Quality of life of adolescents with cerebral palsy: agreement between self-report and caregiver's report.
Journal
Revista latino-americana de enfermagem
ISSN: 1518-8345
Titre abrégé: Rev Lat Am Enfermagem
Pays: Brazil
ID NLM: 9420934
Informations de publication
Date de publication:
2020
2020
Historique:
received:
16
08
2019
accepted:
14
03
2020
entrez:
2
7
2020
pubmed:
2
7
2020
medline:
23
7
2020
Statut:
epublish
Résumé
to assess the quality of life (QOL) of adolescents with cerebral palsy (CP) by self-report and by the caregiver's report, and to analyze the agreement between these reports.cross-sectional study conducted with 101 adolescents with CP and 101 caregivers. Both answered the Pediatric Quality of Life Inventory (PedsQL), module 4.0 - Generic (PedsQL 4.0) and module 3.0 - PC (PedsQL 3.0). Agreement between reports was analyzed using the Mann-Whitney test and the intra-class correlation coefficient (ICC) (p<0.05). the lowest scores were in physical health, school activities and fatigue in the self-report. The lowest scores were in physical health and daily activities, in the caregivers' report. Perceptions among adolescents and caregivers differed in physical health, movement and equilibrium, daily and school activities, with a lower score for caregivers in all of them. The agreement between the self-report and the caregivers' report was poor (ICC<0.44) and in both instruments, the caregivers' report was less optimistic. physical health is the most impaired domain of the QOL of adolescents with CP, both in the self-report and in the caregivers' report. However, there is poor agreement between these reports, emphasizing that the use of the caregivers' report should be cautious.
Identifiants
pubmed: 32609264
pii: S0104-11692020000100357
doi: 10.1590/1518-8345.3928.3300
pmc: PMC7332252
pii:
doi:
Types de publication
Journal Article
Langues
eng
por
spa
Pagination
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