Developing a pediatric pain data repository.
data repository
electronic health records
pain conditions
patient-reported outcomes
pediatric populations
Journal
JAMIA open
ISSN: 2574-2531
Titre abrégé: JAMIA Open
Pays: United States
ID NLM: 101730643
Informations de publication
Date de publication:
Apr 2020
Apr 2020
Historique:
received:
12
07
2019
revised:
12
09
2019
accepted:
21
10
2019
entrez:
2
7
2020
pubmed:
2
7
2020
medline:
2
7
2020
Statut:
epublish
Résumé
The management of pediatric pain typically consists of individualized treatment plans and interventions that have not been systematically evaluated. There is an emerging need to create systems that can support the translation of clinical discoveries, facilitate the assessment of current interventions, and improve the collection of patient-centered data beyond routine clinical information. We present the development of the pediatric pain data repository, a custom-built system developed at Boston Children's Hospital by a multidisciplinary pain treatment service. The Repository employs a web platform to collect standardized patient-reported outcomes and integrates this with electronic medical record data. To date, we have collected information on 2577 patients and anticipate adding approximately 500 new patients per year. Major strengths of the Repository include collection of extensive longitudinal patient-reported outcomes, automated clinical data abstraction, and integration of the system into clinical workflows to support medical decision making.
Identifiants
pubmed: 32607485
doi: 10.1093/jamiaopen/ooz062
pii: ooz062
pmc: PMC7309240
doi:
Types de publication
Journal Article
Langues
eng
Pagination
31-36Informations de copyright
© The Author(s) 2019. Published by Oxford University Press on behalf of the American Medical Informatics Association.
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