Molecular genetics of phenylketonuria and tetrahydrobiopterin deficiency in Jordan.

PKU incidence genotyping newborn screening phenylketonuria tetrahydrobiopterin

Journal

JIMD reports
ISSN: 2192-8304
Titre abrégé: JIMD Rep
Pays: United States
ID NLM: 101568557

Informations de publication

Date de publication:
Sep 2020
Historique:
received: 09 03 2020
revised: 27 04 2020
accepted: 04 05 2020
entrez: 9 9 2020
pubmed: 10 9 2020
medline: 10 9 2020
Statut: epublish

Résumé

Information regarding the prevalence of PKU in the Middle East in comparison to other world regions is scarce, which might be explained by difficulties in the implementation of national newborn screening programs. This study seeks for the first time to genotype and biochemically characterize patients diagnosed with hyperphenylalaninemia (HPA) at the Pediatric Metabolic Genetics Clinic at the King Hussein Medical Center, Amman, Jordan. A total of 33 patients with HPA and 55 family members were investigated for pterins (neopterin and biopterin) and dihydropteridine reductase (DHPR) activity in dried blood spots. Patients with HPA were genotyped for phenylketonuria (PKU) and the genes involved in tetrahydrobiopterin (BH In total 20 patients were diagnosed with PKU due to phenylalanine hydroxylase (PAH) deficiency, 2 with GTP cyclohydrolase I (GTPCH) deficiency, 6 with DHPR deficiency, and 3 with the 6-pyruvoyl-tetrahydropterin synthase (PTPS) deficiency. Diagnosis was not possible in 2 patients. This study documents a high percentage of BH This approach enables differentiation between PKU and BH

Sections du résumé

BACKGROUND BACKGROUND
Information regarding the prevalence of PKU in the Middle East in comparison to other world regions is scarce, which might be explained by difficulties in the implementation of national newborn screening programs.
OBJECTIVE OBJECTIVE
This study seeks for the first time to genotype and biochemically characterize patients diagnosed with hyperphenylalaninemia (HPA) at the Pediatric Metabolic Genetics Clinic at the King Hussein Medical Center, Amman, Jordan.
METHODS METHODS
A total of 33 patients with HPA and 55 family members were investigated for pterins (neopterin and biopterin) and dihydropteridine reductase (DHPR) activity in dried blood spots. Patients with HPA were genotyped for phenylketonuria (PKU) and the genes involved in tetrahydrobiopterin (BH
RESULTS RESULTS
In total 20 patients were diagnosed with PKU due to phenylalanine hydroxylase (PAH) deficiency, 2 with GTP cyclohydrolase I (GTPCH) deficiency, 6 with DHPR deficiency, and 3 with the 6-pyruvoyl-tetrahydropterin synthase (PTPS) deficiency. Diagnosis was not possible in 2 patients. This study documents a high percentage of BH
CONCLUSIONS CONCLUSIONS
This approach enables differentiation between PKU and BH

Identifiants

pubmed: 32905092
doi: 10.1002/jmd2.12130
pii: JMD212130
pmc: PMC7463056
doi:

Types de publication

Journal Article

Langues

eng

Pagination

59-67

Informations de copyright

© 2020 The Authors. Journal of Inherited Metabolic Disease published by John Wiley & Sons Ltd on behalf of SSIEM.

Déclaration de conflit d'intérêts

The authors declare no conflicts of interest.

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Auteurs

Carla Carducci (C)

Department of Experimental Medicine University of Rome "La Sapienza" Rome Italy.

Wajdi Amayreh (W)

Queen Rania Children Hospital, King Hussein Medical Centre Amman Jordan.
Princess Haya Biotechnology Centre Jordan University of Science and Technology Irbid Jordan.

Haneen Ababneh (H)

Princess Haya Biotechnology Centre Jordan University of Science and Technology Irbid Jordan.
Department of Biotechnology and Genetic Engineering Jordan University of Science and Technology Irbid Jordan.

Amjad Mahasneh (A)

Princess Haya Biotechnology Centre Jordan University of Science and Technology Irbid Jordan.
Department of Biotechnology and Genetic Engineering Jordan University of Science and Technology Irbid Jordan.

Buthaina Al Rababah (B)

Princess Haya Biotechnology Centre Jordan University of Science and Technology Irbid Jordan.

Kefah Al Qaqa (K)

Queen Rania Children Hospital, King Hussein Medical Centre Amman Jordan.

Momen Al Aqeel (M)

Queen Rania Children Hospital, King Hussein Medical Centre Amman Jordan.

Cristiana Artiola (C)

Department of Experimental Medicine University of Rome "La Sapienza" Rome Italy.

Manuela Tolve (M)

Department of Experimental Medicine University of Rome "La Sapienza" Rome Italy.

Sirio D'Amici (S)

Department of Experimental Medicine University of Rome "La Sapienza" Rome Italy.

Nan Shen (N)

Department of Rehabilitation Medicine Xin Hua Hospital affiliated to Shanghai Jiao Tong University School of Medicine Shanghai China.

Yongguo Yu (Y)

Department of Pediatric Endocrinology and Genetic Metabolism Shanghai Institute for Pediatric Research, Xinhua Hospital, School of Medicine, Shanghai Jiao Tong University Shanghai China.

Alicia Hillert (A)

Dietmar Hopp Metabolic Center and Centre for Pediatrics and Adolescent Medicine University Hospital Heidelberg Heidelberg Germany.

Nastassja Himmelreich (N)

Dietmar Hopp Metabolic Center and Centre for Pediatrics and Adolescent Medicine University Hospital Heidelberg Heidelberg Germany.

Jürgen G Okun (JG)

Dietmar Hopp Metabolic Center and Centre for Pediatrics and Adolescent Medicine University Hospital Heidelberg Heidelberg Germany.

Georg F Hoffmann (GF)

Dietmar Hopp Metabolic Center and Centre for Pediatrics and Adolescent Medicine University Hospital Heidelberg Heidelberg Germany.

Nenad Blau (N)

Dietmar Hopp Metabolic Center and Centre for Pediatrics and Adolescent Medicine University Hospital Heidelberg Heidelberg Germany.
Division of Metabolism University Children's Hospital Zürich Switzerland.

Classifications MeSH