Informing MS patients on treatment options: a consensus on the process of consent taking.

Consensus Humans Informed Consent Italy Multiple Sclerosis / therapy Physician-Patient Relations
Disease modifying treatment Informed consent Multiple sclerosis

Journal

Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology
ISSN: 1590-3478
Titre abrégé: Neurol Sci
Pays: Italy
ID NLM: 100959175

Informations de publication

Date de publication:
Aug 2020
Historique:
received: 31 07 2019
accepted: 13 03 2020
pubmed: 3 4 2020
medline: 15 5 2021
entrez: 3 4 2020
Statut: ppublish

Résumé

In the last years, change in multiple sclerosis (MS) therapeutic scenario has highlighted the need for an improved doctor-patient communication in advance of treatment initiation in order to allow patient's empowerment in the decision-making process. AIMS: The aims of our project were to review the strategies used by Italian MS specialists to inform patients about treatment options and to design a multicentre shared document that homogenizes the information about disease-modifying treatment (DMTs) and the procedure of taking informed consent in clinical practice. RESULTS: The new resource, obtained by consensus among 31 neurologists from 27 MS Centres in Italy with the supervision of a medico-legal advisor, received the aegis of Italian Neurological Society (SIN) and constitutes a step toward a standardized decision process around DMTs in MS.

Identifiants

DOI: 10.1007/s10072-020-04339-z PMID: 32240416
pubmed: 32240416
doi: 10.1007/s10072-020-04339-z
pii: 10.1007/s10072-020-04339-z
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

2249-2253

Auteurs

C Tortorella (C)

Department of Neurosciences, San Camillo Forlanini Hospital, Rome, Italy. carla.tortorella@gmail.com.

C Solaro (C)

Department of Rehabilitation, Mons L Novarese Hospital, Moncrivello, Italy.

P Annovazzi (P)

Multiple Sclerosis Center, ASST Valle Olona, PO di Gallarate, (VA), Italy.

L Boffa (L)

Department of Neurosciences, MS Center, Tor Vergata University, Rome, Italy.

M C Buscarinu (MC)

Department of Neurosciences, Mental Health and Sensory Organs Sapienza University Rome, Rome, Italy.

F Buttari (F)

I.R.C.C.S. Istituto Neurologico Mediterraneo NEUROMED, Pozzilli, Italy.

M Calabrese (M)

Neurology B, Department of Neurosciences Biomedicine and Movements, University of Verona, Verona, Italy.

P Cavalla (P)

MS Center (P.C.), City of Health & Science University Hospital, Turin, Italy.

E Cocco (E)

Department Medical Science and Public Health, University of Cagliari, Cagliari, Italy.

C Cordioli (C)

Multiple Sclerosis Center, ospedale di Montichiari, Spedali Civili di Brescia, Montichiari, Italy.

G De Luca (G)

Neurology Clinic, Multiple Sclerosis Center SS. Annunziata Hospital, Chieti, Italy.

M Di Filippo (M)

Clinica Neurologica, Dipartimento di Medicina, Università di Perugia, Perugia, Italy.

R Fantozzi (R)

I.R.C.C.S. Istituto Neurologico Mediterraneo NEUROMED, Pozzilli, Italy.

D Ferraro (D)

Department of Biomedical, Metabolic and Neurosciences, University of Modena and Reggio Emilia, Modena, Italy.

A Gajofatto (A)

Department of Neuroscience, Biomedicine and Movement Sciences, University of Verona, Verona, Italy.

A Gallo (A)

Department of Medical, Surgical, Neurological, Metabolic and Aging Science, University of Campania, Naples, Italy.

R Lanzillo (R)

Multiple Sclerosis Clinical Care and Research Centre, Department of Neuroscience, Reproductive Science and Odontostomatology, Federico II University, Naples, Italy.

A Laroni (A)

Department of Neuroscience, Ophthalmology, Genetics, Maternal and Child Health and Center of Excellence for Biomedical Research, University of Genova, Genoa, Italy.
IRCCS Ospedale Policlinico San Martino, Genoa, Italy.

S Lo Fermo (SL)

Clinica Neurologica A.O.U. Policlinico-Vittorio Emanuele Catania, Catania, Italy.

S Malucchi (S)

Neurologia 2-CRESM, AOU San Luigi Gonzaga, Orbassano, Italy.

G T Maniscalco (GT)

Department of Neurology and Stroke Unit, "A. Cardarelli Hospital", Naples, Italy.

M Moccia (M)

Multiple Sclerosis Clinical Care and Research Centre, Department of Neuroscience, Reproductive Science and Odontostomatology, Federico II University, Naples, Italy.
Queen Square MS Centre, Department of Neuroinflammation, UCL Queen Square Institute of Neurology, Faculty of Brain Sciences, University College London, London, UK.

V Nociti (V)

Istituto di Neurologia, Fondazione Policlinico Universitario 'A Gemelli' IRCCS, Rome, Italy.

D Paolicelli (D)

Department of Basic Medical Sciences, Neurosciences, and Sense Organs, University of Bari, Bari, Italy.

I Pesci (I)

Ospedale di Vaio, Centro SM, Fidenza, Parma, Italy.

L Prosperini (L)

Department of Neurosciences, San Camillo Forlanini Hospital, Rome, Italy.

P Ragonese (P)

Department of Biomedicine, Neurosciences and Advanced Diagnostic, Dipartimento di Biomedicina, Neuroscienze e Diagnostica Avanzata, Palermo, Italy.

V Tomassini (V)

Department of Neurosciences, Imaging and Clinical Sciences, School of Medicine, Institute for Advanced Biomedical Technologies (ITAB), University of Chieti-Pescara "G. d'Annunzio, Chieti, Italy.
Division of Psychological Medicine and Clinical Neurosciences, Cardiff University School of Medicine, University Hospital of Wales, Cardiff, UK.

V L A Torri Clerici (VLAT)

Neuro-immunology and Neuromuscolar Diseases Unit, IRCCS Foundation Carlo Besta Neurological Institute, Milan, Italy.

M Rodegher (M)

Department of Neurology, San Raffaele Scientific Institute, Vita-Salute San Raffaele University, Milan, Italy.

M Gherardi (M)

SC Medicina Legale AUSL Valle D'Aosta, Aosta, Italy.

C Gasperini (C)

Department of Neurosciences, San Camillo Forlanini Hospital, Rome, Italy.

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Classifications MeSH

questionsmedicales.fr › Phénomènes psychologiques › Processus mentaux › Pensée (activité mentale) › Prise de décision › Consensus › Informing MS patients on treatment options: a...
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Informing MS patients on treatment options: a...
questionsmedicales.fr › Organisations et économie des soins de santé › Contrôle social formel › Jurisprudence › Consentement libre et éclairé › Informing MS patients on treatment options: a...
questionsmedicales.fr › Régions géographiques › Europe › Italie › Informing MS patients on treatment options: a...
questionsmedicales.fr › Maladies du système immunitaire › Maladies auto-immunes › Maladies auto-immunes du système nerveux › Maladies démyélinisantes auto-immunes du SNC › Sclérose en plaques › Informing MS patients on treatment options: a...
questionsmedicales.fr › Qualité, accès, évaluation des soins de santé › Prestations des soins de santé › Relations entre professionnels de santé et patients › Relations médecin-patient › Informing MS patients on treatment options: a...