Understanding the essential components and experiences of youth with autism spectrum disorders in peer mentorship programmes during the transition to adulthood: A qualitative meta-ethnography.


Journal

Child: care, health and development
ISSN: 1365-2214
Titre abrégé: Child Care Health Dev
Pays: England
ID NLM: 7602632

Informations de publication

Date de publication:
11 2020
Historique:
received: 11 07 2019
revised: 20 07 2020
accepted: 07 08 2020
pubmed: 26 8 2020
medline: 18 9 2021
entrez: 26 8 2020
Statut: ppublish

Résumé

Youth with an autism spectrum disorder (ASD) often require additional supports during the period of transition to from high school to post-secondary education or career paths. Peer mentorship (PM) programmes create opportunities to support youth with ASD in identifying their personal, academic and career goals after graduating from high school; however, there is limited insight about the components of these programmes that are valued by both participants and peer mentors and that are perceived to contribute to the overall success of a programme in achieving their goals. Our objective was to identify, describe and synthesize the components of PM programmes valued by youth with ASD and their peer mentors, as well as to document their experiences in these transitional support services. A meta-ethnography was conducted to synthesize qualitative and mixed methods studies of PM programmes for youth with ASD. A systematic search of seven databases yielded 142 nonduplicate articles. Data analysis and synthesis involved (1) extraction of raw data; (2) extraction of study authors' interpretations, followed by inductive coding; (3) synthesis of key themes and (4) schematic diagram development to illustrate the relationship of themes. Ten studies of PM programmes from Canada (2), United States (4), Australia (3) and United Kingdom (1) were included. Extracted data reflected experiences of 131 mentees and 82 mentors. The essential programme components identified were (1) mentorship, (2) skill building, (3) peer group and (4) facilitating transition. PM characterized by clear communication and connection between mentors and mentees was valuable to the success of the programme. Peer mentors played an essential role to facilitate the positive experiences that mentees had with programme components, including interactions with peer groups. Successful PM programmes created a safe environment for mentees to practice skills and helped mentees gain confidence to expand their roles to take leadership in their learning.

Identifiants

pubmed: 32840907
doi: 10.1111/cch.12804
doi:

Types de publication

Journal Article Meta-Analysis Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

667-681

Informations de copyright

© 2020 John Wiley & Sons Ltd.

