Challenges in Using Insurance Claims Data to Identify Palliative Care Patients for a Research Trial.

Home Care Services Hospice and Palliative Care Nursing Humans Insurance Palliative Care
Palliative care insurance claims data patient recruitment research

Journal

Journal of pain and symptom management
ISSN: 1873-6513
Titre abrégé: J Pain Symptom Manage
Pays: United States
ID NLM: 8605836

Informations de publication

Date de publication:
11 2020
Historique:
received: 07 04 2020
revised: 01 06 2020
accepted: 03 06 2020
pubmed: 28 6 2020
medline: 24 6 2021
entrez: 28 6 2020
Statut: ppublish

Résumé

Little is known about strategies for enrolling patients in home-based palliative care programs despite the need to conduct effectiveness studies of this emerging industry. We used medical claims data from Accountable Care Organizations in California to identify patients for a randomized controlled trial of home-based palliative care. We report outcomes from this strategy and the implications for future research. Claims data identified 1357 patients. Research assistants could not reach 986 patients (72.7%), usually because the phone calls went unanswered (38.5%) and many patients' phone numbers were missing or incorrect (16.3%). Of 371 patients reached, 163 opted out. Of 208 patients screened, 177 were ineligible for the trial. Just 10 patients were enrolled. Our findings suggest that medical claims data may not be useful for engaging patients potentially eligible for palliative care research trials. We recommend that alternative identification and recruitment strategies be considered.

Sections du résumé

BACKGROUND
Little is known about strategies for enrolling patients in home-based palliative care programs despite the need to conduct effectiveness studies of this emerging industry.
PURPOSE
We used medical claims data from Accountable Care Organizations in California to identify patients for a randomized controlled trial of home-based palliative care. We report outcomes from this strategy and the implications for future research.
RESULTS
Claims data identified 1357 patients. Research assistants could not reach 986 patients (72.7%), usually because the phone calls went unanswered (38.5%) and many patients' phone numbers were missing or incorrect (16.3%). Of 371 patients reached, 163 opted out. Of 208 patients screened, 177 were ineligible for the trial. Just 10 patients were enrolled.
RECOMMENDATIONS
Our findings suggest that medical claims data may not be useful for engaging patients potentially eligible for palliative care research trials. We recommend that alternative identification and recruitment strategies be considered.

Identifiants

DOI: 10.1016/j.jpainsymman.2020.06.007 PMID: 32592736
pubmed: 32592736
pii: S0885-3924(20)30439-5
doi: 10.1016/j.jpainsymman.2020.06.007
pii:
doi:

Types de publication

Journal Article Randomized Controlled Trial Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1012-1018

Informations de copyright

Copyright © 2020 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

Auteurs

Susan Enguidanos (S)

Leonard Davis School of Gerontology, University of Southern California, Los Angeles, California, USA.

Anna Rahman (A)

Leonard Davis School of Gerontology, University of Southern California, Los Angeles, California, USA. Electronic address: anrahman@protonmail.com.

Torrie Fields (T)

Blue Shield of California, San Francisco, California, USA; VotiveHealth, San Luis Obispo, California, USA.

Wendy Mack (W)

Keck School of Medicine, University of Southern California, Los Angeles, California, USA.

Richard Brumley (R)

Reliance Hospice and Palliative Care, Costa Mesa, California, USA.

Michael Rabow (M)

University of California, San Francisco, California, USA.

Melissa Mert (M)

Keck School of Medicine, University of Southern California, Los Angeles, California, USA.

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Classifications MeSH

questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Services de santé › Services de soins infirmiers › Services de soins à domicile › Challenges in Using Insurance Claims Data to...
questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Services de santé › Soins infirmiers › Soins infirmiers en centre de soins palliatifs › Challenges in Using Insurance Claims Data to...
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Challenges in Using Insurance Claims Data to...
questionsmedicales.fr › Organisations et économie des soins de santé › Économie › Financement organisé › Assurance › Challenges in Using Insurance Claims Data to...
questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Services de santé › Soins aux patients › Soins palliatifs › Challenges in Using Insurance Claims Data to...