Selecting Evidence-Based Content for Inclusion in Self-Management Apps for Pressure Injuries in Individuals With Spinal Cord Injury: Participatory Design Study.
community engagement
consensus meeting
mHealth
paraplegia
pressure ulcers
recommendations
tetraplegia
Journal
JMIR mHealth and uHealth
ISSN: 2291-5222
Titre abrégé: JMIR Mhealth Uhealth
Pays: Canada
ID NLM: 101624439
Informations de publication
Date de publication:
20 05 2020
20 05 2020
Historique:
received:
08
08
2019
accepted:
25
03
2020
revised:
17
03
2020
entrez:
21
5
2020
pubmed:
21
5
2020
medline:
10
3
2021
Statut:
epublish
Résumé
Technological solutions, particularly mobile health (mHealth), have been shown to be potentially viable approaches for sustaining individuals' self-management of chronic health conditions. Theory-based interventions are more successful, as evidence-based information is an essential prerequisite for appropriate self-management. However, several reviews have shown that many existing mobile apps fail to be either theoretically grounded or based on evidence. Although some authors have attempted to address these two issues by focusing on the design and development processes of apps, concrete efforts to systematically select evidence-based content are scant. The objective of this study was to present a procedure for the participatory identification of evidence-based content to ground the development of a self-management app. To illustrate the procedure, we focused on the prevention and management of pressure injuries (PIs) in individuals with spinal cord injury (SCI). The procedure involves the following three steps: (1) identification of existing evidence through review and synthesis of existing recommendations on the prevention and self-management of PIs in SCI; (2) a consensus meeting with experts from the field of SCI and individuals with SCI to select the recommendations that are relevant and applicable to community-dwelling individuals in their daily lives; and (3) consolidation of the results of the study. In this case study, at the end of the three-step procedure, the content for an mHealth intervention was selected in the form of 98 recommendations. This study describes a procedure for the participatory identification and selection of disease-specific evidence and professional best practices to inform self-management interventions. This procedure might be especially useful in cases of complex chronic health conditions, as every recommendation in these cases needs to be evaluated and considered in light of all other self-management requirements. Hence, the agreement of experts and affected individuals is essential to ensure the selection of evidence-based content that is considered to be relevant and applicable.
Sections du résumé
BACKGROUND
Technological solutions, particularly mobile health (mHealth), have been shown to be potentially viable approaches for sustaining individuals' self-management of chronic health conditions. Theory-based interventions are more successful, as evidence-based information is an essential prerequisite for appropriate self-management. However, several reviews have shown that many existing mobile apps fail to be either theoretically grounded or based on evidence. Although some authors have attempted to address these two issues by focusing on the design and development processes of apps, concrete efforts to systematically select evidence-based content are scant.
OBJECTIVE
The objective of this study was to present a procedure for the participatory identification of evidence-based content to ground the development of a self-management app.
METHODS
To illustrate the procedure, we focused on the prevention and management of pressure injuries (PIs) in individuals with spinal cord injury (SCI). The procedure involves the following three steps: (1) identification of existing evidence through review and synthesis of existing recommendations on the prevention and self-management of PIs in SCI; (2) a consensus meeting with experts from the field of SCI and individuals with SCI to select the recommendations that are relevant and applicable to community-dwelling individuals in their daily lives; and (3) consolidation of the results of the study.
RESULTS
In this case study, at the end of the three-step procedure, the content for an mHealth intervention was selected in the form of 98 recommendations.
CONCLUSIONS
This study describes a procedure for the participatory identification and selection of disease-specific evidence and professional best practices to inform self-management interventions. This procedure might be especially useful in cases of complex chronic health conditions, as every recommendation in these cases needs to be evaluated and considered in light of all other self-management requirements. Hence, the agreement of experts and affected individuals is essential to ensure the selection of evidence-based content that is considered to be relevant and applicable.
Identifiants
pubmed: 32432559
pii: v8i5e15818
doi: 10.2196/15818
pmc: PMC7270844
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
e15818Informations de copyright
©Maddalena Fiordelli, Claudia Zanini, Julia Amann, Anke Scheel-Sailer, Mirjam Brach, Gerold Stucki, Sara Rubinelli. Originally published in JMIR mHealth and uHealth (http://mhealth.jmir.org), 20.05.2020.
