Patients' Experiences With Illness, Treatment, and Decision-Making for Esophageal Cancer: A Qualitative Study in a Danish Hospital Setting.
Denmark
decision-making
esophageal cancer
interview
participant observation
patients’ experiences
person-centered health care
qualitative research
Journal
Global qualitative nursing research
ISSN: 2333-3936
Titre abrégé: Glob Qual Nurs Res
Pays: United States
ID NLM: 101666563
Informations de publication
Date de publication:
Historique:
received:
20
02
2020
revised:
22
05
2020
accepted:
26
05
2020
entrez:
14
7
2020
pubmed:
14
7
2020
medline:
14
7
2020
Statut:
epublish
Résumé
Patients with curable esophageal cancer or cancer in the esophageal junction face several challenges during the course of their treatment because of the burden of uncertainty in their prognoses and complexity and side effects of the treatment. The aim of this study is to explore patient experiences with illness, treatment, and decision-making in the context of esophageal cancer. A qualitative approach using phenomenological-hermeneutical methodology was used. Data consisted of participant observations and interviews. We analyzed the data based on Ricoeur's theory of interpretation. The results show that patients with esophageal cancer are putting their ordinary lives on hold and experiencing the meal as a battleground during treatment. Patients strive to maintain autonomy, gain control, and take ownership. The results emphasize the need for a systematic approach to establish an ongoing dialogue with patients throughout the course of treatment.
Identifiants
pubmed: 32656299
doi: 10.1177/2333393620935098
pii: 10.1177_2333393620935098
pmc: PMC7328478
doi:
Types de publication
Journal Article
Langues
eng
Pagination
2333393620935098Informations de copyright
© The Author(s) 2020.
Déclaration de conflit d'intérêts
Declaration of Conflicting Interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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