Quality of Life Assessments in Individuals With Young-Onset Dementia and Their Caregivers.
caregiver
caregiver burden
dementia
quality of life
young-onset dementia
Journal
Journal of geriatric psychiatry and neurology
ISSN: 0891-9887
Titre abrégé: J Geriatr Psychiatry Neurol
Pays: United States
ID NLM: 8805645
Informations de publication
Date de publication:
09 2021
09 2021
Historique:
pubmed:
10
7
2020
medline:
29
10
2021
entrez:
10
7
2020
Statut:
ppublish
Résumé
Quality of life (QoL) has seldom been investigated or explicitly measured in young-onset dementia (YoD). The aims of this study were (1) to investigate and compare QoL self- and proxy reports in a sample of YoD patients and caregivers using different conceptual assessments of QoL and (2) to examine the relationship between caregiver QoL and both burden and mental health. There were 52 participants (26 YoD patient-caregiver dyads). The design was cross-sectional and part of a larger longitudinal prospective cohort study of YoD patients and caregivers. Primary measures included generic QoL (World Health Organization Quality of Life-short version [WHOQOL-BREF]), dementia-specific QoL (Quality of Life in Alzheimer's Disease Scale [QoL-AD]), health-related QoL (EQ5D), and a single-item QoL measure. Secondary measures included caregiver burden (Zarit Burden Index), mental health (Hospital Anxiety and Depression Scale), and dementia severity (Clinical Dementia Rating). Patient QoL self-reports were higher than caregiver proxy reports on the QoL-AD ( Patients and caregivers show a disparity in QoL reports, with patients tending to report higher QoL. Caregiver burden, anxiety, and depression should be areas targeted for interventions when supporting caregivers.
Sections du résumé
BACKGROUND
Quality of life (QoL) has seldom been investigated or explicitly measured in young-onset dementia (YoD). The aims of this study were (1) to investigate and compare QoL self- and proxy reports in a sample of YoD patients and caregivers using different conceptual assessments of QoL and (2) to examine the relationship between caregiver QoL and both burden and mental health.
METHODS
There were 52 participants (26 YoD patient-caregiver dyads). The design was cross-sectional and part of a larger longitudinal prospective cohort study of YoD patients and caregivers. Primary measures included generic QoL (World Health Organization Quality of Life-short version [WHOQOL-BREF]), dementia-specific QoL (Quality of Life in Alzheimer's Disease Scale [QoL-AD]), health-related QoL (EQ5D), and a single-item QoL measure. Secondary measures included caregiver burden (Zarit Burden Index), mental health (Hospital Anxiety and Depression Scale), and dementia severity (Clinical Dementia Rating).
RESULTS
Patient QoL self-reports were higher than caregiver proxy reports on the QoL-AD (
DISCUSSION
Patients and caregivers show a disparity in QoL reports, with patients tending to report higher QoL. Caregiver burden, anxiety, and depression should be areas targeted for interventions when supporting caregivers.
Identifiants
pubmed: 32643511
doi: 10.1177/0891988720933348
pmc: PMC8326890
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
426-433Subventions
Organisme : Department of Health
Pays : United Kingdom
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