Children and young people's concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review.
adolescent health
technology
Journal
Archives of disease in childhood
ISSN: 1468-2044
Titre abrégé: Arch Dis Child
Pays: England
ID NLM: 0372434
Informations de publication
Date de publication:
11 2020
11 2020
Historique:
received:
03
03
2020
revised:
22
04
2020
accepted:
24
04
2020
pubmed:
24
5
2020
medline:
17
12
2020
entrez:
24
5
2020
Statut:
ppublish
Résumé
The use of patient-facing health technologies to manage long-term conditions is increasing; however, children and young people may have particular concerns or needs before deciding to use different health technologies. To identify children and young people's reported concerns or needs in relation to using health technologies to self-manage long-term conditions. A scoping review was conducted. We searched MEDLINE, PsycINFO and CINAHL in February 2019. Searches were limited to papers published between January 2008 and February 2019. We included any health technology used to manage long-term conditions. A thematic synthesis of the data from the included studies was undertaken. We engaged children with long-term conditions (and parents) to support review design, interpretation of findings and development of recommendations. Thirty-eight journal articles were included, describing concerns or needs expressed by n=970 children and/or young people aged 5-18 years. Most included studies were undertaken in high-income countries with children aged 11 years and older. Studies examined concerns with mobile applications (n=14), internet (n=9), social media (n=3), interactive online treatment programmes (n=3), telehealth (n=1), devices (n=3) or a combination (n=5). Children and young people's main concerns were labelling and identity; accessibility; privacy and reliability; and trustworthiness of information. This review highlights important concerns that children and young people may have before using technology to self-manage their long-term condition. In future, research should involve children and young people throughout the development of technology, from identifying their unmet needs through to design and evaluation of interventions.
Sections du résumé
BACKGROUND
The use of patient-facing health technologies to manage long-term conditions is increasing; however, children and young people may have particular concerns or needs before deciding to use different health technologies.
AIMS
To identify children and young people's reported concerns or needs in relation to using health technologies to self-manage long-term conditions.
METHODS
A scoping review was conducted. We searched MEDLINE, PsycINFO and CINAHL in February 2019. Searches were limited to papers published between January 2008 and February 2019. We included any health technology used to manage long-term conditions. A thematic synthesis of the data from the included studies was undertaken. We engaged children with long-term conditions (and parents) to support review design, interpretation of findings and development of recommendations.
RESULTS
Thirty-eight journal articles were included, describing concerns or needs expressed by n=970 children and/or young people aged 5-18 years. Most included studies were undertaken in high-income countries with children aged 11 years and older. Studies examined concerns with mobile applications (n=14), internet (n=9), social media (n=3), interactive online treatment programmes (n=3), telehealth (n=1), devices (n=3) or a combination (n=5). Children and young people's main concerns were labelling and identity; accessibility; privacy and reliability; and trustworthiness of information.
DISCUSSION
This review highlights important concerns that children and young people may have before using technology to self-manage their long-term condition. In future, research should involve children and young people throughout the development of technology, from identifying their unmet needs through to design and evaluation of interventions.
Identifiants
pubmed: 32444448
pii: archdischild-2020-319103
doi: 10.1136/archdischild-2020-319103
pmc: PMC7588410
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
1093-1104Subventions
Organisme : Medical Research Council
ID : G0800472
Pays : United Kingdom
Organisme : Department of Health
ID : PDF-2014-07-072
Pays : United Kingdom
Informations de copyright
© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY. Published by BMJ.
Déclaration de conflit d'intérêts
Competing interests: None declared.
Références
J Cancer Educ. 2017 Dec;32(4):885-891
pubmed: 27251633
Health Informatics J. 2016 Jun;22(2):265-75
pubmed: 25385165
Depress Anxiety. 2009;26(1):65-72
pubmed: 18828141
J Can Acad Child Adolesc Psychiatry. 2010 Feb;19(1):5-11
pubmed: 20119561
JMIR Ment Health. 2019 Oct 2;6(10):e14385
pubmed: 31579023
JMIR Mhealth Uhealth. 2016 Mar 23;4(1):e31
pubmed: 27009498
J Youth Stud. 2013 Aug;16(5):579-596
pubmed: 24748849
PLoS One. 2013 Jun 21;8(6):e67659
pubmed: 23805322
J Med Internet Res. 2015 Dec 23;17(12):e287
pubmed: 26701961
Transl Behav Med. 2016 Dec;6(4):509-518
pubmed: 27118115
Health Expect. 2015 Oct;18(5):603-4
pubmed: 26406897
BMJ Paediatr Open. 2018 Aug 23;2(1):e000299
pubmed: 30167477
J Pediatr Psychol. 2019 Apr 1;44(3):333-342
pubmed: 30358863
Clin Pediatr (Phila). 2017 Dec;56(14):1336-1344
pubmed: 28056541
Clin Pediatr (Phila). 2012 Feb;51(2):114-21
pubmed: 22019792
Am J Health Educ. 2011 Jul;42(4):205-212
pubmed: 22229150
Health Informatics J. 2020 Mar;26(1):342-353
pubmed: 30732520
J Paediatr Child Health. 2016 Nov;52(11):1012-1018
pubmed: 27529150
J Am Acad Child Adolesc Psychiatry. 2012 Mar;51(3):261-70
pubmed: 22365462
J Child Psychol Psychiatry. 2017 Apr;58(4):474-503
pubmed: 27943285
JMIR Mhealth Uhealth. 2019 Oct 10;7(10):e11205
pubmed: 31603431
Int J Med Inform. 2019 Apr;124:78-85
pubmed: 30784430
Health Expect. 2016 Feb;19(1):112-20
pubmed: 25581724
Curr Opin Pediatr. 2019 Feb;31(1):148-156
pubmed: 30507648
J Psychosoc Oncol. 2014;32(3):310-21
pubmed: 24611453
Trials. 2019 Jul 23;20(1):452
pubmed: 31337437
JMIR Mhealth Uhealth. 2015 Jan 19;3(1):e8
pubmed: 25599627
Qual Health Res. 2015 Oct;25(10):1372-82
pubmed: 25904674
JMIR Public Health Surveill. 2018 Nov 28;4(4):e12397
pubmed: 30487116
J Med Internet Res. 2018 Apr 03;20(4):e120
pubmed: 29615385
Dev Neurorehabil. 2018 Nov;21(8):521-530
pubmed: 28960125
Curr Opin Pulm Med. 2018 Jan;24(1):63-69
pubmed: 29036020
BMC Med. 2015 Sep 07;13:214
pubmed: 26404673
JMIR Serious Games. 2018 Nov 21;6(4):e18
pubmed: 30463835
BMC Med Res Methodol. 2008 Jul 10;8:45
pubmed: 18616818
JCO Clin Cancer Inform. 2018 Dec;2:1-15
pubmed: 30652583
JMIR Mhealth Uhealth. 2018 Nov 30;6(11):e194
pubmed: 30251704
J Med Internet Res. 2019 Nov 20;21(11):e13579
pubmed: 31746773
J Med Syst. 2017 Jul;41(7):105
pubmed: 28540617
Appl Ergon. 2010 May;41(3):403-10
pubmed: 19892317
Health Informatics J. 2019 Dec;25(4):1343-1357
pubmed: 29499615
Ann Intern Med. 2018 Oct 2;169(7):467-473
pubmed: 30178033
JMIR Mhealth Uhealth. 2018 Jan 19;6(1):e25
pubmed: 29351898
J Child Health Care. 2018 Jun;22(2):238-250
pubmed: 29325420
JMIR Mhealth Uhealth. 2017 Aug 15;5(8):e121
pubmed: 28811270
Int J Qual Stud Health Well-being. 2016 Aug 16;11:31530
pubmed: 27534945
J Med Internet Res. 2013 Apr 18;15(4):e86
pubmed: 23598614
J Med Internet Res. 2012 May 08;14(3):e70
pubmed: 22564332
Appl Ergon. 2017 Jan;58:224-237
pubmed: 27633217
JMIR Form Res. 2018 Apr 04;2(1):e7
pubmed: 30684409
J Asthma. 2016 Nov;53(9):948-54
pubmed: 27116540
Comput Inform Nurs. 2011 Jan-Feb;29(1):24-33; quiz 34-5
pubmed: 21099541
Ann Allergy Asthma Immunol. 2015 Jun;114(6):527-9
pubmed: 26021895
Child Care Health Dev. 2017 Jan;43(1):126-132
pubmed: 27554643
Appl Clin Inform. 2012;3(4):356-66
pubmed: 23227134
Scoliosis Spinal Disord. 2017 Apr 8;12:12
pubmed: 28405634
J Med Internet Res. 2013 Jul 17;15(7):e141
pubmed: 23864345
JMIR Mhealth Uhealth. 2018 Apr 06;6(4):e80
pubmed: 29625951
J Pediatr Nurs. 2017 Jul - Aug;35:90-97
pubmed: 28728776
JMIR Mhealth Uhealth. 2018 Apr 11;6(4):e86
pubmed: 29643054
JMIR Mhealth Uhealth. 2017 Oct 04;5(10):e145
pubmed: 28978497
JMIR Mhealth Uhealth. 2017 Jun 19;5(6):e82
pubmed: 28630037
Child Obes. 2013 Aug;9(4):305-10
pubmed: 23869854
J Med Internet Res. 2017 Jul 04;19(7):e235
pubmed: 28676470
J Med Internet Res. 2018 Jan 05;20(1):e5
pubmed: 29305339
J Asthma. 2019 Sep;56(9):964-972
pubmed: 30207802
J Child Fam Stud. 2015;24(5):1213-1221
pubmed: 25960628
J Soc Social Work Res. 2011 Jun;2(2):88-103
pubmed: 22247795
JMIR Ment Health. 2018 Feb 15;5(1):e13
pubmed: 29449202
Arch Dis Child. 2019 Feb;104(2):184-188
pubmed: 30154177
J Am Med Inform Assoc. 2018 Feb 1;25(2):135-141
pubmed: 28575462
J Pediatr Nurs. 2015 Jan-Feb;30(1):87-101
pubmed: 25316197