Programmes to support transitions in care for children and youth with complex care needs and their families: a scoping review protocol.


Journal

BMJ open
ISSN: 2044-6055
Titre abrégé: BMJ Open
Pays: England
ID NLM: 101552874

Informations de publication

Date de publication:
21 06 2020
Historique:
entrez: 23 6 2020
pubmed: 23 6 2020
medline: 16 2 2021
Statut: epublish

Résumé

Children and youth with complex care needs (CCNs) and their families experience many care transitions over their lifespan and are consequently vulnerable to the discontinuity or gaps in care that can occur during these transitions. Transitional care programmes, broadly defined as one or more intervention(s) or service(s) that aim to improve continuity of care, are increasingly being developed to address transitions in care for children and youth with CCNs. However, this literature has not yet been systematically examined at a comprehensive level. The purpose of this scoping review is to map the range of programmes that support transitions in care for children and youth with CCNs and their families during two phases of their lifespan: (1) up to the age of 19 years (not including their transition to adult healthcare) and (2) when transitioning from paediatric to adult healthcare. The Joanna Briggs Institute methodology for scoping reviews (ScR) will be used for the proposed scoping review. ScR are a type of knowledge synthesis that are useful for addressing exploratory research questions that aim to map key concepts and types of evidence on a topic and can be used to organise what is known about the phenomena. A preliminary search of PubMed was conducted in December 2018. Ethical approval is not required where this study is a review of the published and publicly reported literature. The research team's advisory council will develop a research dissemination strategy with goals, target audiences, expertise/leadership, resources and deadlines to maximise project outputs. The end-of-grant activities will be used to raise awareness, promote action and inform future research, policy and practice on this topic.

Identifiants

pubmed: 32565449
pii: bmjopen-2019-033978
doi: 10.1136/bmjopen-2019-033978
pmc: PMC7307541
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

e033978

Subventions

Organisme : CIHR
Pays : Canada

Informations de copyright

© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

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Auteurs

Shelley Doucet (S)

Department of Nursing and Health Sciences, University of New Brunswick, Saint John, New Brunswick, Canada sdoucet@unb.ca.

Janet A Curran (JA)

School of Nursing, Faculty of Health, Dalhousie University, Halifax, Nova Scotia, Canada.

Sydney Breneol (S)

School of Nursing, Faculty of Health, Dalhousie University, Halifax, Nova Scotia, Canada.

Alison Luke (A)

Department of Nursing and Health Sciences, University of New Brunswick, Saint John, New Brunswick, Canada.

Emilie Dionne (E)

St. Mary's Research Centre & Family Medicine, McGill University, Montreal, Quebec, Canada.

Rima Azar (R)

Department of Psychology, Mount Allison University, Sackville, New Brunswick, Canada.

Amy E Reid (AE)

Department of Nursing and Health Sciences, University of New Brunswick, Saint John, New Brunswick, Canada.

Shelley McKibbon (S)

W.K. Kellogg Health Sciences Library, Dalhousie University, Halifax, Nova Scotia, Canada.

Amanda R Horsman (AR)

Interdisciplinary Studies, University of New Brunswick, Saint John, New Brunswick, Canada.

Krystal Binns (K)

Department of Nursing and Health Sciences, University of New Brunswick, Saint John, New Brunswick, Canada.

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