Références
Curr Neurol Neurosci Rep. 2017 Feb;17(2):8
pubmed: 28188542
JMIR Mhealth Uhealth. 2018 Dec 20;6(12):e11107
pubmed: 30573443
Adv Skin Wound Care. 2008 Jul;21(7):322-9
pubmed: 18600074
JMIR Res Protoc. 2016 Jun 07;5(2):e82
pubmed: 27269382
J Diabetes Sci Technol. 2013 Jan 01;7(1):247-62
pubmed: 23439183
JMIR Res Protoc. 2017 May 17;6(5):e75
pubmed: 28526674
JMIR Res Protoc. 2016 Feb 16;5(1):e25
pubmed: 26883135
Public Health. 2019 Oct;175:8-18
pubmed: 31374453
J Spinal Cord Med. 2013 Nov;36(6):572-85
pubmed: 24090179
Sleep Med. 2008 Jan;9(2):191-8
pubmed: 17644416
Am J Phys Med Rehabil. 2011 Sep;90(9):756-64
pubmed: 21389846
BMC Med. 2012 Nov 22;10:144
pubmed: 23171675
BMJ. 1998 Jul 25;317(7153):264-5
pubmed: 9677221
J Med Internet Res. 2013 May 21;15(5):e95
pubmed: 23697600
Am J Prev Med. 2013 Nov;45(5):583-9
pubmed: 24139771
J Med Internet Res. 2016 Dec 16;18(12):e317
pubmed: 27986647
Stud Health Technol Inform. 2017;233:148-157
pubmed: 28125421
J Rehabil Med. 2016 Feb;48(2):197-209
pubmed: 26931074
Eur J Clin Nutr. 2012 Mar;66(3):382-7
pubmed: 22166898
Arch Phys Med Rehabil. 2009 Feb;90(2):213-31
pubmed: 19236976
JMIR Mhealth Uhealth. 2018 Dec 18;6(12):e10314
pubmed: 30563810
Adv Skin Wound Care. 2007 Aug;20(8):447-60; quiz 461-2
pubmed: 17762312
J Spinal Cord Med. 2001 Spring;24 Suppl 1:S40-101
pubmed: 11958176
Transl Behav Med. 2013 Sep;3(3):277-86
pubmed: 24073179
JMIR Mhealth Uhealth. 2016 Jun 27;4(2):e81
pubmed: 27349756
BMJ. 2008 Sep 29;337:a1655
pubmed: 18824488
J Biomech. 2010 Jan 19;43(2):280-6
pubmed: 19762029
Spinal Cord. 1996 May;34(5):255-63
pubmed: 8963971
Rev Epidemiol Sante Publique. 2008 Dec;56(6):415-23
pubmed: 19013039
Transl Behav Med. 2011 Dec;1(4):523-9
pubmed: 24073074
Stud Health Technol Inform. 2017;233:63-77
pubmed: 28125414
Neuropsychol Rehabil. 2018 Jul;28(5):667-688
pubmed: 26679473
PM R. 2015 Jun;7(6):613-36
pubmed: 25529614
J Pediatr. 2018 Apr;195:310-311.e1
pubmed: 29643017
Evid Based Med. 2017 Oct;22(5):164-169
pubmed: 28924055
JMIR Mhealth Uhealth. 2015 Jul 24;3(3):e77
pubmed: 26209109
JMIR Mhealth Uhealth. 2016 Aug 02;4(3):e93
pubmed: 27485822
J Rehabil Res Dev. 2015;52(2):131-46
pubmed: 26237111
JMIR Mhealth Uhealth. 2015 May 21;3(2):e43
pubmed: 25998158
Cancer. 1999 Aug 1;86(3):381-90
pubmed: 10430244
Transl Behav Med. 2016 Dec;6(4):533-545
pubmed: 27699682
JMIR Mhealth Uhealth. 2015 Jul 27;3(3):e79
pubmed: 26215371
Clin Rehabil. 2017 Jul;31(7):871-880
pubmed: 27440806
Int J Behav Nutr Phys Act. 2016 Aug 08;13:90
pubmed: 27501724
JMIR Mhealth Uhealth. 2014 May 16;2(2):e24
pubmed: 25099752
BMJ. 1995 Aug 5;311(7001):376-80
pubmed: 7640549
Cochrane Database Syst Rev. 2017 Sep 25;9:CD011479
pubmed: 28944453
Syst Rev. 2014 Feb 10;3:10
pubmed: 24512976
Urologe A. 2017 Jun;56(6):785-792
pubmed: 28314966
JMIR Mhealth Uhealth. 2018 Apr 23;6(4):e91
pubmed: 29685868
PLoS Med. 2013;10(1):e1001362
pubmed: 23349621
BMJ Open. 2012 Sep 01;2(5):
pubmed: 22942232
J Med Internet Res. 2014 Mar 19;16(3):e89
pubmed: 24647361
J Med Internet Res. 2001 Apr-Jun;3(2):E20
pubmed: 11720962
Assist Technol. 2000;12(1):50-66
pubmed: 11067577
J Med Internet Res. 2015 Oct 23;17(10):e240
pubmed: 26499966
Am J Phys Med Rehabil. 2007 Jan;86(1):22-9
pubmed: 17304685
Cochrane Database Syst Rev. 2013 Nov 27;(11):CD010013
pubmed: 24282112
Spinal Cord. 2018 Mar;56(3):186-198
pubmed: 29371701
JMIR Mhealth Uhealth. 2018 Mar 02;6(3):e52
pubmed: 29500157
J Eval Clin Pract. 2014 Dec;20(6):803-8
pubmed: 25267262
Spinal Cord. 2009 Oct;47(10):757-62
pubmed: 19350042
Telemed J E Health. 2018 Oct;24(10):727-741
pubmed: 29437546
Drug Saf. 2013 Feb;36(2):111-7
pubmed: 23322549