Healthcare use by children and young adults with cerebral palsy.
Adolescent
Adult
Cerebral Palsy
/ epidemiology
Child
Child, Preschool
Cohort Studies
Facilities and Services Utilization
/ statistics & numerical data
Female
Humans
Infant
Information Storage and Retrieval
Male
Northern Ireland
/ epidemiology
Office Visits
/ statistics & numerical data
Patient Admission
/ statistics & numerical data
Registries
Severity of Illness Index
Young Adult
Journal
Developmental medicine and child neurology
ISSN: 1469-8749
Titre abrégé: Dev Med Child Neurol
Pays: England
ID NLM: 0006761
Informations de publication
Date de publication:
01 2021
01 2021
Historique:
accepted:
11
03
2020
pubmed:
22
4
2020
medline:
15
4
2021
entrez:
22
4
2020
Statut:
ppublish
Résumé
To link routinely collected health data to a cerebral palsy (CP) register in order to enable analysis of healthcare use by severity of CP. The Northern Ireland Cerebral Palsy Register was linked to hospital data. Data for those on the CP register born between 1st January 1981 and 31st December 2009 and alive in 2004 were extracted, forming a CP cohort (n=1684; 57% males, 43% females; aged 0-24y). Frequencies of healthcare events, and the reasons for them, were reported according to CP severity and compared with those without CP who had had at least one hospital attendance in Northern Ireland within the study period. Cases of CP represented 0.3% of the Northern Ireland population aged 0 to 24 years but accounted for 1.6% of hospital admissions and 1.6% of outpatient appointments. They had higher rates of elective admissions and multi-day hospital stays than the general population. Respiratory conditions were the most common reason for emergency admissions. Those with most severe CP were 10 times more likely to be admitted, and four times more likely to attend outpatients, than those with mild CP. Linkage between a register and routinely collected healthcare data provided a confirmed cohort of cases of CP that was sufficiently detailed to analyse healthcare use by disease severity.
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
75-80Subventions
Organisme : Queen's University
Organisme : NICPR Data Custodian
Commentaires et corrections
Type : CommentIn
Informations de copyright
© 2020 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press.
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