Chronic patients' satisfaction and priorities regarding medical care, information and services and quality of life: a French online patient community survey.
Chronic conditions
Information
Medical care
Patient community
Priorities
Quality of life
Real-word insights
Satisfaction
Services
Journal
BMC health services research
ISSN: 1472-6963
Titre abrégé: BMC Health Serv Res
Pays: England
ID NLM: 101088677
Informations de publication
Date de publication:
05 Jun 2020
05 Jun 2020
Historique:
received:
27
09
2019
accepted:
27
05
2020
entrez:
7
6
2020
pubmed:
7
6
2020
medline:
15
12
2020
Statut:
epublish
Résumé
The French healthcare system is evolving to meet the challenges of an aging population, the growing prevalence of chronic diseases, the development of new technologies and the increasing involvement of patients in the management of their disease. The aim of this study is to assess the satisfaction and priorities of chronic patients regarding medical care, information and services and their quality of life. A cross-sectional study was conducted from February to March 2018 via the French Carenity platform. Adult patients enrolled in type 1 diabetes, heart failure or obesity communities were invited to answer an online questionnaire. A numeric scale from 0 (meaning not satisfied) to 5 was used to evaluate patients' satisfaction. Patients' priorities were assessed using a ranking question. Patients' satisfaction and priorities have been combined in a matrix to identify patients' expectations. Sixty-seven respondents of each condition answered a questionnaire. The most important and least satisfactory items about medical care are availability and active listening from healthcare providers, as well as access to coordinated and multidisciplinary care. Regarding information and services, respondents mostly expect connected medical devices, in addition to lifestyle and dietary measures. As for the quality of life, respondents fear that their chronic condition will keep impacting their daily mood and ability to do physical activities. This study shows that chronic patients want to be more actively involved in their care pathway. Patient training and therapeutic patient education programs could help them manage their chronic conditions within a patient-centred healthcare system.
Sections du résumé
BACKGROUND
BACKGROUND
The French healthcare system is evolving to meet the challenges of an aging population, the growing prevalence of chronic diseases, the development of new technologies and the increasing involvement of patients in the management of their disease. The aim of this study is to assess the satisfaction and priorities of chronic patients regarding medical care, information and services and their quality of life.
METHODS
METHODS
A cross-sectional study was conducted from February to March 2018 via the French Carenity platform. Adult patients enrolled in type 1 diabetes, heart failure or obesity communities were invited to answer an online questionnaire. A numeric scale from 0 (meaning not satisfied) to 5 was used to evaluate patients' satisfaction. Patients' priorities were assessed using a ranking question. Patients' satisfaction and priorities have been combined in a matrix to identify patients' expectations.
RESULTS
RESULTS
Sixty-seven respondents of each condition answered a questionnaire. The most important and least satisfactory items about medical care are availability and active listening from healthcare providers, as well as access to coordinated and multidisciplinary care. Regarding information and services, respondents mostly expect connected medical devices, in addition to lifestyle and dietary measures. As for the quality of life, respondents fear that their chronic condition will keep impacting their daily mood and ability to do physical activities.
CONCLUSIONS
CONCLUSIONS
This study shows that chronic patients want to be more actively involved in their care pathway. Patient training and therapeutic patient education programs could help them manage their chronic conditions within a patient-centred healthcare system.
Identifiants
pubmed: 32503523
doi: 10.1186/s12913-020-05373-5
pii: 10.1186/s12913-020-05373-5
pmc: PMC7275411
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
511Références
Am Heart J. 2009 Oct;158(4 Suppl):S24-30
pubmed: 19782785
Lancet. 2018 Sep 22;392(10152):1047-1057
pubmed: 30153985
BMC Fam Pract. 2017 Mar 20;18(1):40
pubmed: 28320330
Implement Sci. 2010 Feb 02;5:10
pubmed: 20205815
Patient Educ Couns. 2006 Aug;62(2):178-88
pubmed: 16406472
Eur J Dermatol. 2019 Oct 1;29(5):518-523
pubmed: 31647462
J Am Board Fam Med. 2012 Mar-Apr;25(2):245-6
pubmed: 22403207
Health Expect. 2015 Dec;18(6):2375-88
pubmed: 24813384
Patient Prefer Adherence. 2015 Feb 12;9:289-97
pubmed: 25709415
BMC Health Serv Res. 2018 May 10;18(1):350
pubmed: 29747651
J Med Internet Res. 2013 Jun 25;15(6):e115
pubmed: 23803284
Health Informatics J. 2014 Mar;20(1):50-8
pubmed: 24550564
Int J Integr Care. 2012 Sep 18;12(Spec Ed Integrated Care Pathways):e192
pubmed: 23593066
Implement Sci. 2013 Jun 10;8:64
pubmed: 23758977
BMC Health Serv Res. 2014 Nov 11;14:540
pubmed: 25385145
Orphanet J Rare Dis. 2019 Dec 4;14(1):286
pubmed: 31801570
BMJ Open. 2016 Nov 7;6(11):e012110
pubmed: 27821596
Arch Cardiovasc Dis. 2011 Mar;104(3):189-201
pubmed: 21634217
BMJ. 2000 Feb 26;320(7234):569-72
pubmed: 10688568