Effectiveness and family experiences of interventions promoting partnerships between families and pediatric and neonatal intensive care units: a mixed methods systematic review protocol.
Journal
JBI evidence synthesis
ISSN: 2689-8381
Titre abrégé: JBI Evid Synth
Pays: United States
ID NLM: 101764819
Informations de publication
Date de publication:
06 2020
06 2020
Historique:
entrez:
20
8
2020
pubmed:
20
8
2020
medline:
15
5
2021
Statut:
ppublish
Résumé
This mixed methods systematic review examines the effectiveness and family experiences of interventions that promote partnerships between parents and the multidisciplinary health care team in pediatric and neonatal intensive care units. The hospitalization of a child or infant in an intensive care unit can have considerable negative effects on them and their family. Family members can experience increased stress, anxiety or depression and detrimental impacts on quality of life and family functioning. Interventions that promote families as health care partners may improve negative outcomes arising from intensive care hospitalization. The review will include family members of pediatric or neonatal patients hospitalized in an intensive care unit. It will focus on interventions that promote partnership between families and multidisciplinary health care teams in pediatric and neonatal intensive care units and the family's experiences of these interventions. The outcomes of interest are stress, anxiety, depression, quality of life, family functioning, family empowerment or satisfaction with family-centered care. The proposed review will follow the JBI methodology for convergent segregated mixed methods systematic reviews. It will search for published and unpublished studies from eight different sources. Studies will be reviewed by title and abstract and potentially eligible studies will have full text retrieved for further review. Studies meeting the inclusion criteria will be assessed on methodological quality and the data will be extracted. Separate quantitative and qualitative analysis and synthesis will be performed and an overall analysis will be presented. PROSPERO CRD42019137834.
Identifiants
pubmed: 32813377
doi: 10.11124/JBISRIR-D-19-00277
pii: 02174543-202006000-00008
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
1292-1298Références
Manning JC, Pinto NP, Rennick JE, Colville G, Curley MAQ. conceptualizing post intensive care syndrome in children-The PICS-p Framework. Pediatr Crit Care Med 2018; 19 (4):298–300.
Davidson JE, Aslakson RA, Long AC, Puntillo KA, Kross EK, Hart J, et al. Guidelines for family-centered care in the neonatal, pediatric, and adult ICU. Crit Care Med 2017; 45 (1):103–128.
Lopes-Junior LC, Rosa M, Lima RAG. Psychological and psychiatric outcomes following PICU admission: a systematic review of cohort studies. Pediatr Crit Care Med 2018; 19 (1):e58–e67.
Balluffi A, Kassam-Adams N, Kazak A, Tucker M, Dominguez T, Helfaer M. Traumatic stress in parents of children admitted to the pediatric intensive care unit. Pediatr Crit Care Med 2004; 5 (6):547–553.
Herrup EA, Wieczorek B, Kudchadkar SR. Characteristics of postintensive care syndrome in survivors of pediatric critical illness: a systematic review. World J Crit Care Med 2017; 6 (2):124–134.
Nickel WK, Weinberger SE, Guze PA. Patient partnership in healthcare committee of the American College of Physicians. Principles for patient and family partnership in care: an American College of Physicians Position Paper. Ann Intern Med 2018; 169 (11):796–799.
Melnyk BM, Alpert-Gillis L, Feinstein NF, Crean HF, Johnson J, Fairbanks E, et al. Creating opportunities for parent empowerment: program effects on the mental health/coping outcomes of critically ill young children and their mothers. Pediatrics 2004; 113 (6):e597–607.
O’Brien K, Robson K, Bracht M, Cruz M, Lui K, Alvaro R, et al. Effectiveness of family integrated care in neonatal intensive care units on infant and parent outcomes: a multicentre, multinational, cluster-randomised controlled trial. Lancet Child Adolesc Health 2018; 2 (4):245–254.
Uhm JY, Kim HS. Impact of the mother-nurse partnership programme on mother and infant outcomes in paediatric cardiac intensive care unit. Intensive Crit Care Nurs 2019; 50:79–87.
