The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic.
BMD
COVID-19
DMD
consensus
muscular dystrophy
recommendations
Journal
Muscle & nerve
ISSN: 1097-4598
Titre abrégé: Muscle Nerve
Pays: United States
ID NLM: 7803146
Informations de publication
Date de publication:
07 2020
07 2020
Historique:
received:
16
04
2020
revised:
21
04
2020
accepted:
22
04
2020
pubmed:
25
4
2020
medline:
1
7
2020
entrez:
25
4
2020
Statut:
ppublish
Résumé
The coronavirus disease 2019 (COVID-19) pandemic has resulted in the reorganization of health-care settings affecting clinical care delivery to patients with Duchenne and Becker muscular dystrophy (DBMD) as well as other inherited muscular dystrophies. The magnitude of the impact of this public health emergency on the care of patients with DBMD is unclear as they are suspected of having an increased risk for severe manifestations of COVID-19. In this article, the authors discuss their consensus recommendations pertaining to care of these patients during the pandemic. We address issues surrounding corticosteroid and exon-skipping treatments, cardiac medications, hydroxychloroquine use, emergency/respiratory care, rehabilitation management, and the conduct of clinical trials. We highlight the importance of collaborative treatment decisions between the patient, family, and health-care provider, considering any geographic or institution-specific policies and precautions for COVID-19. We advocate for continuing multidisciplinary care for these patients using telehealth.
Identifiants
pubmed: 32329920
doi: 10.1002/mus.26902
pmc: PMC7264600
doi:
Types de publication
Journal Article
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
41-45Informations de copyright
© 2020 Wiley Periodicals, Inc.
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