Constitutional mismatch repair deficiency-associated brain tumors: report from the European C4CMMRD consortium.

MMR biallelic germline mutation brain tumor café-au-lait spot childhood cancer constitutional mismatch repair deficiency high-grade glioma predisposition

Journal

Neuro-oncology advances
ISSN: 2632-2498
Titre abrégé: Neurooncol Adv
Pays: England
ID NLM: 101755003

Informations de publication

Date de publication:
Historique:
entrez: 10 7 2020
pubmed: 10 7 2020
medline: 10 7 2020
Statut: epublish

Résumé

Malignant brain tumors (BT) are among the cancers most frequently associated with constitutional mismatch repair deficiency (CMMRD), a rare childhood cancer predisposition syndrome resulting from biallelic germline mutations in mismatch repair genes. This study analyzed data from the European "Care for CMMRD" (C4CMMRD) database to describe their clinical characteristics, treatments, and outcome with the aim of improving its diagnosis/treatment. Retrospective analysis of data on patients with CMMRD and malignant BT from the C4CMMRD database up to July 2017. Among the 87 registered patients, 49 developed 56 malignant BTs: 50 high-grade gliomas (HGG) (with giant multinucleated cells in 16/21 histologically reviewed tumors) and 6 embryonal tumors. The median age at first BT was 9.2 years [1.1-40.6], with nine patients older than 18. Twenty-seven patients developed multiple malignancies (including16 before the BT). Most patients received standard treatment, and eight patients immunotherapy for relapsed HGG. The 3- and 5-year overall survival (OS) rates were 30% (95% CI: 19-45) and 22% (95% CI: 12-37) after the first BT, with worse prognosis for HGG (3-year OS = 20.5%). Six patients were alive (median follow-up 2.5 years) and 43 dead (38 deaths, 88%, were BT-related). Other CMMRD-specific features were café-au-lait macules (40/41), multiple BTs (5/15), developmental brain anomalies (11/15), and consanguinity (20/38 families). Several characteristics could help suspecting CMMRD in pediatric malignant BTs: giant cells on histology, previous malignancies, parental consanguinity, café-au-lait macules, multiple BTs, and developmental brain anomalies. The prognosis of CMMRD-associated BT treated with standard therapies is poor requiring new therapeutic up-front approaches.

Sections du résumé

BACKGROUND BACKGROUND
Malignant brain tumors (BT) are among the cancers most frequently associated with constitutional mismatch repair deficiency (CMMRD), a rare childhood cancer predisposition syndrome resulting from biallelic germline mutations in mismatch repair genes. This study analyzed data from the European "Care for CMMRD" (C4CMMRD) database to describe their clinical characteristics, treatments, and outcome with the aim of improving its diagnosis/treatment.
METHODS METHODS
Retrospective analysis of data on patients with CMMRD and malignant BT from the C4CMMRD database up to July 2017.
RESULTS RESULTS
Among the 87 registered patients, 49 developed 56 malignant BTs: 50 high-grade gliomas (HGG) (with giant multinucleated cells in 16/21 histologically reviewed tumors) and 6 embryonal tumors. The median age at first BT was 9.2 years [1.1-40.6], with nine patients older than 18. Twenty-seven patients developed multiple malignancies (including16 before the BT). Most patients received standard treatment, and eight patients immunotherapy for relapsed HGG. The 3- and 5-year overall survival (OS) rates were 30% (95% CI: 19-45) and 22% (95% CI: 12-37) after the first BT, with worse prognosis for HGG (3-year OS = 20.5%). Six patients were alive (median follow-up 2.5 years) and 43 dead (38 deaths, 88%, were BT-related). Other CMMRD-specific features were café-au-lait macules (40/41), multiple BTs (5/15), developmental brain anomalies (11/15), and consanguinity (20/38 families).
CONCLUSIONS CONCLUSIONS
Several characteristics could help suspecting CMMRD in pediatric malignant BTs: giant cells on histology, previous malignancies, parental consanguinity, café-au-lait macules, multiple BTs, and developmental brain anomalies. The prognosis of CMMRD-associated BT treated with standard therapies is poor requiring new therapeutic up-front approaches.

