"I have been refused to be treated by three dentists": Barriers to patient care.
Stuart-Prower factor deficiency
affordability
barriers to care
bleeding disorder
factor X deficiency
special care dentistry
Journal
Special care in dentistry : official publication of the American Association of Hospital Dentists, the Academy of Dentistry for the Handicapped, and the American Society for Geriatric Dentistry
ISSN: 1754-4505
Titre abrégé: Spec Care Dentist
Pays: United States
ID NLM: 8103755
Informations de publication
Date de publication:
May 2020
May 2020
Historique:
received:
21
01
2020
revised:
09
04
2020
accepted:
12
04
2020
pubmed:
2
5
2020
medline:
2
6
2020
entrez:
2
5
2020
Statut:
ppublish
Résumé
Factor X deficiency (known as; Stuart-Prower factor deficiency or F10 deficiency) is a rare inherited bleeding disorder. It affects one per 1 million individuals worldwide. Patients with inherited bleeding disorder reported difficulty in accessing primary dental care either due to their medical diseases or their related barriers. This article aims to identify barriers to oral health as perceived by the patient with factor X deficiency who had been refused treatment by three dentists. A further aim is to provide dentists with the knowledge required to manage patients diagnosed with factor X deficiency. A 30-year-old male with the inherited, severe factor X deficiency (<1%) was asked to complete a survey which includes 22 semistructured, validated questions to assess his perceived barriers to dental services. Dental examination revealed that the patient required having nonsurgical periodontal therapy under local anesthesia. The treatment plan was discussed with the patient and his hematologist. The patient's hematologist advised performing dental treatment shortly (ie, 1-2 h) after hematological cover with a prothrombin complex concentrate (1000 U; Octoplex The patient reported several barriers to dental services such as high anxiety levels regarding oral bleeding, difficulty in finding a suitable dental clinic, high cost of dental treatment, and the need for hematological cover prior to dental treatment. The proper communication between dentist and hematologist was a vital step to render safe and effective dental care and to reduce the patient's anxiety toward the dentist.
Sections du résumé
BACKGROUND
BACKGROUND
Factor X deficiency (known as; Stuart-Prower factor deficiency or F10 deficiency) is a rare inherited bleeding disorder. It affects one per 1 million individuals worldwide. Patients with inherited bleeding disorder reported difficulty in accessing primary dental care either due to their medical diseases or their related barriers.
AIM
OBJECTIVE
This article aims to identify barriers to oral health as perceived by the patient with factor X deficiency who had been refused treatment by three dentists. A further aim is to provide dentists with the knowledge required to manage patients diagnosed with factor X deficiency.
METHODS AND CASE REPORT
METHODS
A 30-year-old male with the inherited, severe factor X deficiency (<1%) was asked to complete a survey which includes 22 semistructured, validated questions to assess his perceived barriers to dental services. Dental examination revealed that the patient required having nonsurgical periodontal therapy under local anesthesia. The treatment plan was discussed with the patient and his hematologist. The patient's hematologist advised performing dental treatment shortly (ie, 1-2 h) after hematological cover with a prothrombin complex concentrate (1000 U; Octoplex
FINDINGS
RESULTS
The patient reported several barriers to dental services such as high anxiety levels regarding oral bleeding, difficulty in finding a suitable dental clinic, high cost of dental treatment, and the need for hematological cover prior to dental treatment.
CONCLUSIONS
CONCLUSIONS
The proper communication between dentist and hematologist was a vital step to render safe and effective dental care and to reduce the patient's anxiety toward the dentist.
Types de publication
Case Reports
Langues
eng
Pagination
308-314Informations de copyright
© 2020 Special Care Dentistry Association and Wiley Periodicals, Inc.
Références
National Library of Medicine. Genetics home reference. Factor X deficiency. https://ghr.nlm.nih.gov/condition/factor-x-deficiency#statistics.Accessed February 2, 2020.
