"My Death Will Not [Be] in Vain": Testimonials from Last Gift Rapid Research Autopsy Study Participants Living with HIV at the End of Life.

HIV cure research Last Gift altruism end of life rapid research autopsy sociobehavioral research

Journal

AIDS research and human retroviruses
ISSN: 1931-8405
Titre abrégé: AIDS Res Hum Retroviruses
Pays: United States
ID NLM: 8709376

Informations de publication

Date de publication:
12 2020
Historique:
pubmed: 26 5 2020
medline: 31 7 2021
entrez: 26 5 2020
Statut: ppublish

Résumé

End-of-life (EOL) HIV cure-related research provides a novel approach to studying HIV reservoirs. The Last Gift is a rapid autopsy research study at the University of California San Diego that enrolls terminally ill people living with HIV (PLWHIV) with a desire to contribute to HIV cure-related research. We conducted in-depth baseline and follow-up interviews with Last Gift study participants. We analyzed interview data applying conventional content analysis. Since summer 2017, 13 participants have been enrolled (

Identifiants

pubmed: 32449625
doi: 10.1089/AID.2020.0020
pmc: PMC7703253
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural Research Support, U.S. Gov't, Non-P.H.S.

Langues

eng

Sous-ensembles de citation

IM

Pagination

1071-1082

Subventions

Organisme : NIAID NIH HHS
ID : P01 AI131385
Pays : United States
Organisme : NIAID NIH HHS
ID : P30 AI036214
Pays : United States
Organisme : NICHD NIH HHS
ID : R21 HD094646
Pays : United States
Organisme : NIMH NIH HHS
ID : U24 MH100928
Pays : United States

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Auteurs

Kelly E Perry (KE)

Public Health Leadership Program, UNC Gillings School of Global Public Health, Chapel Hill, North Carolina, USA.

Karine Dubé (K)

Public Health Leadership Program, UNC Gillings School of Global Public Health, Chapel Hill, North Carolina, USA.

Susanna Concha-Garcia (S)

Department of Medicine, University of California San Diego School of Medicine, AntiViral Research Center, University of California San Diego, San Diego, California, USA.
HIV Neurobehavioral Research Program, University of California San Diego, San Diego, California, USA.

Hursch Patel (H)

Public Health Leadership Program, UNC Gillings School of Global Public Health, Chapel Hill, North Carolina, USA.

Andy Kaytes (A)

Community Advisory Board, AntiViral Research Center, San Diego, California, USA.

Jeff Taylor (J)

Community Advisory Board, AntiViral Research Center, San Diego, California, USA.
HIV+Aging Research Project-Palm Springs (HARP-PS), Palm Springs, California, USA.

Sogol Stephanie Javadi (SS)

Department of Medicine, University of California San Diego School of Medicine, AntiViral Research Center, University of California San Diego, San Diego, California, USA.

Kushagra Mathur (K)

Department of Medicine, University of California San Diego School of Medicine, AntiViral Research Center, University of California San Diego, San Diego, California, USA.

Megan Lo (M)

Department of Medicine, University of California San Diego School of Medicine, AntiViral Research Center, University of California San Diego, San Diego, California, USA.

Brandon Brown (B)

Department of Social Medicine, Population and Public Health, Center for Healthy Communities, University of California, Riverside, Riverside, California, USA.

John A Sauceda (JA)

Department of Medicine, Division of Prevention Sciences, Center for AIDS Prevention Studies, University of California, San Francisco, San Francisco, California, USA.

David A Wohl (DA)

Department of Medicine, Institute of Global Health and Infectious Diseases, University of North Carolina, Chapel Hill, North Carolina, USA.

Susan Little (S)

Department of Medicine, University of California San Diego School of Medicine, AntiViral Research Center, University of California San Diego, San Diego, California, USA.
Department of Medicine, Division of Infectious Diseases and Global Public Health, University of California San Diego, San Diego, California, USA.

Steven Hendrickx (S)

Department of Medicine, University of California San Diego School of Medicine, AntiViral Research Center, University of California San Diego, San Diego, California, USA.

Stephen A Rawlings (SA)

Department of Medicine, University of California San Diego School of Medicine, AntiViral Research Center, University of California San Diego, San Diego, California, USA.
Department of Medicine, Division of Infectious Diseases and Global Public Health, University of California San Diego, San Diego, California, USA.

Davey M Smith (DM)

Department of Medicine, University of California San Diego School of Medicine, AntiViral Research Center, University of California San Diego, San Diego, California, USA.
Department of Medicine, Division of Infectious Diseases and Global Public Health, University of California San Diego, San Diego, California, USA.

Sara Gianella (S)

Department of Medicine, University of California San Diego School of Medicine, AntiViral Research Center, University of California San Diego, San Diego, California, USA.
Department of Medicine, Division of Infectious Diseases and Global Public Health, University of California San Diego, San Diego, California, USA.

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