Références

American Psychiatric Association (APA). (2013). Diagnostic and statistical manual of mental disorders (DSM) (5th ed.). Washington, DC: American Psychiatric Association. https://doi.org/10.1176/appi.books.9780890425596
Ames, M. E., McMorris, C. A., Alli, L. N., & Bebko, J. M. (2016). Overview and evaluation of a mentorship program for university students with ASD. Focus on Autism and Other Developmental Disabilities, 31(1), 27-36. https://doi.org/10.1177/1088357615583465
Arnett, J. J. (2000). Emerging adulthood: A theory of development from the late teens through the twenties. American Psychologist, 55(5), 469-480. https://doi.org/10.1037/0003-066X.55.5.469
Ashburner, J. K., Bobir, N. I., & van Dooren, K. (2018). Evaluation of an innovative interest-based post-school transition programme for young people with autism spectrum disorder. International Journal of Disability, Development and Education, 65(3), 262-285. https://doi.org/10.1080/1034912X.2017.1403012
Atkins, S., Lewin, S., Smith, H., Engel, M., Fretheim, A., & Volmink, J. (2008). Conducting a meta-ethnography of qualitative literature: Lessons learnt. BMC Medical Research Methodology, 8(1), 1-10.
Balcazar, F. E., Kelly, E. H., Keys, C. B., & Balfanz-Vertiz, K. (2011). Using peer mentoring to support the rehabilitation of individuals with violently acquired spinal cord injuries. Journal of Applied Rehabilitation Counseling, 42(4), 3-12. https://doi.org/10.1891/0047-2220.42.4.3
Britten, N., Campbell, R., Pope, C., Donovan, J., Morgan, M., & Pill, R. (2002). Using meta ethnography to synthesis qualitative research. Journal of Health Services Research & Policy, 7(4), 209-215. https://doi.org/10.1258/135581902320432732
Bronfenbrenner, U. (1992). Ecological systems theory. In R. Vasta (Ed.), Six theories of child development: Revised formulations and current issues (pp. 187-249). London, England: Jessica Kingsley Publishers.
Brown, S. E., Takahashi, K. T., & Roberts, K. D. (2010). Mentoring individuals with disabilities in postsecondary education: A review of the literature. Journal of Postsecondary Education & Disability, 23(2), 98-111.
Burgstahler, S., & Cronheim, D. (2001). Supporting peer-peer and mentor-protégé relationships on the internet. Journal of Research on Technology in Education, 34(1), 59-74. https://doi.org/10.1080/15391523.2001.10782334
Cahill, M., Robinson, K., Pettigrew, J., Galvin, R., & Stanley, M. (2018). Qualitative synthesis: A guide to conducting a meta-ethnography. British Journal of Occupational Therapy, 81(3), 129-137. https://doi.org/10.1177/0308022617745016
Cai, R. Y., & Richdale, A. L. (2016). Educational experiences and needs of higher education students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(1), 31-41. https://doi.org/10.1007/s10803-015-2535-1
Carrington, S., Templeton, E., & Papinczak, T. (2003). Adolescents with Asperger syndrome and perceptions of friendship. Focus on Autism and Other Developmental Disabilities, 18(4), 211-218. https://doi.org/10.1177/10883576030180040201
Cresswell, L., Hinch, R., & Cage, E. (2019). The experiences of peer relationships amongst autistic adolescents: A systematic review of the qualitative evidence. Research in Autism Spectrum Disorders, 61(January), 45-60. https://doi.org/10.1016/j.rasd.2019.01.003
Creswell, J. W., & Plano Clark, V. L. (2018). Chapter 3: Core mixed methods designs. In Designing and conducting mixed methods research (3rd ed.) (pp. 51-99). Thousand Oaks, California: SAGE.
Cunningham, M., France, E. F., Ring, N., Uny, I., Duncan, E. A., Roberts, R. J., … Noyes, J. (2019). Developing a reporting guideline to improve meta-ethnography in health research: The eMERGe mixed-methods study. Health Services and Delivery Research, 7(4), 1-116. https://doi.org/10.3310/hsdr07040
Curtin, C., Humphrey, K., Vronsky, K., Mattern, K., Nicastro, S., … Perrin, E. C. (2016). Expanding horizons: A pilot mentoring program linking college/graduate students and teens with ASD. Clinical Pediatrics, 55(2), 150-156. https://doi.org/10.1177/0009922815588821
Gardner, J., Mulry, C. M., & Chalik, S. (2012). Considering college?: Adolescents with autism and learning disorders participate in an on-campus service-learning program. Occupational Therapy in Health Care, 26(4), 257-269. https://doi.org/10.3109/07380577.2012.720052
Gelbar, N. W., Smith, I., & Reichow, B. (2014). Systematic review of articles describing experience and supports of individuals with autism enrolled in college and university programs. Journal of Autism and Developmental Disorders, 44(10), 2593-2601. https://doi.org/10.1007/s10803-014-2135-5
Gillespie-Lynch, K., Bublitz, D., Donachie, A., Wong, V., Brooks, P. J., & D'Onofrio, J. (2017). “For a long time our voices have been hushed”: Using student perspectives to develop supports for neurodiverse college students. Frontiers in Psychology, 8(544), 1-14.
