/s10897-008-9160-5
National Society of Genetic Counselors (2017, September 20). NSGC discussion forums. Retrieved from https://www.nsgc.org/p/cm/ld/fid=227
National Society of Genetic Counselors (2019). Professional status survey 2019: Executive summary [Data file]. Retrieved from https://www.nsgc.org/p/do/sd/sid=8405&fid=9096&req=direct
Nikolaidis, C., Duquette, D., Mendelsohn-Victor, K. E., Anderson, B., Copeland, G., Milliron, K. J., … Katapodi, Ṃ. C. (2019). Disparities in genetic services utilization in a random sample of young breast cancer survivors. Genetics in Medicine, 21(6), 1363-1370. https://doi.org/10.1038/s41436-018-0349-1
Noone, J. (2008). The diversity imperative: Strategies to address a diverse nursing workforce. Nursing Forum, 43(3), 133-143. https://doi.org/10.1111/j.1744-6198.2008.00105
Oguz, T. (2019). Is patient-provider racial concordance associated with hispanics' satisfaction with health care? International Journal of Environmental Research and Public Health, 16, 31. https://doi.org/10.3390/ijerph16010031
Ormond, K. (2004). Presidential address. NSGC 23rd Annual Education Conference. Presentation conducted at the 23rd Annual Education Conference, Washington, DC.
Rogel, K. (2009). Practicing what we preach: Genetic counselors, disability, and advocacy. DNA Exchange [Blog post]. Retrieved from https://thednaexchange.com/2009/12/14/practicing-what-we-preach-genetic-counselors-disability-and-advocacy/
Saha, S., Guiton, G., Wimmers, P., & Wilkerson, L. (2008). Student body racial and ethnic composition and diversity-related outcomes in US medical schools. JAMA, 300(10), 1135-1145. https://doi.org/10.1001/jama.300.10.1135
Schoonveld, K., Veach, P., & LeRoy, B. (2007). What is it like to be in the minority? Ethnic and gender diversity in the genetic counseling profession. Journal of Genetic Counseling, 16(1), 53-69. https://doi.org/10.1007/s10897-006-9045-4
Story, M. F. (1998). Maximizing usability: The principles of universal design. Assistive Technology, 10(1), 4-12. https://doi.org/10.1080/10400435.1998.10131955
Swartz, T., Palermo, A., Masur, S., & Aberg, J. (2019). The science and value of diversity: Closing the gaps in our understanding of inclusion and diversity. The Journal of Infectious Diseases, 220(2), S33-S41. https://doi.org/10.1093/infdis/jiz174
West, E., Perner, D., Laz, L., Murdick, N., & Gartin, B. (2015). People-first and competence-oriented language. International Journal of Whole Schooling, 11(2), 16-28.
Williams, A., & Moore, S. (2011). Universal design of research: Inclusion of persons with disabilities in mainstream biomedical studies. Science Translational Medicine, 3(82), 82cm12-82cm12. https://doi.org/10.1126/scitranslmed.3002133
Xierali, I., Castillo-Page, L., Conrad, S., & Nivet, M. (2014). Analyzing physician workforce racial and ethnic composition associations: Geographic distributions (part II). Association of American Medical Colleges, 14(9), 1-2.
Xierali, I., Nivet, M., & Wilson, M. (2016). Current and future status of diversity in ophthalmologist workforce. JAMA Ophthalmology, 134(9), 1016-1023. https://doi.org/10.1001/jamaophthalmol.2016.2257