Understanding 'risk' in families living with mixed blood-borne viral infection status: The doing and undoing of 'difference'.


Journal

Health (London, England : 1997)
ISSN: 1461-7196
Titre abrégé: Health (London)
Pays: England
ID NLM: 9800465

Informations de publication

Date de publication:
05 2022
Historique:
pubmed: 4 8 2020
medline: 19 4 2022
entrez: 4 8 2020
Statut: ppublish

Résumé

'Risk' has long been at the centre of expert and popular perceptions of transmissible and stigmatised blood-borne viral infections, such as HIV and viral hepatitis. There is a substantial body of research on transmission risk among couples with mixed viral infection status (serodiscordance). But we know very little about how families affected by HIV and viral hepatitis engage with understandings of infectiousness and how these shape family relationships in different ways. Guided by cultural theories of risk that build on Mary Douglas' work, we draw on qualitative interviews to explore the 'performativity' of risk in serodiscordant families in Australia. We show how the 'doing' of risk could be constitutive of difference, which unsettled the family connection or deepened existing fault lines. Conversely, the 'undoing' of risk enabled the preservation of the family bond by rejecting difference and reframing risk as an external threat to the family in the form of stigma. We conclude that risk in the context of serodiscordant families had relational implications far beyond viral transmission and consider what our findings might mean for service provision and health promotion campaigns related to blood-borne viruses.

Identifiants

pubmed: 32744122
doi: 10.1177/1363459320946469
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

284-301

Auteurs

Anthony Kj Smith (AK)

Centre for Social Research in Health, UNSW, Australia.

Jack Wallace (J)

Burnett Institute, Australia.

Kylie Valentine (K)

Social Policy Research Centre, UNSW, Australia.

Joanne Bryant (J)

Centre for Social Research in Health, UNSW, Australia.

Myra Hamilton (M)

Social Policy Research Centre, UNSW, Australia.

Christy E Newman (CE)

Centre for Social Research in Health, UNSW, Australia.

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