Kynoch K, Chang A, Coyer F, McArdle A. The effectiveness of interventions to meet family needs of critically ill patients in an adult intensive care unit: a systematic review update. JBI Database System Rev Implement Rep 2016; 14 (3):181–234.
Mitchell ML, Coyer F, Kean S, Stone R, Murfield J, Dwan T. Patient, family-centred care interventions within the adult ICU setting: an integrative review. Aust Crit Care 2016; 29 (4):179–193.
Reis MD, Rempel GR, Scott SD, Brady-Fryer BA, Van Aerde J. Developing nurse/parent relationships in the NICU through negotiated partnership. J Obstet Gynecol Neonatal Nurs 2010; 39 (6):675–683.
Brødsgaard A, Pedersen JT, Larsen P, Weis J. Parents’ and nurses’ experiences of partnership in neonatal intensive care units: a qualitative review and meta-synthesis. J Clin Nurs 2019; 28 (17–18):3117–3139.
Law E, Fisher E, Eccleston C, Palermo TM. Psychological interventions for parents of children and adolescents with chronic illness. Cochrane Database Syst Rev 2019; (3):CD009660.
Ding X, Zhu L, Zhang R, Wang L, Wang TT, Latour JM. Effects of family-centred care interventions on preterm infants and parents in neonatal intensive care units: a systematic review and meta-analysis of randomised controlled trials. Aust Crit Care 2019; 32 (1):63–75.
Childs G. Effectiveness of psychological interventions in parents of NICU infants PROSPERO 2017 CRD42017054677. 2017.
McAndrew N, Guttormson J, Jerofke T, Hetland B, Costa D, Harding E. A systematic review of family engagement interventions in adult, pediatric and neonatal intensive care units PROSPERO 2018 CRD42018109259. 2018.
Franck LS, O’Brien K. The evolution of family-centered care: from supporting parent-delivered interventions to a model of family integrated care. Birth Defects Res 2019; 111 (15):1044–1059.
Ashcraft LE, Asato M, Houtrow AJ, Kavalieratos D, Miller E, Ray KN. Parent empowerment in pediatric healthcare settings: a systematic review of observational studies. Patient Research 2019; 12 (2):199–212.
Johnson B, Abraham M, Conway J, Simmons L, Edgman-Levitan S, Sodomka P, et al. Partnering with patients and families to design a patient- and family-centered health care system: recommendations and promising practices. Institute for Family-Centered Care and Institute for Healthcare Improvement 2008.
Marcus KL, Henderson CM, Boss RD. chronic critical illness in infants and children: a speculative synthesis on adapting ICU care to meet the needs of long-stay patients. Pediatr Crit Care Med 2016; 17 (8):743–752.
Marshall JC, Bosco L, Adhikari NK, Connolly B, Diaz JV, Dorman T, et al. What is an intensive care unit? A report of the task force of the World Federation of Societies of Intensive and Critical Care Medicine. J Crit Care 2017; 37:270–276.
Lizarondo L, Stern C, Carrier J, Godfrey C, Rieger K, Salmond S, et al. Chapter 8: Mixed methods systematic reviews. In: Aromataris, E, Munn, Z, editors. Joanna Briggs Institute Reviewer's Manual [Internet]. Adelaide: JBI; 2017 [cited 10 May 2019]. Available from: https://reviewersmanual.joannabriggs.org/.
Munn Z, Aromataris E, Tufanaru C, Stern C, Porritt K, Farrow J, et al. The development of software to support multiple systematic review types: the Joanna Briggs Institute System for the Unified Management, Assessment and Review of Information (JBI SUMARI). Int J Evid Based Healthc 2019; 17 (1):36–43.
Moher D, Liberati A, Tetzlaff J, Altman DG. The PRISMA Group. Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement. PLoS Med 2009; 6 (7):e1000097.
Tufanaru C, Munn Z, Stephenson M, Aromataris E. Fixed or random effects meta-analysis? Common methodological issues in systematic reviews of effectiveness 2015; 13 (3):196–207.
Lockwood C, Munn Z, Porritt K. Qualitative research synthesis: methodological guidance for systematic reviewers utilizing meta-aggregation. Int J Evid Based Healthc 2015; 13 (3):179–187.