Elmahrouk AF, Ismail MF, Bugis A, et al. Staged surgical palliation for HLHS in a girl with severe factor X deficiency. Thorac Cardiovasc Surg Rep. 2018;7(1):e12-e5.
Choby JE, Monteith AJ, Himmel LE, et al. A phenome-wide association study uncovers a pathological role of coagulation factor X during Acinetobacter baumannii infection. Infect Immun. 2019;87(5):e00031-19.
Arita K, Niimi H, Yamagishi N, Ueno T, Kitajima I, Sugiyama T. Factor X heterozygous mutation in a patient with potential risk of bleeding: a case report. Medicine. 2018;97(23):e10950.
Othman T, Abdelkarim A, Huynh K, Uche A, Lee J. Inherited moderate factor X deficiency presenting as cardiac tamponade. Case Rep In Hematol. 2019;2019:9657516.
Mitchell M, Gattens M, Kavakli K, et al. Genotype analysis and identification of novel mutations in a multicentre cohort of patients with hereditary factor X deficiency. Blood Coagul Fibrinolysis. 2019;30(1):34-41.
Oner AF, Celkan T, Timur C, Norton M, Kavakli K. Use of a high-purity factor X concentrate in Turkish subjects with hereditary factor X deficiency: post hoc cohort subanalysis of a phase 3 study. Turk J Haematol. 2018;35(2):129-133.
Guo YM, Takahashi N, Miyabe K, et al. Immunoglobulin light chain amyloidosis with severe liver dysfunction accompanied by factor X deficiency. Int Med (Tokyo, Japan). 2019;58(20):3039-3043.
Millar DS, Elliston L, Deex P, et al. Molecular analysis of the genotype-phenotype relationship in factor X deficiency. Hum Genet. 2000;106(2):249-257.
Kalsi H, Nanayakkara L, Pasi K, Bowles L, Hart D. Access to primary dental care for patients with inherited bleeding disorders. Haemophilia. 2012;18(4):510-515.
Joanna Briggs Institute. Critical appraisal tools.https://joannabriggs.org/ebp/critical_appraisal_tools. Accessed on February 02, 2020.
Hitchings EJ, The oral health of individuals with haemophilia: a mixed methods investigation New-Zealand, University of Otago; 2012.https://ourarchive.otago.ac.nz/handle/10523/2536. Accessed on February 17, 2020.
University of Otago Library. Oral health of individuals with haemophilia-adult questionnaire 2012. https://ourarchive.otago.ac.nz/bitstream/handle/10523/2536/Appendix7.pdf?sequence=2&isAllowed=y. Accessed on February 7, 2020.
Penchansky R, Thomas JW. The concept of access: definition and relationship to consumer satisfaction. Med Care. 1981;19:127-140.
Abed H, Ainousa A. Dental management of patients with inherited bleeding disorders: a multidisciplinary approach. Gen Dentistr. 2017;65(6):56-60.
Rahman A, Nizarali N, Dougall A, Daly B. UK hemophilia treaters’ knowledge of risk assessment for prolonged bleeding associated with dental procedures. Spec Care Dentistr. 2019;39(2):173-179.
Kanaa MD, Whitworth JM, Corbett IP, Meechan JG. Articaine buccal infiltration enhances the effectiveness of lidocaine inferior alveolar nerve block. Int Endod J. 2009;42(3):238-246.
Dougall A, Apperley O, Smith G, Madden L, Parkinson L, Daly B. Safety of buccal infiltration local anaesthesia for dental procedures. Haemophilia. 2019;25(2):270-275.
Dougall A, Fiske J. Access to special care dentistry, part 5. Safety. Brit Dent J. 2008;205(4):177-190.
Dougall A, Fiske J. Access to special care dentistry, part 2. Communication. Brit Dent J. 2008;205(1):11-21.
Dougall A, Fiske J. Access to special care dentistry, part 1. Access. Brit Dent J. 2008;204(11):605-616.