Remote Management for Peritoneal Dialysis: A Qualitative Study of Patient, Care Partner, and Clinician Perceptions and Priorities in the United States and the United Kingdom.

Peritoneal dialysis patient-centered reporting qualitative remote management

Journal

Kidney medicine
ISSN: 2590-0595
Titre abrégé: Kidney Med
Pays: United States
ID NLM: 101756300

Informations de publication

Date de publication:
Historique:
entrez: 1 8 2020
pubmed: 1 8 2020
medline: 1 8 2020
Statut: epublish

Résumé

Peritoneal dialysis (PD) is a home-based kidney replacement therapy used by a growing number of patients with kidney failure. This qualitative study explores the impact of remote management technologies on PD treatment priorities of patients, their care partners, and clinicians. Qualitative study, designed and conducted in collaboration with a stakeholder panel that included patients, patient advocates, care partners, and health care professionals. 13 health care providers, 13 patients, and 4 care partners with at least 3 months experience with PD were recruited from the United States and United Kingdom through postings in PD clinics, websites, and social media. Semi-structured telephone interviews with a purposive sample of participants. Inductive thematic development adapted from a grounded theory approach through analysis of interview transcripts by 3 independent coders. 4 main themes about PD treatments emerged that enabled evaluation of remote management: (1) impact of PD on everyday life, (2) simplifying treatment processes, (3) awareness and visibility of at-home treatments, and (4) support for managing treatments. The relative importance of these themes differed between patients/care partners and health care providers and by use of remote management cyclers. Remote management is new to PD, mirrored in the limited penetration of use in the study sample, suggestive of findings reflecting early adoption. Participants welcomed technological advances such as remote management for PD, although priorities differed by stakeholder group. Remote management could potentially influence health care provider decisions about patient suitability for PD, while patients/care partners prioritized pre-emptive and early treatment adjustments. Currently, decisions about access to remote management are outside the control of patients and families, but this may change with more widespread use.

Identifiants

pubmed: 32734216
doi: 10.1016/j.xkme.2019.07.014
pii: S2590-0595(19)30114-1
pmc: PMC7380395
doi:

Types de publication

Journal Article

Langues

eng

Pagination

354-365

Commentaires et corrections

Type : CommentIn

Informations de copyright

© 2019 The Authors.

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Auteurs

Lalita Subramanian (L)

Arbor Research Collaborative for Health, Ann Arbor, MI.
University of Michigan, Ann Arbor, MI.

Rosalind Kirk (R)

Independent Qualitative Research Consultant, United States and United Kingdom, Ann Arbor, MI.

Tony Cuttitta (T)

Arbor Research Collaborative for Health, Ann Arbor, MI.

Nicole Bryant (N)

Stakeholder panel, RM4PD project, Ann Arbor, MI.

Kimberly Fox (K)

Arbor Research Collaborative for Health, Ann Arbor, MI.

Margie McCall (M)

Stakeholder panel, RM4PD project, Ann Arbor, MI.

Erica Perry (E)

Stakeholder panel, RM4PD project, Ann Arbor, MI.

June Swartz (J)

Stakeholder panel, RM4PD project, Ann Arbor, MI.

Yanko Restovic (Y)

Stakeholder panel, RM4PD project, Ann Arbor, MI.

Allison Jeter (A)

Stakeholder panel, RM4PD project, Ann Arbor, MI.

Angelito Bernardo (A)

Baxter Healthcare Corporation, Deerfield, IL.

Bruce Robinson (B)

Arbor Research Collaborative for Health, Ann Arbor, MI.

Jeffrey Perl (J)

Arbor Research Collaborative for Health, Ann Arbor, MI.
University of Toronto, Toronto, ON, Canada.

Ronald Pisoni (R)

Arbor Research Collaborative for Health, Ann Arbor, MI.

Rachel L Perlman (RL)

Arbor Research Collaborative for Health, Ann Arbor, MI.
University of Michigan, Ann Arbor, MI.

Classifications MeSH