Citizen science to further precision medicine: from vision to implementation.
citizen science
community participation
consumer involvement
healthcare systems
patient acceptance of healthcare
research methodology
Journal
JAMIA open
ISSN: 2574-2531
Titre abrégé: JAMIA Open
Pays: United States
ID NLM: 101730643
Informations de publication
Date de publication:
Apr 2020
Apr 2020
Historique:
received:
15
01
2019
revised:
04
09
2019
accepted:
25
10
2019
entrez:
2
7
2020
pubmed:
2
7
2020
medline:
2
7
2020
Statut:
epublish
Résumé
The active involvement of citizen scientists in setting research agendas, partnering with academic investigators to conduct research, analyzing and disseminating results, and implementing learnings from research can improve both processes and outcomes. Adopting a citizen science approach to the practice of precision medicine in clinical care and research will require healthcare providers, researchers, and institutions to address a number of technical, organizational, and citizen scientist collaboration issues. Some changes can be made with relative ease, while others will necessitate cultural shifts, redistribution of power, recommitment to shared goals, and improved communication. This perspective, based on a workshop held at the 2018 AMIA Annual Symposium, identifies current barriers and needed changes to facilitate broad adoption of a citizen science-based approach in healthcare.
Identifiants
pubmed: 32607481
doi: 10.1093/jamiaopen/ooz060
pii: ooz060
pmc: PMC7309265
doi:
Types de publication
Journal Article
Langues
eng
Pagination
2-8Subventions
Organisme : NIBIB NIH HHS
ID : R01 EB025024
Pays : United States
Informations de copyright
© The Author(s) 2019. Published by Oxford University Press on behalf of the American Medical Informatics Association.
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