Decision-making for receiving paid home care for dementia in the time of COVID-19: a qualitative study.
COVID-19
Carers
Corona virus
Dementia
Formal care
Journal
BMC geriatrics
ISSN: 1471-2318
Titre abrégé: BMC Geriatr
Pays: England
ID NLM: 100968548
Informations de publication
Date de publication:
09 09 2020
09 09 2020
Historique:
received:
29
06
2020
accepted:
19
08
2020
entrez:
9
9
2020
pubmed:
10
9
2020
medline:
17
9
2020
Statut:
epublish
Résumé
The lockdown imposed in the UK on the 23rd of March and associated public health measures of social distancing are likely to have had a great impact on care provision. The aim of this study was to explore the decision-making processes of continued paid home care support for dementia in the time of COVID-19. Unpaid carers caring for a person living with dementia (PLWD) who were accessing paid home care before COVID-19 and residing in the UK were eligible to take part. Participants were interviewed over the phone and asked about their experiences of using paid home care services before and since COVID-19, and their decision-making processes of accessing paid home care since the outbreak and public health restrictions. Fifteen unpaid carers, who were also accessing paid care support for the PLWD before COVID-19, were included in the analysis. Thematic analysis identified three overarching themes: (1) Risk; (2) Making difficult choices and risk management; and (3) Implications for unpaid carers. Many unpaid carers decided to discontinue paid carers entering the home due to the risk of infection, resulting in unpaid carers having to pick up the care hours to support the person living with dementia. This is the first study to report on the impact of COVID-19 on paid home care changes in dementia. Findings raise implications for providing better Personal Protective Equipment for paid carers, and to support unpaid carers better in their roles, with the pandemic likely to stay in place for the foreseeable future.
Sections du résumé
BACKGROUND
The lockdown imposed in the UK on the 23rd of March and associated public health measures of social distancing are likely to have had a great impact on care provision. The aim of this study was to explore the decision-making processes of continued paid home care support for dementia in the time of COVID-19.
METHODS
Unpaid carers caring for a person living with dementia (PLWD) who were accessing paid home care before COVID-19 and residing in the UK were eligible to take part. Participants were interviewed over the phone and asked about their experiences of using paid home care services before and since COVID-19, and their decision-making processes of accessing paid home care since the outbreak and public health restrictions.
RESULTS
Fifteen unpaid carers, who were also accessing paid care support for the PLWD before COVID-19, were included in the analysis. Thematic analysis identified three overarching themes: (1) Risk; (2) Making difficult choices and risk management; and (3) Implications for unpaid carers. Many unpaid carers decided to discontinue paid carers entering the home due to the risk of infection, resulting in unpaid carers having to pick up the care hours to support the person living with dementia.
CONCLUSIONS
This is the first study to report on the impact of COVID-19 on paid home care changes in dementia. Findings raise implications for providing better Personal Protective Equipment for paid carers, and to support unpaid carers better in their roles, with the pandemic likely to stay in place for the foreseeable future.
Identifiants
pubmed: 32900360
doi: 10.1186/s12877-020-01719-0
pii: 10.1186/s12877-020-01719-0
pmc: PMC7478902
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
333Subventions
Organisme : National Institute for Health Research
ID : NIHR ARC NWC
Pays : International
Organisme : University of Liverpool
ID : COVID-19 Strategic Research Fund
Pays : International
Références
Anaesthesia. 2020 Jul;75(7):920-927
pubmed: 32246849
Health Soc Care Community. 2020 May;28(3):903-912
pubmed: 31833154
J Am Med Dir Assoc. 2020 Jul;21(7):900-904
pubmed: 32674816
J Am Geriatr Soc. 2020 Jan;68(1):186-191
pubmed: 31696511
Health Policy. 2017 Jun;121(6):613-622
pubmed: 28449885
Int J Geriatr Psychiatry. 2018 Feb;33(2):e273-e279
pubmed: 28881062
Int J Geriatr Psychiatry. 2016 Feb;31(2):101-8
pubmed: 25963021
Aging Ment Health. 2015 Jan;19(1):63-71
pubmed: 24831511
BMC Geriatr. 2018 Jun 4;18(1):131
pubmed: 29866102
Am J Alzheimers Dis Other Demen. 2013 Sep;28(6):617-26
pubmed: 23813790
BMC Geriatr. 2020 Jan 3;20(1):5
pubmed: 31900113
Clin Immunol. 2020 Jun;215:108409
pubmed: 32276137
Health Policy. 2002 Sep;61(3):255-68
pubmed: 12098519
Home Health Care Serv Q. 2009;28(1):1-23
pubmed: 19266368
Gait Posture. 2016 Oct;50:1-7
pubmed: 27544062
BMJ. 2020 May 5;369:m1642
pubmed: 32371466