Gorter, J. W., Stewart, D., Smith, M. W., King, G., Wright, M., Nguyen, T., … Swinton, M. (2014). Pathways toward positive psychosocial outcomes and mental health for youth with disabilities: A knowledge synthesis of developmental trajectories. Canadian Journal of Community Mental Health, 33(1), 45-61. https://doi.org/10.7870/cjcmh-2014-005
Griffin, M. M., Wendel, K. F., Day, T. L., & McMillan, E. D. (2016). Developing peer supports for college students with intellectual and developmental disabilities. Journal of Postsecondary Education & Disability, 29(3), 263-269.
Guan, S.-S. A., & Fuligni, A. J. (2016). Changes in parent, sibling, and peer support during the transition to young adulthood. Journal of Research on Adolescence, 26(2), 286-299. https://doi.org/10.1111/jora.12191
Halfon, N., & Hochstein, M. (2002). Life course health development: An integrated framework for developing health, policy, and research. Milbank Quarterly, 80(3), 433-479. https://doi.org/10.1111/1468-0009.00019
Hamilton, J., Stevens, G., & Girdler, S. (2016). Becoming a mentor: The impact of training and the experience of mentoring university students on the autism spectrum. PLoS ONE, 11(4), e0153204. https://doi.org/10.1371/journal.pone.0153204
Hart, D., Grigal, M., & Weir, C. (2010). Expanding the paradigm: Postsecondary education options for individuals with autism spectrum disorder and intellectual disabilities. Focus on Autism and Other Developmental Disabilities, 25(3), 134-150. https://doi.org/10.1177/1088357610373759
Hendricks, D. R., & Wehman, P. (2009). Transition from school to adulthood for youth with autism spectrum disorders: Review and recommendations. Focus on Autism and Other Developmental Disabilities, 24(2), 77-88. https://doi.org/10.1177/1088357608329827
Hofvander, B., Delorme, R., Chaste, P., Nydén, A., Wentz, E., Ståhlberg, O., … Leboyer, M. (2009). Psychiatric and psychosocial problems in adults with normal-intelligence autism spectrum disorders. BMC Psychiatry, 9, 1-9.
Hong, Q. N., Pluye, P., Fàbregues, S., Bartlett, G., Boardman, F., Cargo, M., … O'Cathain, A. (2018). Mixed methods appraisal tool (MMAT), version 2018. Canada. Retrieved from:: IC Canadian Intellectual Property Office. http://mixedmethodsappraisaltoolpublic.pbworks.com/w/file/fetch/127916259/MMAT_2018_criteria-manual_2018-08-01_ENG.pdf
Hotez, E., Shane-Simpson, C., Obeid, R., DeNigris, D., Siller, M., Costikas, C., … Gillespie-Lynch, K. (2018). Designing a summer transition program for incoming and current college students on the autism spectrum: A participatory approach. Frontiers in Psychology, 9(46), 1-16.
Huerta, M., & Lord, C. (2012). Diagnostic evaluation of autism spectrum disorders. Pediatric Clinics of North America, 59(1), 103-111. https://doi.org/10.1016/j.pcl.2011.10.018
Jones, M. L. (2004). Application of systematic review methods to qualitative research: Practical issues. Journal of Advanced Nursing, 48(3), 271-278. https://doi.org/10.1111/j.1365-2648.2004.03196.x
Jones, M. M., & Goble, Z. (2012). Creating effective mentoring partnerships for students with intellectual disabilities on campus. Journal of Policy and Practice in Intellectual Disabilities, 9(4), 270-278. https://doi.org/10.1111/jppi.12010
Kram, K. E., & Isabella, L. A. (1985). Mentoring alternatives: The role of peer relationships in career development. Academy of Management Journal, 28(1), 110-132.
Levy, S. E., Giarelli, E., Lee, L.-C., Schieve, L. A., Kirby, R. S., Cunniff, C., … Rice, C. E. (2010). Autism spectrum disorder and co-occurring developmental, psychiatric, and medical conditions among children in multiple populations of the United States. Journal of Developmental & Behavioral Pediatrics, 31(4), 267-275. https://doi.org/10.1097/DBP.0b013e3181d5d03b
Lindsay, S., Hartman, L. R., & Fellin, M. (2016). A systematic review of mentorship programs to facilitate transition to post-secondary education and employment for youth and young adults with disabilities. Disability and Rehabilitation, 38(14), 1329-1349. https://doi.org/10.3109/09638288.2015.1092174
Lugnegård, T., Hallerbäck, M. U., & Gillberg, C. (2011). Psychiatric comorbidity in young adults with a clinical diagnosis of Asperger syndrome. Research in Developmental Disabilities, 32(5), 1910-1917. https://doi.org/10.1016/j.ridd.2011.03.025
Martin, N., Milton, D. E. M., Sims, T., Dawkins, G., Baron-Cohen, S., & Mills, R. (2017). Does “mentoring” offer effective support to autistic adults? A mixed-methods pilot study. Advances in Autism, 3(4), 229-239. https://doi.org/10.1108/AIA-06-2017-0013
Matson, J. L., & Cervantes, P. E. (2014). Commonly studied comorbid psychopathologies among persons with autism spectrum disorder. Research in Developmental Disabilities, 35, 952-962. https://doi.org/10.1016/j.ridd.2014.02.012
Mays, N., & Pope, C. (2000). Qualitative research in health care. Assessing quality in qualitative research. BMJ (Clinical Research Ed.), 320(7226), 50-52.
Ministry of Children, Community, and Social Services. (2016). Ontario providing more supports for children with autism. https://news.ontario.ca/mcys/en/2016/06/ontario-providing-more-supports-for-children-with-autism.html
