"I'm just a long history of people rejecting referrals" experiences of young people who fell through the gap between child and adult mental health services.


Journal

European child & adolescent psychiatry
ISSN: 1435-165X
Titre abrégé: Eur Child Adolesc Psychiatry
Pays: Germany
ID NLM: 9212296

Informations de publication

Date de publication:
Mar 2021
Historique:
received: 30 01 2020
accepted: 31 03 2020
pubmed: 11 4 2020
medline: 16 4 2021
entrez: 11 4 2020
Statut: ppublish

Résumé

The paediatric-adult split in mental health care necessitates young people to make a transition between services when they reach the upper end of child and adolescent mental health services (CAMHS). However, we know that this transition is often poor, and not all young people who require ongoing support are able to continue care in adult mental health services (AMHS). These young people are said to have fallen through the gap between services. This research aimed to explore the reasons why young people fall through the gap between CAMHS and AMHS, and what effect this has had on them and their families. Narrative interviews were conducted with 15 young people and 15 parents, representing 19 unique transition stories. Themes were identified collaboratively using thematic analysis. Reasons for falling through the gap were grouped into systemic problems and problems with the quality of care received. Effects of falling through the gap were grouped into separate themes for young people (feeling abandoned; struggling to manage without continued care; problems with medication) and parents (emotional impact of care ending; parents taking an active role in the young person's care). To our knowledge, this is the first qualitative study that has focused only on the experiences of young people who have fallen through the gap between services. This research adds novel findings to existing literature regarding barriers to transition and the effects of discontinuity of care.

Identifiants

pubmed: 32274589
doi: 10.1007/s00787-020-01526-3
pii: 10.1007/s00787-020-01526-3
pmc: PMC8019413
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

401-413

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Auteurs

Rebecca Appleton (R)

Warwick Medical School, University of Warwick, Coventry, CV4 7AL, UK. b.appleton@warwick.ac.uk.

Farah Elahi (F)

Warwick Medical School, University of Warwick, Coventry, CV4 7AL, UK.

Helena Tuomainen (H)

Warwick Medical School, University of Warwick, Coventry, CV4 7AL, UK.

Alastair Canaway (A)

Warwick Medical School, University of Warwick, Coventry, CV4 7AL, UK.

Swaran P Singh (SP)

Warwick Medical School, University of Warwick, Coventry, CV4 7AL, UK.

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Classifications MeSH