Understanding 'risk' in families living with mixed blood-borne viral infection status: The doing and undoing of 'difference'.
HIV
families
performativity
risk
serodiscordance
viral hepatitis
Journal
Health (London, England : 1997)
ISSN: 1461-7196
Titre abrégé: Health (London)
Pays: England
ID NLM: 9800465
Informations de publication
Date de publication:
05 2022
05 2022
Historique:
pubmed:
4
8
2020
medline:
19
4
2022
entrez:
4
8
2020
Statut:
ppublish
Résumé
'Risk' has long been at the centre of expert and popular perceptions of transmissible and stigmatised blood-borne viral infections, such as HIV and viral hepatitis. There is a substantial body of research on transmission risk among couples with mixed viral infection status (serodiscordance). But we know very little about how families affected by HIV and viral hepatitis engage with understandings of infectiousness and how these shape family relationships in different ways. Guided by cultural theories of risk that build on Mary Douglas' work, we draw on qualitative interviews to explore the 'performativity' of risk in serodiscordant families in Australia. We show how the 'doing' of risk could be constitutive of difference, which unsettled the family connection or deepened existing fault lines. Conversely, the 'undoing' of risk enabled the preservation of the family bond by rejecting difference and reframing risk as an external threat to the family in the form of stigma. We conclude that risk in the context of serodiscordant families had relational implications far beyond viral transmission and consider what our findings might mean for service provision and health promotion campaigns related to blood-borne viruses.
Identifiants
pubmed: 32744122
doi: 10.1177/1363459320946469
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM