'My relationships have changed because I've changed': biographical disruption, personal relationships and the formation of an early menopausal subjectivity.
experience of illness
interviewing (qualitative)
menopause
reproductive health
subjectivity
women’s health
Journal
Sociology of health & illness
ISSN: 1467-9566
Titre abrégé: Sociol Health Illn
Pays: England
ID NLM: 8205036
Informations de publication
Date de publication:
09 2020
09 2020
Historique:
pubmed:
26
6
2020
medline:
19
8
2021
entrez:
26
6
2020
Statut:
ppublish
Résumé
Early menopause (EM) or premature ovarian insufficiency (POI) can disrupt gendered and age-related expectations associated with perceived 'normative' biographies for young adult women, with implications for subjectivity and relationships. While previous qualitative research has concentrated on the impacts of EM/POI on biography and sense of self, in this article, we examine the enmeshment of personal relationships with the formation of early menopausal subjectivities. Drawing on research exploring concepts of 'biographical disruption' and personal relationships, and theoretical work on social norms and subject formation, we present findings from a narrative thematic analysis of 25 interviews with women diagnosed with spontaneous or medically induced EM/POI. We identify three main narrative 'types' of subjective and relational experience in response to the 'disruption' of EM/POI: interlude and continuity; disruption and adaptation; and disruption and ambivalence. Women's accounts of their experience of EM/POI indicate that the formation of early menopausal selves is mediated by the extent to which women and those around them identify with gendered norms related to reproduction and age. Consistent with theoretical perspectives that consider the self as relationally produced, we argue that the subjective and relational dimensions of EM/POI are intertwined and must be understood in tandem.
Identifiants
pubmed: 32584443
doi: 10.1111/1467-9566.13143
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
1516-1531Informations de copyright
© 2020 Foundation for the Sociology of Health & Illness.
Références
Abadi, O., Cheraghi, M., Tirgari, B., Nayeri, N., et al. (2018) ‘Feeling an invisible wall’, the experience of Iranian women's marital relationship after surgical menopause: a qualitative content analysis study, Journal of Sex & Marital Therapy, 44, 7, 627-40.
Anderson, D., Yates, P., McCarthy, A., Lang, C.P., et al. (2011) Younger and older women’s concerns about menopause after breast cancer, European Journal of Cancer Care, 20, 785-94.
Becker, G. (1997) Disrupted Lives: How People Create Meaning in a Chaotic World. Berkeley: University of California Press.
Brisbois, M. (2014) An interpretive description of chemotherapy-induced premature menopause among Latinas with breast cancer, Oncology Nursing Forum, 41, 5, E282-89.
Boughton, M. and Halliday, L. (2008) A challenge to the menopause stereotype: young Australian women's reflections of ‘being diagnosed’ as menopausal, Health & Social Care in the Community, 16, 6, 565-72.
Boughton, M. (2002) Premature menopause: multiple disruptions between the woman's biological body experience and her lived body, Journal of Advanced Nursing, 37, 5, 423-30.
Bury, M. (1982) Chronic illness as biographical disruption, Sociology of Health & Illness, 4, 2, 167-82.
Butler, J. (2015) Senses of the Subject. New York: Fordham University Press.
Butler, J. (2007) Gender Trouble: Feminism and the Subversion of Identity. New York and London: Routledge.
Butler, J. (2005) Giving an Account of Oneself. New York: Fordham University Press.
Collaborative Group on Hormonal Factors in Breast Cancer (2019) Type and timing of menopausal hormone therapy and breast cancer risk: Individual participant meta-analysis of the worldwide epidemiological evidence, Lancet, 394, 1159-68.
Deeks, A., Gibson-Helm, M., Teede, H. and Vincent, A. (2011) Premature menopause: a comprehensive understanding of psychosocial aspects, Climacteric, 14, 565-72.
Dryden, A., Ussher, J. and Perz, J. (2014) Young women’s construction of their post-cancer fertility, Psychology & Health, 29, 11, 1341-60.
ESHRE (2016) Information for Women with Premature Ovarian Insufficiency. Grimbergen: European Society of Human Reproduction and Embryology. Available at https://www.eshre.eu/Guidelines-and-Legal/Guidelines/Management-of-premature-ovarian-insufficiency (Last accessed 13 May 2019).
Foucault, M. (1985) The History of Sexuality, Vol. 2: The Use of Pleasure. New York: Random House.
Frank, A. (1995) The Wounded Storyteller: Body, Illness and Ethics, 2nd edn. Chicago: University of Chicago Press.
Gibson-Helm, M., Vincent, A. and Teede, H. (2014) Symptoms, health behaviour and understanding of menopause therapy in women with premature menopause, Climacteric, 17, 666-73.
Halliday, L. and Boughton, M. (2009) Premature menopause: exploring the experience through online communication, Nursing & Health Sciences, 11, 1, 17-22.
Halliday, L., Boughton, M. and Kerridge, I. (2014) Mothering and self-othering: the impact of uncertain reproductive capacity in young women after haematological malignancy, Health Care for Women International, 35, 249-65.
Hampshire, K., Blell, M. and Simpson, B. (2012) ‘Everybody is moving on’: infertility, relationality and the aesthetics of family among British-Pakistani Muslims, Social Science & Medicine, 74, 1045-52.
Hollway, W. (2006) Paradox in the pursuit of a critical theorisation of the development of self in family relationships, Theory & Psychology, 16, 4, 465-82.
Institute of Medicine (2001) Crossing the Chasm: A New Health System for the 21st Century. Washington: The National Academies Press.
Karaöz, B., Aksu, H. and Küçük, M. (2010) A qualitative study of the information needs of premenopausal women with breast cancer in terms of contraception, sexuality, early menopause, and fertility, International Journal of Gynecology & Obstetrics, 109, 2, 118-20.
Ketokivi, K. (2008) Biographical disruption, the wounded self, and the reconfiguration of significant others. In Widmer, E. and Jallinoja, R. (eds) Beyond the Nuclear Family: Families in a Configurational Perspective. Bern: Peter Lang AG, pp. 255-77.
Kokanović, R., Michaels, P.A. and Johnston-Ataata, K. (eds) (2018) Paths to Parenthood: Emotions on the Journey Through Pregnancy, Childbirth, and Early Parenting. Singapore: Palgrave Macmillan.
Kokanović, R. and Flore, J. (2017) Subjectivity and illness narratives, Subjectivity, 10, 4, 329-39.
Knobf, T. (2008) ‘Coming to grips’ with chemotherapy-induced premature menopause, Health Care for Women International, 29, 4, 384-99.
Knobf, T. (2002) ‘Carrying on’: the experience of premature menopause in women with early stage breast cancer, Nursing Research, 51, 1, 9-17.
Latimer, J. and Thomas, G. (2017) The politics of reproduction and parenting cultures - procreation, pregnancy, childbirth and childrearing, Sociology of Health & Illness, 39, 6, 811-5.
Lockley, G. (2012) Premature menopause: the experiences of women and their partners. Doctor of Psychology thesis, Swinburne University of Technology, Melbourne.
Locock, L. and Ziebland, S. (2015) Mike Bury: Biographical disruption and long-term and other health conditions. In Collyer, F. (ed.) The Palgrave Handbook of Social Theory in Health, Illness and Medicine. Houndsmill Basingstoke: Palgrave Macmillan, pp. 582-98.
Orshan, S., Furniss, K., Forst, C. and Santoro, N. (2001) The lived experience of premature ovarian failure, Journal of Obstetric, Gynaecological and Neonatal, Nursing, 30, 2, 202-8.
Parton, C., Ussher, J. and Perz, J. (2017) Experiences of menopause in the context of cancer: women’s constructions of gendered subjectivities, Psychology & Health, 32, 9, 1109-26.
Parton, C., Ussher, J. and Perz, J. (2016) Women’s construction of embodiment and the abject sexual body after cancer, Qualitative Health Research, 26, 4, 490-503.
Pasquali, E. (1999) The impact of premature menopause on women’s experience of self, Journal of Holistic Nursing, 17, 4, 346-64.
Pearce, G., Thøgersen-Ntoumani, C., Duda, J. and McKenna, J. (2014) Changing bodies: experiences of women who have undergone a surgically induced menopause, Qualitative Health Research, 24, 6, 738-48.
Perz, J., Ussher, J. and Gilbert, E. (2014) Loss, uncertainty or acceptance: subjective experience of changes to fertility after breast cancer, European Journal of Cancer Care, 23, 514-22.
Riessman, C. (2008) Narrative Methods for the Human Sciences. Thousand Oaks: Sage.
Shuster, L., Rhodes, D., Gostout, B., Grossardt, B., et al. (2010) Premature menopause or early menopause: long-term health consequences, Maturitas, 65, 2, 161-6.
Singer, D. (2012) ‘It's not supposed to be this way’: psychological aspects of a premature menopause, Counselling and Psychotherapy Research, 12, 100-8.
Solbrӕkke, K. and Bondevik, H. (2015) Absent organs - present selves: exploring embodiment and gender identity in young Norwegian women’s accounts of hysterectomy, International Journal of Qualitative Studies on Health and Wellbeing, 10, 26720, https://doi.org/10.3402/qhw.v10.26720.
Williams, S. (2000) Chronic illness as biographical disruption or biographical disruption as chronic illness?, Reflections on a Core Concept, Sociology of Health & Illness, 22, 1, 40-67.
Ussher, J. (2006) ‘The horror of this living decay’: Menopause and the ageing body. In Ussher, J. (ed.) Managing the Monstrous Feminine: Regulating the Reproductive Body. East Sussex: Routledge, pp. 118-50.