Developing a Patient- and Family-Centered Research Agenda for Hospital Medicine: The Improving Hospital Outcomes through Patient Engagement (i-HOPE) Study.
Journal
Journal of hospital medicine
ISSN: 1553-5606
Titre abrégé: J Hosp Med
Pays: United States
ID NLM: 101271025
Informations de publication
Date de publication:
06 2020
06 2020
Historique:
received:
08
09
2019
accepted:
15
01
2020
pubmed:
4
6
2020
medline:
19
8
2021
entrez:
4
6
2020
Statut:
ppublish
Résumé
Patient, caregiver, and other stakeholder priorities have not been robustly incorporated into directing hospital-based research and improvement efforts. To systematically engage stakeholders to identify important questions of adult hospitalized patients and to create a prioritized research agenda for improving the care of adult hospitalized patients. A collaborative approach to stakeholder engagement and research question prioritization. Researchers and patients from eight academic and community medical centers partnered with 39 patient, caregiver, professional, research, and medical organizations. We applied established standards for formulating research questions and stakeholder engagement. This included: a multi-pronged, inclusive patient and stakeholder engagement strategy; surveys of patients and stakeholder organizations to identify important questions; content analysis of submitted questions; and a 2-day in-person meeting with stakeholder organization representatives and patient partners to prioritize and rank submitted questions. A total of 499 respondents including patients, caregivers, healthcare providers, and researchers from 39 organizations submitted 782 research questions. These questions were categorized into 70 distinct topics-52 that were health system related and 18 disease specific. From these categories, we identified 36 common questions; the final 11 questions were identified, prioritized and ranked during an in-person priority-setting meeting. Questions considered highest priority related to ensuring shared treatment and goals of care decision making and improving hospital discharge handoff to other care facilities and providers. We identified 11 prioritized research questions that should galvanize funders, researchers, and patient advocates to address and improve the care of hospitalized adult patients.
Sections du résumé
BACKGROUND
Patient, caregiver, and other stakeholder priorities have not been robustly incorporated into directing hospital-based research and improvement efforts.
OBJECTIVE
To systematically engage stakeholders to identify important questions of adult hospitalized patients and to create a prioritized research agenda for improving the care of adult hospitalized patients.
DESIGN
A collaborative approach to stakeholder engagement and research question prioritization.
SETTING & PARTICIPANTS
Researchers and patients from eight academic and community medical centers partnered with 39 patient, caregiver, professional, research, and medical organizations.
METHODS
We applied established standards for formulating research questions and stakeholder engagement. This included: a multi-pronged, inclusive patient and stakeholder engagement strategy; surveys of patients and stakeholder organizations to identify important questions; content analysis of submitted questions; and a 2-day in-person meeting with stakeholder organization representatives and patient partners to prioritize and rank submitted questions.
RESULTS
A total of 499 respondents including patients, caregivers, healthcare providers, and researchers from 39 organizations submitted 782 research questions. These questions were categorized into 70 distinct topics-52 that were health system related and 18 disease specific. From these categories, we identified 36 common questions; the final 11 questions were identified, prioritized and ranked during an in-person priority-setting meeting. Questions considered highest priority related to ensuring shared treatment and goals of care decision making and improving hospital discharge handoff to other care facilities and providers.
CONCLUSION
We identified 11 prioritized research questions that should galvanize funders, researchers, and patient advocates to address and improve the care of hospitalized adult patients.
Identifiants
pubmed: 32490806
pii: jhm.3386
doi: 10.12788/jhm.3386
pmc: PMC7289507
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Research Support, U.S. Gov't, Non-P.H.S.
Langues
eng
Sous-ensembles de citation
IM
Pagination
331-337Commentaires et corrections
Type : CommentIn
Références
Thromb Res. 2017 Feb;150:113-120
pubmed: 27817863
Am J Med Qual. 2013 Nov-Dec;28(6):536-8
pubmed: 23687239
JAMA Intern Med. 2014 Oct;174(10):1698-700
pubmed: 25133358
J Hosp Med. 2012 Jul-Aug;7(6):504-7
pubmed: 22447649
Cochrane Database Syst Rev. 2018 Jul 19;7:CD006732
pubmed: 30025154
Health Expect. 2019 Jun;22(3):307-316
pubmed: 30761699
Qual Saf Health Care. 2008 Jun;17(3):216-23
pubmed: 18519629
J Hosp Med. 2018 Feb 5;13(7):453-461
pubmed: 29401211
J Adv Nurs. 2008 Apr;62(1):107-15
pubmed: 18352969
J Biomed Inform. 2009 Apr;42(2):377-81
pubmed: 18929686
Perm J. 2016 Spring;20(2):89-92
pubmed: 26909777
Soc Sci Med. 1997 Mar;44(5):681-92
pubmed: 9032835
J Hosp Med. 2013 Aug;8(8):421-7
pubmed: 23873709
Perm J. 2016 Spring;20(2):85-8
pubmed: 27083011
Healthc (Amst). 2016 Mar;4(1):11-4
pubmed: 27001093
J Patient Exp. 2020 Jun;7(3):408-417
pubmed: 32821802
Health Serv Res. 2007 Aug;42(4):1758-72
pubmed: 17286625
N Engl J Med. 2014 Dec 11;371(24):2298-308
pubmed: 25494269
JAMA. 2012 Apr 18;307(15):1583-4
pubmed: 22511682
J Hosp Med. 2017 Apr;12(4):283-287
pubmed: 28411292