Identifiants

pubmed: 32642664
doi: 10.1093/noajnl/vdz033
pii: vdz033
pmc: PMC7212899
doi:

Types de publication

Journal Article

Langues

eng

Pagination

vdz033

Informations de copyright

© The Author(s) 2019. Published by Oxford University Press, the Society for Neuro-Oncology and the European Association of Neuro-Oncology.

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Auteurs

Léa Guerrini-Rousseau (L)

Department of Pediatric and Adolescents Oncology, Gustave Roussy Cancer Center, Paris-Saclay University, Villejuif, France.
Gustave Roussy Cancer Center, Unite Mixte de Recherche 8203, Centre National de la Recherche Scientifique, Paris-Saclay University, Villejuif, France.

Pascale Varlet (P)

Department of Neuropathology, Sainte Anne Hospital, Rene Descartes University, Paris, France.

Chrystelle Colas (C)

Curie Institute, Genetic Department, Paris, France.

Felipe Andreiuolo (F)

Department of Neuropathology, Sainte Anne Hospital, Rene Descartes University, Paris, France.

Franck Bourdeaut (F)

Curie Institute, SIREDO Cancer Center (Care, innovation and research in pediatric, adolescents and young adults oncology), Paris, France.

Karin Dahan (K)

Hôpital Universitaire Reine Fabiola (HUDERF), Genetic department, Université Libre de Belgique (ULB), Brussels, Belgium.

Christine Devalck (C)

Department of Hemato-Oncology, Hôpital Universitaire Reine Fabiola (HUDERF), Université Libre de Belgique (ULB). Brussels - Belgium.

Cécile Faure-Conter (C)

Centre Leon Berard, Pediatric hemato-oncology institute (IHOPe), Lyon, France.

Maurizio Genuardi (M)

Fondazione Policlinico Universitario A. Gemelli IRCCS, UOC Genetica Medica, Rome, Italy.
Istituto di Medicina Genomica, Università Cattolica del Sacro Cuore, Rome, Italy.

Yael Goldberg (Y)

Raphael Recanati Genetics Institute, Beilinson Hospital, Rabin Medical Center, Petach Tikva, Israel.

Michaela Kuhlen (M)

Department of Pediatric Oncology, University Children´s Hospital, Hematology and Clinical Immunology Duesseldorf, Germany.

Salma Moalla (S)

Department of Radiology, Gustave Roussy Cancer Center, Université Paris-Saclay, Villejuif, France.

Enrico Opocher (E)

Azienda Ospedaliera di Padova, Pediatric Oncology & Hematology, Padova, Italy.

Vanessa Perez-Alonso (V)

Hospital Universitario Doce de Octubre, Unidad de Oncología Pediátrica, Madrid, Spain.

Astrid Sehested (A)

Copenhagen University Hospital, Department of pediatrics and adolescent medicin, Copenhagen, Denmark.

Irene Slavc (I)

Department of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.

Sheila Unger (S)

Centre Hospitalier Universitaire Vaudois, Division of Genetic Medicine, University of Lausanne, Lausanne Switzerland.

Katharina Wimmer (K)

Institute of Human Genetics, Medical University Innsbruck, Innsbruck, Austria.

Jacques Grill (J)

Department of Pediatric and Adolescents Oncology, Gustave Roussy Cancer Center, Paris-Saclay University, Villejuif, France.
Gustave Roussy Cancer Center, Unite Mixte de Recherche 8203, Centre National de la Recherche Scientifique, Paris-Saclay University, Villejuif, France.

Laurence Brugières (L)

Department of Pediatric and Adolescents Oncology, Gustave Roussy Cancer Center, Paris-Saclay University, Villejuif, France.

Classifications MeSH