Who cares for the bereaved? A national survey of family caregivers of people with motor neurone disease.

Amyotrophic Lateral Sclerosis Bereavement Caregivers Cross-Sectional Studies Humans Motor Neuron Disease / epidemiology Social Support
MND Associations Motor neurone disease bereavement support compassionate communities family caregivers informal support mental health palliative care physical health population survey, Amyotrophic lateral sclerosis professional support social support sources of support

Journal

Amyotrophic lateral sclerosis & frontotemporal degeneration
ISSN: 2167-9223
Titre abrégé: Amyotroph Lateral Scler Frontotemporal Degener
Pays: England
ID NLM: 101587185

Informations de publication

Date de publication:
02 2021
Historique:
pubmed: 11 9 2020
medline: 1 9 2021
entrez: 10 9 2020
Statut: ppublish

Résumé

Although Motor Neurone Disease (MND) caregivers are most challenged physically and psychologically, there is a paucity of population-based research to investigate the impact of bereavement, unmet needs, range of supports, and their helpfulness as perceived by bereaved MND caregivers.

Sections du résumé

BACKGROUND
Although Motor Neurone Disease (MND) caregivers are most challenged physically and psychologically, there is a paucity of population-based research to investigate the impact of bereavement, unmet needs, range of supports, and their helpfulness as perceived by bereaved MND caregivers.

Identifiants

DOI: 10.1080/21678421.2020.1813780 PMID: 32909457
pubmed: 32909457
doi: 10.1080/21678421.2020.1813780
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

12-22

Auteurs

Samar M Aoun (SM)

Public Health Palliative Care Unit, School of Psychology and Public Health, La Trobe University, Melbourne, Australia.
Perron Institute for Neurological and Translational Science, Perth, Australia.
ORCID: 0000-0002-4073-4805

Paul A Cafarella (PA)

Department of Respiratory Medicine, Flinders Medical Centre, Adelaide, Australia.
School of Psychology, Faculty of Health and Medical Sciences, University of Adelaide, Australia.
ORCID: 0000-0002-0165-4909

Bruce Rumbold (B)

Public Health Palliative Care Unit, Department of Public Health, School of Psychology and Public Health, La Trobe University, Melbourne, Australia.

Geoff Thomas (G)

Consumer Advocate Thomas MND Research Group, Adelaide, Australia.

Anne Hogden (A)

Australian Institute of Health Service Management, College of Business and Economics, University of Tasmania, Australia.
ORCID: 0000-0002-4317-7960

Leanne Jiang (L)

Public Health Palliative Care Unit, School of Psychology and Public Health, La Trobe University, Melbourne, Australia.
Perron Institute for Neurological and Translational Science, Perth, Australia.
ORCID: 0000-0002-1729-9729

Sonia Gregory (S)

Natasha Bear Statistics, Perth, Australia.

David W Kissane (DW)

Palliative Medicine Research, The University of Notre Dame Australia, Sydney, Australia.
The Cunningham Centre for Palliative Care Research, St Vincent's Hospital, Sydney, Australia and.
Cabrini Psycho-Oncology and Supportive Care Research Unit, Monash University, Melbourne, Australia.
ORCID: 0000-0002-5930-4573

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Classifications MeSH

questionsmedicales.fr › Maladies métaboliques et nutritionnelles › Maladies métaboliques › Troubles de l'homéostasie des protéines › Protéinopathies TDP-43 › Sclérose latérale amyotrophique › Who cares for the bereaved? A national survey...
questionsmedicales.fr › Comportement et mécanismes comportementaux › Émotions › Deuil (perte) › Who cares for the bereaved? A national survey...
questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Personnel de santé › Aidants › Who cares for the bereaved? A national survey...
questionsmedicales.fr › Environnement et santé publique › Santé publique › Méthodes épidémiologiques › Caractéristiques des études épidémiologiques › Études épidémiologiques › Études transversales › Who cares for the bereaved? A national survey...
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Who cares for the bereaved? A national survey...
questionsmedicales.fr › Maladies du système nerveux › Maladies neuromusculaires › Maladies du motoneurone › Who cares for the bereaved? A national survey...
questionsmedicales.fr › Sciences sociales › Sociologie › Facteurs sociologiques › Environnement social › Soutien social › Who cares for the bereaved? A national survey...