Neary, P., Gilmore, L., & Ashburner, J. (2015). Post-school needs of young people with high-functioning autism spectrum disorder. Research in Autism Spectrum Disorders, 18, 1-11. https://doi.org/10.1016/j.rasd.2015.06.010
Ness, B. M. (2013). Supporting self-regulated learning for college students with Asperger syndrome: Exploring the “strategies for college learning” model. Mentoring & Tutoring: Partnership in Learning, 21(4), 356-377. https://doi.org/10.1080/13611267.2013.855865
Nicholas, D. B., Mitchell, W., Dudley, C., Clarke, M., & Zulla, R. (2018). An ecosystem approach to employment and autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(1), 264-275. https://doi.org/10.1007/s10803-017-3351-6
Noblit, G. W., & Hare, R. D. (1988). Meta-ethnography: Synthesizing qualitative studies. Newbury Park: SAGE Publications. https://doi.org/10.4135/9781412985000
Ontario Ministry of Education. (2013). Creating pathways to success: An education and career/life planning program for Ontario schools. http://www.edu.gov.on.ca/eng/document/policy/cps/
Pace, R., Pluye, P., Bartlett, G., Macaulay, A. C., Salsberg, J., Jagosh, J., & Seller, R. (2012). Testing the reliability and efficiency of the pilot Mixed Methods Appraisal Tool (MMAT) for systematic mixed studies review. International Journal of Nursing Studies, 49(1), 47-53. https://doi.org/10.1016/j.ijnurstu.2011.07.002
Palisano, R. J., Di Rezze, B., Stewart, D., Rosenbaum, P. L., Hlyva, O., Freeman, M., … Gorter, J. W. (2017). Life course health development of individuals with neurodevelopmental conditions. Developmental Medicine and Child Neurology, 59(5), 470-476. https://doi.org/10.1111/dmcn.13402
Public Health Agency of Canada. (2018). Autism Spectrum Disorder Among Children and Youth in Canada: A Report of the National Autism Spectrum Disorder Surveillance System. https://www.canada.ca/en/public-health/services/publications/diseases-conditions/autism-spectrum-disorder-children-youth-canada-2018.html
Retherford, K. S., & Schreiber, L. R. (2015). Camp Campus: College preparation for adolescents and young adults with high-functioning autism, Asperger syndrome, and other social communication disorders. Topics in Language Disorders, 35(4), 362-385. https://doi.org/10.1097/TLD.0000000000000070
Roberts, N., & Birmingham, E. (2017). Mentoring university students with ASD: A mentee-centered approach. Journal of Autism and Developmental Disorders, 47(4), 1038-1050. https://doi.org/10.1007/s10803-016-2997-9
Roux, A.M., Rast, J., Anderson, K., & Shattuck, P. (2017). National autism indicators report: Developmental disability services and outcomes in adulthood. https://drexel.edu/autismoutcomes/publications-and-reports/publications/National-Autism-Indicators-Report-Developmental-Disability-Services-and-Outcomes-in-Adulthood/
Sehlin, H., Hedman Ahlstrom, B., Andersson, G., & Wentz, E. (2018). Experiences of an internet-based support and coaching model for adolescents and young adults with ADHD and autism spectrum disorder-A qualitative study. BMC Psychiatry, 18(1), 15.
Siew, C. T., Mazzucchelli, T. G., Rooney, R., & Girdler, S. (2017). A specialist peer mentoring program for university students on the autism spectrum: A pilot study. PLoS ONE, 12(7), e0180854. https://doi.org/10.1371/journal.pone.0180854
Thompson, C., Falkmer, T., Evans, K., Bölte, S., & Girdler, S. (2018). A realist evaluation of peer mentoring support for university students with autism. British Journal of Special Education, 45(4), 412-434. https://doi.org/10.1111/1467-8578.12241
Weiss, J.A., Whelan, M., McMorris, C., Carroll, C., & the C. A. S. D. A. (2014). Autism in Canada: National needs assessment survey for families, individuals with autism spectrum disorder and professionals.
White, S. W., Elias, R., Salinas, C. E., Capriola, N., Conner, C. M., Asselin, S. B., … Getzel, E. E. (2016). Students with autism spectrum disorder in college: Results from a preliminary mixed methods needs analysis. Research in Developmental Disabilities, 56, 29-40. https://doi.org/10.1016/j.ridd.2016.05.010

Auteurs

Linda Nguyen (L)

School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.
CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada.

Susan Jack (S)

School of Nursing, Department of Health Research Methods, Evidence, and Impact, Offord Centre for Child Studies, McMaster University, Hamilton, Ontario, Canada.

Marjolijn Ketelaar (M)

CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada.
De Hoogstraat Rehabilitation, University Medical Center Utrecht, Utrecht, The Netherlands.

Briano Di Rezze (B)

School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.
CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada.

Alice Kelen Soper (AK)

CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada.

Jan Willem Gorter (JW)

School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.
CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada.
Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.

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