Informal support for people with Alzheimer's disease and related dementias in rural Uganda: a qualitative study.
Dementia and rural communities
Informal support
Journal
International journal of mental health systems
ISSN: 1752-4458
Titre abrégé: Int J Ment Health Syst
Pays: England
ID NLM: 101294224
Informations de publication
Date de publication:
2020
2020
Historique:
received:
06
02
2020
accepted:
25
04
2020
entrez:
16
5
2020
pubmed:
16
5
2020
medline:
16
5
2020
Statut:
epublish
Résumé
The generation of people getting older has become a public health concern worldwide. People aged 65 and above are the most at risk for Alzheimer's disease which is associated with physical and behavioral changes. This nurtures informal support needs for people living with dementia where their families together with other community members are the core providers of day to day care for them in the rural setting. Despite global concern around this issue, information is still lacking on informal support delivered to these people with dementia. Our study aimed at establishing the nature of informal support provided for people with dementia (PWDs) and its perceived usefulness in rural communities in South Western Uganda. This was a qualitative study that adopted a descriptive design and conducted among 22 caregivers and 8 opinion leaders in rural communities of Kabale, Mbarara and Ibanda districts in South Western Uganda. The study included dementia caregivers who had been in that role for a period of at least 6 months and opinion leaders in the community. We excluded trained health workers. The study highlights important forms of informal support offered to PWDs such as support in activities of daily living, enabling access to medical attention, recovering misplaced items, provision of herbal remedy, informal counseling, and sourcing carers from other families to offer presence and support in the hope to impact positively on behavioral outbursts and the frustration of living with dementia. The study revealed various forms of informal support that are available for PWDs in South Western Uganda and stressed the role of caregivers and the perceived usefulness of the care provided.
Sections du résumé
BACKGROUND
BACKGROUND
The generation of people getting older has become a public health concern worldwide. People aged 65 and above are the most at risk for Alzheimer's disease which is associated with physical and behavioral changes. This nurtures informal support needs for people living with dementia where their families together with other community members are the core providers of day to day care for them in the rural setting. Despite global concern around this issue, information is still lacking on informal support delivered to these people with dementia.
OBJECTIVE
OBJECTIVE
Our study aimed at establishing the nature of informal support provided for people with dementia (PWDs) and its perceived usefulness in rural communities in South Western Uganda.
METHODS
METHODS
This was a qualitative study that adopted a descriptive design and conducted among 22 caregivers and 8 opinion leaders in rural communities of Kabale, Mbarara and Ibanda districts in South Western Uganda. The study included dementia caregivers who had been in that role for a period of at least 6 months and opinion leaders in the community. We excluded trained health workers.
RESULTS
RESULTS
The study highlights important forms of informal support offered to PWDs such as support in activities of daily living, enabling access to medical attention, recovering misplaced items, provision of herbal remedy, informal counseling, and sourcing carers from other families to offer presence and support in the hope to impact positively on behavioral outbursts and the frustration of living with dementia.
CONCLUSION
CONCLUSIONS
The study revealed various forms of informal support that are available for PWDs in South Western Uganda and stressed the role of caregivers and the perceived usefulness of the care provided.
Identifiants
pubmed: 32411294
doi: 10.1186/s13033-020-00364-9
pii: 364
pmc: PMC7206770
doi:
Types de publication
Journal Article
Langues
eng
Pagination
33Subventions
Organisme : FIC NIH HHS
ID : D43 TW010128
Pays : United States
Informations de copyright
© The Author(s) 2020.
Déclaration de conflit d'intérêts
Competing interestsThe authors declare that they have no competing interests.
Références
Ageing Soc. 2014 Feb;34(2):185-208
pubmed: 24453384
Lancet. 2016 May 21;387(10033):2145-2154
pubmed: 26520231
Int J Alzheimers Dis. 2014;2014:195750
pubmed: 25177512
BMC Geriatr. 2020 Feb 10;20(1):48
pubmed: 32041525
J Health Care Poor Underserved. 2015 Nov;26(4):1368-76
pubmed: 26548684
Open Nurs J. 2013;7:6-13
pubmed: 23346266
Age Ageing. 2017 Jan 4;46(1):130-137
pubmed: 28181644
Int J Geriatr Psychiatry. 2000 Dec;15(12):1152-3
pubmed: 11180474