Development of data dictionary for neonatal intensive care unit: advancement towards a better critical care unit.

data analytics data dictionary electronic health record neonatal intensive care unit neonate health quality indicators

Journal

JAMIA open
ISSN: 2574-2531
Titre abrégé: JAMIA Open
Pays: United States
ID NLM: 101730643

Informations de publication

Date de publication:
Apr 2020
Historique:
received: 21 07 2019
revised: 18 09 2019
accepted: 17 11 2019
entrez: 2 7 2020
pubmed: 2 7 2020
medline: 2 7 2020
Statut: epublish

Résumé

Critical care units (CCUs) with extensive use of various monitoring devices generate massive data. To utilize the valuable information of these devices; data are collected and stored using systems like clinical information system and laboratory information management system. These systems are proprietary, allow limited access to their database and, have the vendor-specific clinical implementation. In this study, we focus on developing an open-source web-based meta-data repository for CCU representing stay of the patient with relevant details. After developing the web-based open-source repository named data dictionary (DD), we analyzed prospective data from 2 sites for 4 months for data quality dimensions (completeness, timeliness, validity, accuracy, and consistency), morbidity, and clinical outcomes. We used a regression model to highlight the significance of practice variations linked with various quality indicators. DD with 1555 fields (89.6% categorical and 11.4% text fields) is presented to cover the clinical workflow of a CCU. The overall quality of 1795 patient days data with respect to standard quality dimensions is 87%. The data exhibit 88% completeness, 97% accuracy, 91% timeliness, and 94% validity in terms of representing CCU processes. The data scores only 67% in terms of consistency. Furthermore, quality indicators and practice variations are strongly correlated ( This study documents DD for standardized data collection in CCU. DD provides robust data and insights for audit purposes and pathways for CCU to target practice improvements leading to specific quality improvements.

Sections du résumé

BACKGROUND BACKGROUND
Critical care units (CCUs) with extensive use of various monitoring devices generate massive data. To utilize the valuable information of these devices; data are collected and stored using systems like clinical information system and laboratory information management system. These systems are proprietary, allow limited access to their database and, have the vendor-specific clinical implementation. In this study, we focus on developing an open-source web-based meta-data repository for CCU representing stay of the patient with relevant details.
METHODS METHODS
After developing the web-based open-source repository named data dictionary (DD), we analyzed prospective data from 2 sites for 4 months for data quality dimensions (completeness, timeliness, validity, accuracy, and consistency), morbidity, and clinical outcomes. We used a regression model to highlight the significance of practice variations linked with various quality indicators.
RESULTS RESULTS
DD with 1555 fields (89.6% categorical and 11.4% text fields) is presented to cover the clinical workflow of a CCU. The overall quality of 1795 patient days data with respect to standard quality dimensions is 87%. The data exhibit 88% completeness, 97% accuracy, 91% timeliness, and 94% validity in terms of representing CCU processes. The data scores only 67% in terms of consistency. Furthermore, quality indicators and practice variations are strongly correlated (
CONCLUSION CONCLUSIONS
This study documents DD for standardized data collection in CCU. DD provides robust data and insights for audit purposes and pathways for CCU to target practice improvements leading to specific quality improvements.

Identifiants

pubmed: 32607484
doi: 10.1093/jamiaopen/ooz064
pii: ooz064
pmc: PMC7309238
doi:

Types de publication

Journal Article

Langues

eng

Pagination

21-30

Informations de copyright

© The Author(s) 2019. Published by Oxford University Press on behalf of the American Medical Informatics Association.

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Auteurs

Harpreet Singh (H)

Child Health Imprints (CHIL) Pte. Ltd, Singapore, Singapore.

Ravneet Kaur (R)

Child Health Imprints (CHIL) Pte. Ltd, Singapore, Singapore.

Satish Saluja (S)

Department of Neonatology, Sir Ganga Ram Hospital, New Delhi, India.

Su Jin Cho (SJ)

Department of pediatrics, College of Medicine, Ewha Woman's University Seoul, Seoul, Republic of Korea.

Avneet Kaur (A)

Department of Pediatrics, Apollo Hospitals, New Delhi, India.

Ashish Kumar Pandey (AK)

Department of Mathematics, Indraprastha Institute of Information Technology, New Delhi, India.

Shubham Gupta (S)

Child Health Imprints (CHIL) Pte. Ltd, Singapore, Singapore.

Ritu Das (R)

Child Health Imprints (CHIL) Pte. Ltd, Singapore, Singapore.

Praveen Kumar (P)

Department of Neonatology, PGIMER, Chandigarh, India.

Jonathan Palma (J)

Department of Pediatrics, Stanford University, Stanford, California, USA.

Gautam Yadav (G)

Department of Pediatrics, Kalawati Hospital, Rewari, India.

Yao Sun (Y)

Department of pediatrics, UCSF Benioff Children's Hospital, William H. Tooley Intensive Care Nursery, San Francisco, California, USA.

Classifications MeSH