Parental decision regret in childhood hypospadias surgery: A systematic review.
ethic
general paediatrics
surgery
urology/gynaecology
Journal
Journal of paediatrics and child health
ISSN: 1440-1754
Titre abrégé: J Paediatr Child Health
Pays: Australia
ID NLM: 9005421
Informations de publication
Date de publication:
Oct 2020
Oct 2020
Historique:
received:
19
04
2020
revised:
12
06
2020
accepted:
16
06
2020
pubmed:
5
9
2020
medline:
15
5
2021
entrez:
5
9
2020
Statut:
ppublish
Résumé
We conducted a systematic review of the literature to establish the prevalence of and predictive factors for parental decision regret in hypospadias surgery. A search strategy without language restrictions was developed with expert help, and two reviewers undertook independent study selection. Five studies were included in this review (four for quantitative analysis) with a total of 783 participants. The mean overall prevalence of parental decision regret was 65.2% (moderate to severe - 20.3%). Although significant predictors of regret were identified (post-operative complications, small size glans, meatal location, decision conflict between parents, parental educational level and others), they had unexplained discordance between studies. Parental decision regret after proximal hypospadias surgery and refusing surgery was inadequately reported. In conclusion, even though the prevalence of parental decision regret after consenting for the hypospadias repair appears to be high, risk factors associated with it were discordant suggesting imprecision in estimates due to unknown confounders.
Types de publication
Journal Article
Systematic Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
1514-1520Informations de copyright
© 2020 Paediatrics and Child Health Division (The Royal Australasian College of Physicians).
Références
Springer A, van den Heijkant M, Baumann S. Worldwide prevalence of hypospadias. J. Pediatr. Urol. 2016; 12: 152.e1-7.
Schneuer FJ, Holland AJA, Pereira G, Bower C, Nassar N. Prevalence, repairs and complications of hypospadias: An Australian population-based study. Arch. Dis. Child. 2015; 100: 1038-43.
Rehfuss A, Kogan B. Psychological health and pediatric urology: The missing chapter in our surgical atlas. J. Urol. 2017; 198: 753-4.
Lyons-Ruth K, Wolfe R, Lyubchik A. Depression and the parenting of young children: Making the case for early preventive mental health services. Harv. Rev. Psychiatry 2000; 8: 148-53.
Scrimin S, Haynes M, Altoè G, Bornstein MH, Axia G. Anxiety and stress in mothers and fathers in the 24 h after their child's surgery. Child Care Health Dev. 2009; 35: 227-33.
Carmack A, Notini L, Earp BD. Should surgery for hypospadias be performed before an age of consent? J. Sex Res. 2016; 53: 1047-58.
Moher D, Shamseer L, Clarke M et al. Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015 statement. Syst. Rev. 2015; 4: 1.
Shamseer L, Moher D, Clarke M et al. Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015: Elaboration and explanation. BMJ 2015; 350: g7647.
Tack LJW, Spinoit AF, Hoebeke P et al. Patient and parental satisfaction and long term psychosexual outcome after hypospadias surgery. Andrology 2018; 6 (Suppl. 2): 70-1.
Chan KH, Panoch J, Carroll A et al. Parental perspectives on decision-making about hypospadias surgery. J. Pediatr. Urol. 2019; 15: 449.e1-8.
Lorenzo AJ, Braga LH, Zlateska B et al. Analysis of decisional conflict among parents who consent to hypospadias repair: Single institution prospective study of 100 couples. J. Urol. 2012; 188: 571-5.
Brehaut JC, O'Connor AM, Wood TJ et al. Validation of a decision regret scale. Med. Decis. Making 2003; 23: 281-92.
Marcano Belisario JS, Jamsek J, Huckvale K, O'Donoghue J, Morrison CP, Car J. Comparison of self-administered survey questionnaire responses collected using mobile apps versus other methods. Cochrane Database Syst. Rev. 2015; 7: MR000042.
Becerra Perez MM, Menear M, Brehaut JC, Legare F. Extent and predictors of decision regret about health care decisions: A systematic review. Med. Decis. Making 2016; 36: 777-90.
Becerra-Perez M-M, Menear M, Turcotte S, Labrecque M, Legare F. More primary care patients regret health decisions if they experienced decisional conflict in the consultation: A secondary analysis of a multicenter descriptive study. BMC Fam. Pract. 2016; 17: 156.
Joseph-Williams N, Edwards A, Elwyn G. The importance and complexity of regret in the measurement of ‘good’ decisions: A systematic review and a content analysis of existing assessment instruments. Health Expect. 2011; 14: 59-83.
Feldman-Stewart D, Tong C, Siemens R et al. The impact of explicit values clarification exercises in a patient decision aid emerges after the decision is actually made: Evidence from a randomized controlled trial. Med. Decis. Making 2012; 32: 616-26.
Berry DL, Wang Q, Halpenny B, Hong F. Decision preparation, satisfaction and regret in a multi-center sample of men with newly diagnosed localized prostate cancer. Patient Educ. Couns. 2012; 88: 262-7.
Lorenzo AJ, Pippi Salle JL, Zlateska B, Koyle MA, Bagli DJ, Braga LH. Decisional regret after distal hypospadias repair: Single institution prospective analysis of factors associated with subsequent parental remorse or distress. J. Urol. 2014; 191 (5 Suppl.): 1558-63.
Ghidini F, Sekulovic S, Castagnetti M. Parental decisional regret after primary distal hypospadias repair: Family and surgery variables, and repair outcomes. J. Urol. 2016; 195: 720-4.
Bethell GS, Chhabra S, Shalaby MS, Corbett H, Kenny SE. Parental decisional satisfaction after hypospadias repair in the United Kingdom. J. Pediatr. Urol. 2020; 16: 164.e1-7.