The double-edged sword of digital self-care: Physician perspectives from Northern Germany.

Datafication of health Digital self-care Doctor-patient relationship Germany Participation Patient empowerment

Journal

Social science & medicine (1982)
ISSN: 1873-5347
Titre abrégé: Soc Sci Med
Pays: England
ID NLM: 8303205

Informations de publication

Date de publication:
09 2020
Historique:
revised: 10 06 2020
accepted: 25 06 2020
pubmed: 14 7 2020
medline: 28 4 2021
entrez: 14 7 2020
Statut: ppublish

Résumé

Increasingly, patients are expected to take initiative and care for themselves through practices of digital self-care: by generating data, by looking for people who can help them make sense of the information, and by being the main actors in disease prevention. Equipped with smart phones and other tools to collect data on various aspects of their bodies and lives from brain waves to activity to diet, patients are expected to prevent lifestyle diseases and diagnose their own medical problems, heralding an entirely new model of care within doctor-patient relationships. In this article we explore physician perspectives on how digital self-care practices are encountered, understood, and incorporated (or not) in the health care system. We carried out in-depth, semi-structured interviews with 15 doctors in Northern Germany in 2018 in order to explore how they included digital data in clinical decisions, how they understood practices of digital self-care, and how they saw these practices affect doctor-patient relationships. Our findings indicate notable frictions between narratives of 'e-patients' and digitally-empowered people in public media and scholarly literature on the one hand, and what doctors reportedly experience in their own practice on the other. We conclude that tech-forward ideas surrounding lay practices of medical emancipation do not 'travel lightly' across different contexts, but are taken up unevenly in and outside of the clinic. Moreover, the personal relationships through which digital self-care practices are undertaken remain central to the meaningful and safe application of new technologies and applications - something that often escapes debates over patient empowerment and digital technology.

Identifiants

pubmed: 32659512
pii: S0277-9536(20)30393-2
doi: 10.1016/j.socscimed.2020.113174
pii:
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

113174

Informations de copyright

Copyright © 2020 The Authors. Published by Elsevier Ltd.. All rights reserved.

Auteurs

Amelia Fiske (A)

Institute of History and Ethics in Medicine, Technical, University Munich, Munich, Germany. Electronic address: a.fiske@tum.de.

Alena Buyx (A)

Ethics in Medicine and Health Technologies, Institute of History and Ethics in Medicine, Technical University Munich, Munich, Germany.

Barbara Prainsack (B)

Department of Political Science, University of Vienna, Austria; Department of Global Health & Social Medicine, King's College London, United Kingdom. Electronic address: barbara.prainsack@univie.ac.at.

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Classifications MeSH