Whole Person, Whole Journey: Developing a Person-Centred Regional Dementia Strategy.

aging care partners dementia strategy dyad interviews enquête sur les priorités entretiens en dyade partenaires de soins personnes atteintes de démence persons with dementia priority survey qualitative research recherche qualitative stratégie en matière de démence vieillissement

Journal

Canadian journal on aging = La revue canadienne du vieillissement
ISSN: 1710-1107
Titre abrégé: Can J Aging
Pays: Canada
ID NLM: 8708560

Informations de publication

Date de publication:
09 2021
Historique:
pubmed: 8 7 2020
medline: 26 10 2021
entrez: 8 7 2020
Statut: ppublish

Résumé

We present the development of a regional dementia strategy in Southwestern Ontario, Canada. We worked with stakeholders in a regional health authority to develop a dementia strategy. We conducted interviews with persons with dementia and their care partners (n = 26) and health care administrators and policy makers (n = 33); and administered a priority-setting survey (n = 64). Both participant groups identified provider compassion, professionalism, and care in the early stages of dementia as system strengths. Both groups also highlighted a need for more integration and coordination, a need for more person-centred care, support for care partners, and more flexibility in the provision and receipt of services. The highest-ranked priorities were improving care partner support, improving access to care, and improving system-wide quality. We integrate these strengths, needs, and priorities in a strategic framework, "Whole Person, Whole Journey". Organizations developing a dementia strategy may use this framework as a springboard for their own work.

Identifiants

pubmed: 32631471
doi: 10.1017/S071498082000015X
pii: S071498082000015X
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

436-450

Auteurs

Paul Stolee (P)

School of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario.

Jessica Ashbourne (J)

School of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario.

Jacobi Elliott (J)

School of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario.

Sarah Main (S)

School of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario.

Nicole Holland (N)

School of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario.

Cole Edick (C)

School of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario.

Courtney Ropp (C)

School of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario.

Catherine Tong (C)

School of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario.

Sheila Bodemer (S)

School of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario.

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