Qualitative study of self-reported experiences of infertile women with polycystic ovary syndrome through on-line discussion forums.
Adult
Female
France
/ epidemiology
Humans
Infertility, Female
/ complications
Information Dissemination
Internet
/ organization & administration
Middle Aged
Online Social Networking
Patient Outcome Assessment
Patient Satisfaction
/ statistics & numerical data
Polycystic Ovary Syndrome
/ complications
Qualitative Research
Quality of Life
/ psychology
Self Report
Self-Help Groups
Young Adult
Experience
Forums
Forums Internet
Infertility
Infertilité
PCOS
Polycystic ovary syndrome
SOPK
Syndrome des ovaires polykystiques
Vécu
Journal
Annales d'endocrinologie
ISSN: 2213-3941
Titre abrégé: Ann Endocrinol (Paris)
Pays: France
ID NLM: 0116744
Informations de publication
Date de publication:
Oct 2020
Oct 2020
Historique:
received:
27
04
2020
revised:
16
07
2020
accepted:
24
07
2020
pubmed:
23
8
2020
medline:
12
11
2020
entrez:
23
8
2020
Statut:
ppublish
Résumé
To highlight the self-reported experiences and disease perceptions of infertile women with polycystic ovary syndrome (PCOS). A qualitative study using an inductive method was conducted on infertile women with PCOS who shared their self-reported experiences on French-speaking on-line forums. 785 comments by 211 women on 7 forums were analyzed. Women complained of late diagnosis and lack of information regarding PCOS. PCOS and infertility showed negative psychological impact on daily life. This impact appeared to be alleviated by the sharing of knowledge and experience enabled by these forums. The self-reported experience of infertile women with PCOS is interesting for health practitioners. The psychological impact of PCOS and perceptions of illness appear to be improved by sharing experiences between women with PCOS, suggesting a beneficial support role of online discussion forums.
Identifiants
pubmed: 32827451
pii: S0003-4266(20)31202-6
doi: 10.1016/j.ando.2020.07.1110
pii:
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
487-492Informations de copyright
Copyright © 2020 Elsevier Masson SAS. All rights reserved.