Structured Care and Self-Management Education for Persons with Parkinson's Disease: Why the First Does Not Go without the Second-Systematic Review, Experiences and Implementation Concepts from Sweden and Germany.
Parkinson disease
education
integrated care
networks
self-management
Journal
Journal of clinical medicine
ISSN: 2077-0383
Titre abrégé: J Clin Med
Pays: Switzerland
ID NLM: 101606588
Informations de publication
Date de publication:
28 Aug 2020
28 Aug 2020
Historique:
received:
31
07
2020
revised:
13
08
2020
accepted:
17
08
2020
entrez:
3
9
2020
pubmed:
3
9
2020
medline:
3
9
2020
Statut:
epublish
Résumé
Integrated care is regarded as a key for care delivery to persons with chronic long-term conditions such as Parkinson's disease. For persons with Parkinson's disease, obtaining self-management support is a top priority in the context of integrated care. Self-management is regarded as a crucial competence in chronic diseases since the affected persons and their caregivers inevitably take up the main responsibility when it comes to day-to-day management. Formal self-management education programs with the focus on behavioral skills relevant to the induction and maintenance of behavioral change have been implemented as a standard in many chronic long-term conditions. However, besides the example of the Swedish National Parkinson School, the offers for persons with Parkinson's disease remain fragmented and limited in availability. Today, no such program is implemented as a nationwide standard in Germany. This paper provides (1) a systematic review on structured self-management education programs specifically designed or adopted for persons with Parkinson's disease, (2) presents the Swedish National Parkinson School as an example for a successfully implemented nationwide program and (3) presents a concept for the design, evaluation and long-term implementation of a future-orientated self-management education program for persons with Parkinson's disease in Germany.
Identifiants
pubmed: 32872258
pii: jcm9092787
doi: 10.3390/jcm9092787
pmc: PMC7563525
pii:
doi:
Types de publication
Journal Article
Langues
eng
Subventions
Organisme : This work was supported by the Federal Ministry of Health of the German Federal Government and by the Saxon State Ministry for Social Affairs and Solidarity (grant number: 100386587).
ID : 100386587
Déclaration de conflit d'intérêts
J.S. is the CEO of the Tumaini Institut für Präventionsmanagement GmbH, a SME working in the field of prevention of lifestyle-associated diseases and developing and implementing patient education programs for chronic diseases. Lars Tönges has received travel funding and/or speaker honoraria from Abbvie, Bayer, Bial, Desitin, G.E., U.C.B., and Zambon, and consulted for Abbvie, Bayer, Bial, Desitin, U.C.B., and Zambon, in the last 3 years. C.E. received in the last 12 months payments as a consultant for Abbvie Inc. C.E. received honoraria as a speaker from Abbvie Inc. He received payments as a consultant for Abbvie Inc. and Philyra Inc. K.F.L. has received travel funding and/or speaker honoraria from Abbvie and Licher M.T. and consulted for Abbvie and Stadapharm, in the last 3 years. The other authors do not report any conflict of interest.
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