The impact of gender, puberty, and pregnancy in patients with POLG disease.


Journal

Annals of clinical and translational neurology
ISSN: 2328-9503
Titre abrégé: Ann Clin Transl Neurol
Pays: United States
ID NLM: 101623278

Informations de publication

Date de publication:
10 2020
Historique:
received: 16 07 2020
revised: 28 08 2020
accepted: 28 08 2020
pubmed: 20 9 2020
medline: 18 8 2021
entrez: 19 9 2020
Statut: ppublish

Résumé

To study the impact of gender, puberty, and pregnancy on the expression of POLG disease, one of the most common mitochondrial diseases known. Clinical, laboratory, and genetic data were collected retrospectively from 155 patients with genetically confirmed POLG disease recruited from seven European countries. We used the available data to study the impact of gender, puberty, and pregnancy on disease onset and deterioration. We found that disease onset early in life was common in both sexes but there was also a second peak in females around the time of puberty. Further, pregnancy had a negative impact with 10 of 14 women (71%) experiencing disease onset or deterioration during pregnancy. Gender clearly influences the expression of POLG disease. While onset very early in life was common in both males and females, puberty in females appeared associated both with disease onset and increased disease activity. Further, both disease onset and deterioration, including seizure aggravation and status epilepticus, appeared to be associated with pregnancy. Thus, whereas disease activity appears maximal early in life with no subsequent peaks in males, both menarche and pregnancy appear associated with disease onset or worsening in females. This suggests that hormonal changes may be a modulating factor.

Identifiants

pubmed: 32949115
doi: 10.1002/acn3.51199
pmc: PMC7545595
doi:

Substances chimiques

DNA Polymerase gamma EC 2.7.7.7
POLG protein, human EC 2.7.7.7

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

2019-2025

Informations de copyright

© 2020 The Authors. Annals of Clinical and Translational Neurology published by Wiley Periodicals LLC on behalf of American Neurological Association.

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Auteurs

Omar Hikmat (O)

Department of Paediatrics and Adolescent Medicine, Haukeland University Hospital, Bergen, 5021, Norway.
Department of Clinical Medicine (K1), University of Bergen, Bergen, Norway.

Karin Naess (K)

Centre for Inherited Metabolic Diseases, Karolinska University Hospital, Stockholm, Sweden.
Department of Medical Biochemistry and Biophysics, Karolinska Institute, Stockholm, Sweden.

Martin Engvall (M)

Centre for Inherited Metabolic Diseases, Karolinska University Hospital, Stockholm, Sweden.
Department of Molecular Medicine and Surgery, Karolinska Institute, Stockholm, Sweden.

Claus Klingenberg (C)

Department of Paediatric and Adolescent Medicine, University Hospital of North Norway, Tromso, Norway.
Paediatric Research Group, Department of Clinical Medicine, UiT- The Arctic University of Norway, Tromso, Norway.

Magnhild Rasmussen (M)

Women and Children's Division, Department of Clinical Neurosciences for Children, Oslo University Hospital, Oslo, Norway.
Unit for Congenital and Hereditary Neuromuscular Disorders, Department of Neurology, Oslo University Hospital, Oslo, Norway.

Chantal M E Tallaksen (CME)

Department of Neurology, Oslo University Hospital, Oslo, Norway.
Institute of Clinical Medicine, Faculty of Medicine, University of Oslo, Oslo, Norway.

Christian Samsonsen (C)

Department of Neuroscience, Norwegian University of Science and Technology, Trondheim, Norway.
Department of Neurology and Clinical Neurophysiology, St. Olav's University Hospital, Trondheim, Norway.

Eylert Brodtkorb (E)

Department of Neuroscience, Norwegian University of Science and Technology, Trondheim, Norway.
Department of Neurology and Clinical Neurophysiology, St. Olav's University Hospital, Trondheim, Norway.

Elsebet Ostergaard (E)

Department of Clinical Genetics, Copenhagen University Hospital Rigshospitalet, Copenhagen, Denmark.

Rene de Coo (R)

Department of Neurology, Medical Spectrum Twente, Enschede, The Netherlands.
Department of Genetics and Cell Biology, University of Maastricht, Maastricht, The Netherlands.

Leticia Pias-Peleteiro (L)

Department of Neurology, Sant Joan de Déu Children´s Hospital, Barcelona, Spain.

Pirjo Isohanni (P)

Department of Pediatric Neurology, Children's Hospital, Helsinki University Hospital, Helsinki, Finland.
Stem Cells and Metabolism Research Program, Faculty of Medicine, University of Helsinki, Helsinki, Finland.

Johanna Uusimaa (J)

PEDEGO Research Unit, University of Oulu, Oulu, Finland.
Department of Pediatric Neurology, Clinic for Children and Adolescents, Medical Research Center, Oulu University Hospital, Oulu, Finland.

Niklas Darin (N)

Department of Pediatrics, The Queen Silvia Children's Hospital, University of Gothenburg, Gothenburg, Sweden.

Shamima Rahman (S)

Mitochondrial Research Group, UCL Great Ormond Street Institute of Child Health, London, United Kingdom.
Metabolic Unit, Great Ormond Street Hospital for Children, NHS Foundation Trust, London, United Kingdom.

Laurence A Bindoff (LA)

Department of Clinical Medicine (K1), University of Bergen, Bergen, Norway.
Department of Neurology, Haukeland University Hospital, Bergen, 5021, Norway.

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